Tag Archives: #life by design

Supposed To Know

Floating slowly through the night

I try to scream, I want to fight

Feeling lost and so alone

My cry for help comes out a moan

Wondering why I feel so scared 

My scarred heart feels so unprepared 

The darkness encloses like a wall

I wonder if I’m awake at all

The fear, this night it calls to me 

It haunts my soul, I cannot see

I lie in sweat from head to toe

Feeling like there’s something I’m supposed to know

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Running Around Day!

Today, it turned out, we had a lot of running around to do. We had to wake up and I had to drive my son to buy a gift for a birthday party he was attending today. Then we came home, wrapped the gift, fed my son and then we drove him to the party. Then we went home, I ate and then we had to drive my dancer to the “solo day” the last dances for “power week”, be fore tonight’s big sleepover. From there we drove to two tattoo parlours to talk with them about the tattoo my daughter wants to get. She liked the second place better and made an appointment to meet with the tattoo artist on Friday to discuss the tattoo she wants and to possibly get it. From there we went to Costco to get some shopping done. From there we drove to Harvey’s, because we were hungry and had a small amount of time to kill before the next place, where we went to the studio (hubby dropped me off) for the competition information and hair/makeup meeting. After this meeting, we drove back to Beaumont, picked our son up from his friend’s and went home. We had a couple hours at home. Then we left and drove back to the studio, to stop off our dancer for the big, studio sleepover that they only do once a year! Then we drove to West Edmonton Mall, because my daughter really wanted to go shopping at Hot Topic. She had hot cash, which essentially gets you 50% off every $30 you spend. Her hot cash expired tomorrow, so she desperately wanted to go. So she bought a bunch of things, mainly shirts for herself (& 2 things for me!). We also went to the body shop, where I bought my day cream and their new skin peel thing that I fell in love with. Then we went to Saige. To end the night we met up with my hubby and our son at 8:45 (Hot Topic bored them) at build-a-beat and my daughter bought him a Pikachu (Did I spell that right??) build-a-bear. He was thrilled!! It was awfully rushed. Then from West Ed, we drove back to Beaumont, stopped at Subway, because we were all tired and hungry. Then we, finally, made it home for good at almost 10:00pm. So much for a relaxing, nothing day. I guess that can be tomorrow. That, in a nutshell, was my day. And now it’s late and I’m tired and, yes, my head was still aching all of this time. I called the pharmacy, but they are out of my migraine medicine and have ordered it in for Monday…not exactly the helpful relief I was looking for!!  I’m off to bed now! Sorry for the rambling. Night all💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Ouch!

I have a super-d-duper bad headache tonight. Migraine style…I’m out of my migraine meditation☹️ That sucks!!

Our oldest is finally starting to feel better today. Hopefully the infection is on it’s way out. My dancer is still coughing and hacking away. The doctor said she has bronchitis. She said it’s viral and that means that antibiotics won’t help, she just has to ride it out. That sucks too!! Our oldest wanted to treat us all today. She took us to a movie. We saw Muana, (I’m not sure if I spelled that correctly!). It was really good! Very entertaining. It had good humor, which isn’t surprising for a Disney movie. It was just really good. I’m glad we saw it. We couldn’t decide between that or Sing. I’m glad we chose the one we did, I really enjoyed it. Afterwards, she took us out to dinner, to Montanas. I had the chicken fajitas which were mmmm – mmmm good! Now that she has some money, she wanted to take everybody out and treat! It was super nice of her to do it. I did have a stinking headache the entire time, but it’s worsened a lot since we’ve gotten home from dinner and a movie. I’m going to head to bed because it’s making me crazy! I don’t understand why I’ve had these headaches recently, they’re super annoying! For some reason I’m super tired tonight anyway. Night all 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Stress And Worries

So I haven’t written any poems recently. I’m not sure why. I’ve been going through this overthinking stage. I seem to be worrying and stressing about everything! I’m not sure why…it’s strange. I mean it’s not like worrying is all that new to me, but it’s been more often and over things that usually don’t get to me that much. Strange! Really really strange. I’ve only had that one panic attack in my life and I don’t feel like I’m close to having another. It’s just that I seem to be letting little things get to me. So then I overthink everything. And, when that happens, it’s not conducive to writing poetry. My poems tend to write themselves and I don’t have to think too much – the opposite of overthinking!! Maybe part of it is how busy we’ve been recently. I’m feeling tired all of the time and I’ve had a headache for a week straight now – yuck! I think I need some down time. Also, the kids have been home sick a lot this week, which makes me busier! Oh well. This weekend isn’t as bad or as busy as last weekend, so it should be better. But right now I’m going to hit the hay at a good time for once, because I’m just exhausted!!! Night all 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Hmmm…Yawn

