Tag Archives: #yoga for pain relief

Awareness Day Around The Corner

TN awareness day is on the 7th. I don’t know if I’m going to the event or not. I haven’t decided. It probably depends on how I feel. We went last year. It was cold and snowy. They light up the high level bridge with teal lights. It actually wasn’t that spectacular, but it’s cool. If that makes sense. It’s cool because it brings awareness and teachable moments. I hope I feel up to it. I guess we’ll have to see. 

I still am not well. I got hardly any sleep again. I sort of half fell asleep on the couch this morning, but I was only dozing, I wasn’t right out. I feel like I haven’t been in a long, deep sleep for weeks now. I just scanned through some of my recent post titles and they’re all either about sleep (or lack thereof) or feeling sick or both!  Too frustrating. Weird thing, I had a dream last night (so I must’ve slept a little) that I was caught in a mass shooting in the states. I got shot in the leg, but managed to hide. Then, he sad thing was that I woke up and my hubby told me about the tragic mass shooting in Vegas last night. (Too sad and scary!!) I just found it weird that I had that dream while that was actually happening. Strange coincidence. 

I didn’t really do anything again today. Sigh… how many days in a row have I said that? Take a look around my house if you want to guess. It looks like a bomb went off. It’s really bad. I haven’t got any energy to deal with it. So, it goes unchecked and just manages to get a little bit worse every day. I need a maid or something. Feeling like this I just can’t stay on top of it. Maddening! There’s so much that I’m behind on right now that it’s just ridiculous. Yet every morning I feel just as tired and shitty as the day before. If this is some kind of withdrawal from just stopping the suboxone suddenly, it’d be nice to know! I wouldn’t think that withdrawal would last quite so long, but what do I know?! I did call Dr May’s office today to make an appointment to go see her. They were supposed to call me back, but haven’t yet. It’s usually not easy to get in to see her last minute. So, I’ll probably have a bit of a wait. Which sucks. But, I just think hat I’ve felt like this for too long now. It hasn’t passed or moved on. So maybe it’s time to see a doc! 

Well, for now I’m going to crash. Hopefully the dr’s office calls me back tomorrow. Maybe they’ll have a cancelation. I can only hope.  I’m going to head off to bed now. Night All! 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the we’World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Feel Like Hell

I feel like hell. I feel like that’s all I want to write!  I just want to flop on the bed and sleep, but of course I probably can’t. I know that sounds super pessimistic, as I have sounded the past few days. It’s just that I haven’t had the best track record as of late. I really don’t have much to say tonight. I hardly have the energy to even type this. This is definitely going to to be a very short short post tonight. 

Today was just about as useless as the past few days have been. I can’t function all that well right now. It’s too frustrating! So I get nothing done. I accomplish nothing, I do nothing, it’s maddening!!  I end up spending my day on the couch. We may have found the place we’re going to stay at when we go to Jamaica. We’re close anyway. I’ve looked at so many places now. It’s crazy!  Hopefully I’m feeling better by then…I’d better be. I’m losing my mind it feels like.  Funny, how I took for granted how I felt when I was feeling better…like it’s just expected. You just get used to it and you go about your days and don’t realize how lucky you are to be feeling well. Until you don’t…then I’m looking back at the summer and realizing I am so lucky that I was feeling so good! 

Well, I really hate being such a downer. I think I’m just going to head to bed and see if I get any sleep. Night All! 💤😴 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the we’World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Yawn. 

I’m so done with this insomnia. How many days can you go with hardly any sleep?? Last night was bad! I probably got about 2 or 3 hours tops. Yuck! I can’t stand the tossing and turning and being uncomfortable. It’s like my body aches in all positions and I just can’t, for the life of me, get comfortable. Head pounding, heart racing, and feeling ill. How do you function? It seems impossible. What do I do? I feel like hell. 

So, nothing gets done. The house is in disarray. I sit like a lump. It’s hard to move.  I was gagging over my coffee. I thought for sure that I was going to throw it all up. What an awful way to feel. If this is some bug, wouldn’t it be gone by now??  You’d think!  But, nope! No such luck.  I don’t even have anything to write about. Because I did nothing!! I couldn’t do anything. I felt too crappy. 

We watched the last few Supernatural episodes of season 12. We are officially caught right up! The new season begins in just under 2 weeks! It’s going to be weird. After a Netflix binge watch for a whole week, we’re only going to be able to see one at a time… I kind of liked being behind. The feeling when you’re drawn right in and could just watch forever. And, you have enough episodes that it feels like you can. I like that. Now we’ll have to wait, like regular people, and watch it week to week! That’ll be so strange. I like getting to find out right away what happens next. Oh well. All good things must come to an end. We could always record a few and then watch them all at once, but we probably won’t. We’ll probably go week to week, because we’ll be too interested in what’s going on. That’s just what happens when you get into a good story, the whole not wanting to put it down thing. Well, it’s just the same with a good show, right. You just get drawn in and don’t want to stop watching. 

I wasn’t even up to cooking. My daughter ended up ordering pizza for supper. I’m so darn exhausted!! I just need to sleep. So so badly. A long, deep sleep!!  I wish I knew how to make it happen. I’m going to go try at least. Sorry this post was so down. I’m just feeling warn away. Super tired. Ready for bed. Night All! 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the we’World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Whirlwind 

They had a whirlwind of a relationship

Took them there so fast 

Even though they’d just met

They both knew that they’d last

This crazy love that she does feel

Her desire runs through the ceiling

Who knew time would be so short

To understand quite how you’re feeling!

From strangers to lovers in three short days.

That feeling of just knowing was there.

So she closed her eyes and went with it. 

A world without a care. 

JKC

Night All!! 💤😴‼

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the we’World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”and I had been together  p

Still Blows

Well, here we are again. 

Another day’s gone by.

A day filled with pain and nausea too.

I can’t help but ask why?
I’m so tired of these posts.

Complaining about how I feel. 

Telling you I’ve done nothing. 

It’s starting too feel surreal. 
Binge watching my show for days. 

Go team Sam and Dean. 

It’s ingrained on my brain.

What does that even mean?
I figured rhyming will make it more interesting 

When I say I did nothing at all.

I didn’t leave the house.

Oh how the good do fall.
Such lazy, lazy days. 

Exhausted and tired and ill.

I try to get up and function more.

But my guts almost started to spill. 
So I do nothing but watch my show. 

What else can I do feeling this way. 

It’s crazy hard to function..

Each and every