My oldest went to work today, despite still feeling sick. Yay! The “old” her wouldn’t have, which is a sign of growing maturity. She has a sinus infection that’s not going to clear up overnight, but she went anyway!  I’m so tired right now. I don’t really know why, I didn’t go to bed too late, even though I did finish the newest Patricia Cornwall (did I spell her name wrong???) book. The ending was good. It was all pretty good, it was just, in my opinion, a bit slow at the beginning. It wasn’t tea late when I got to bed, but all day long I’ve felt beat and find myself drifting off, eyes closing. I was probably the most awake this morning when I threw the stew together and into the crock pot.  I just about fell asleep singing to my son when I put him to sleep. Other than a bit of driving, I hardly did anything today. I’m just sooo tired that I’m going to hit the hay! I’m trying to keep healthy in my house of germs, so I’m going to go to bed now. Night all💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Good Visit

Well, none of my kids are feeling much better yet. They’re all still coughing. My oldest still seems the worst. We took her to the dr and they think she has a sinus infection. She’s on antibiotics now. She also got a note for work. Missing three days is stressing her out! It’s still a fairly new job and she doesn’t want to get into trouble. Her plan is to go tomorrow, regardless of how she feels. Then if she’s not doing great, but shows up, they may choose to send her home, but that’s on them then and she’s not calling in again.

We went to my parent’s house for a visit with my Aunt and my cousin, before my aunt heads back to BC tomorrow. They were going to come here, but we decided to go there instead. With my oldest at home, we didn’t need to worry about her being unable to see Auntie Marilyn. We played a fun card game, called Phase 10. We didn’t actually have time to finish the game, but I was actually winning for once, which is rare with that game – lol! We had a good meal and more of the leftover birthday cake from Friday.  After supper my daughter showed us all some of her dances. I just love watching her dance. I can’t wait to see them on the stage. By the end of the competition season I will know most of the dances, because I’ll have seen them a whole lot, but now is the exciting time when they are all new and I’ve never seen them. I don’t know if I have a favorite style. This year her hip hop is going to be a fun one to watch. They are going to be dressed as the Scooby Doo gang. My daughter is Velma. We still have to buy her costume. I’ve found most of it on amazon.ca, it’s just the orange turtleneck that I still have to find. Well, I have to actually order it still, I’ve just been finding everything. She’s also doing a lyrical solo this year and I’m so nervous! I think I am more nervous about it than she is actually! She also showed us that dance tonight and it’s really pretty, I’m sure she’ll do fine, I just can’t believe that my baby will be up on that stage all by herself dancing in front of a bunch of people. It freaks me out! Not that I don’t think she’ll do very well, she’ll do fine, I’m sure, it’s just, wow! I could never do something like that all by myself.  That takes courage and I’m proud of her for even trying, regardless of how she ends up doing. I’m awfully tired and I’m trying really hard to not get any of the millions of germs that my kids seem to be swimming in right now. I have a really runny nose and watery eyes, but that could always be allergies. If it turns into this cold, I won’t be surprised, I’m just hoping it’s not the bug that is in my nose right now. Regardless, I’m going to head to bed and get some sleep. I’m super tired. I couldn’t sleep last night, it was around 4:00 when I finally fell asleep last night. So, I’m off to bed. Night all💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Still Tired Out

I started this on my phone, to cut and paste the tags and the end paragraph, like I always do. Then I went over to the surface to continue writing and for some strange reason it’s not showing up there. I’m going to check again, but I may be doing tonight’s post on my phone. Not that that’s the end of the world or anything. Just strange…don’t you just love technology?? Well, here I am, on the surface. For whatever reason, it decided to work after all. My hubby travelled to Yellowknife early this morning and will be gone until Wednesday night. I hate it while he’s gone. It’s just strange. Today was even stranger because everyone was home. Even my oldest ended up calling in sick. She could barely function, she’s the sickest of the three, but they’re all coughing and sniffling and generally feeling crappy. We had such a busy weekend that they didn’t exactly get a lot of down-time to just take it easy and get well. What surprises me the most is that, knock on wood, I’m not sick yet! I usually get whatever the kids have and vise versa. But, so far so good. Even though they aren’t feeling great, I think that my parents and my aunt and cousin are going to come over for dinner tomorrow night. I really would like a better visit with my aunt and she is leaving on Wednesday for the island.  So, hopefully they will still come, despite my kids being a little under the weather. I bought the ingredients to make a stew in my crock-pot. It’s easy to make, I don’t have to worry about it once I get it into the pot and most people like stew…I think. Actually, my own kids won’t eat it! Well, the oldest will, it’s the younger two who probably won’t have any.

I let my daughter go to dance tonight, even though she was/is coughing up a storm. It’s power week at the studio, which is when all of the regular classes are cancelled and she has specific groups on each night, like tonight was ballet and jazz.  Then they all take turns doing their dance for the other kids. The whole studio gets a bit crazy, with lights and loud music and they make a music video and have a lot of fun. I knew that she wouldn’t be dancing straight for the entire time and that she just had her ballet and jazz dance to perform. Little did I know that she was coughing so badly after dancing that she threw-up! Oops! Maybe I should’ve sent a note stating that she was there to watch, but unable to dance or something like that… During power week, there is no dance on Tuesday, which is why I thought it’s be a good day to see my aunt and hopefully will give her a break from dancing, for at least a day!

I’m still feeling tired from the weekend to.  Worn out really, which is why I’m so surprised that I haven’t picked up this stinking cold that the kids have. Well, my oldest almost seems to have more flu-like symptoms, not just a cold and cough like the younger two. Which is why she called in to work today. She could barely get off of the couch.  Her body is aching, she has a cough and a headache and other yucky stuff. She was so worried about calling in, but she clearly is too sick to be working. I don’t know what she is doing tomorrow.  She wanted to wait and see how she feels in the morning. But, as I was saying, I’m still tired and I want to get to bed, so I’m going to stop now and get some rest. Otherwise I will end up with their germs all up in my business!! Lol!! Night all 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Worn Out…

I believe that last nights post was my shortest post ever. Well, tonight likely won’t be that much longer. When you have a chronic illness, busyness is a curse! This is so, because I tend to get worn out much easier than most people. And, I’ve got to tell you, I have been way too busy this weekend. So, sadly, I missed the TN support group meeting today. I was really looking forward to it, but just felt so so so tired this morning. Last night at my hubby’s Christmas party I took a while to feel comfortable enough to talk to people. I had a few Caesars, which helped. You know, liquid courage and all that. But I ended up drinking more than I had intended to drink. Too many people bought me shooters, mainly because they wanted to buy shots for my hubby, but he was driving. So, the shots were bought for me instead. I get soo self-conscious at these events. I don’t feel like I was dressed up enough, in comparison to the dresses most of, although not all, the girls were wearing. Oh well, it’s not like I can change that now. It was probably fine, I just worry about silly things some times. Well, I was tired before this party even started, so if you add the alcohol to an already tired woman, who doesn’t drink very often, you end up with a mess named Jenn! I was feeling just done, so my hubby drove me home. He went back for our daughter and they helped make sure everyone got out okay and that the drunk people weren’t driving – they got them into cabs or ubers or with friends. The main thing is that people had fun and stayed safe! The kids were still awake when we got here, I can’t even recall the time. I want to say it was around 11:00pm. But by the time I got my son into bed and got myself ready, I was just super tired, exhausted really. That exhaustion carried over until today. Especially since I couldn’t sleep. I was still awake at 5:00 in the morning.

Today I did nothing at all. I stayed in bed pretty darn late and when I did get up the most active thing I did was a short game of hide and seek in out house with my son. We watched Pete’s Dragon and it was really really good. I balled at the end, so did my oldest daughter, but we really enjoyed it. The story wasn’t really the same as the original movie, but it was still good. After supper my daughter and I watched a couple pvr’d shows and then we all came up for bed. Sleep sleep sleep is what I need. Desperately  so, on that note, I’m going to head for bed now. Night all 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Christmas Party 

It’s waaaay too late for me to write anything tonight. It was my hubby’s work   Christmas party. I’m super exhausted and am not writing anything. So sorry. 
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Birthday Party 

I’m feeling super tired tonight. I had a long day today. I had to go to my pain dr this afternoon in St. Albert. I really like him. He’s just such a nice person. He’s always kind and understanding. He’s also just real, kind of, I don’t know how to say it, down to earth and human. I may not be making sense. I am really tired. Anyway, it was kind of a routine appointment, not much different, except we’re going to try decreasing one of the meds I’ve been on forever. Hopefully I can decrease it without a noticeable change in my pain levels. That’s the goal anyway. Then I may get rid of some shitty med side effects I’ve been living with for some time now. Like the mental foggines – okay, I totally spelled that weirdly!! Anyway, fingers crossed that I’m able to decrease this medication. 
After the pain dr we popped into a store where I bought a new dress and tights. Then by the time we went home and I showered, it was time to go to my mom’s birthday party. The party was good. My aunt was there and it was so nice to see her. It was also great to see mom and dad’s friends from years ago, many whom they were friends with for years and years. Most of them I haven’t seen in years. We got home pretty late though and tomorrow is probably going to be late as well. I’m so tired right now, wow! I’m just beat. I’m going to go to bed. Night all 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”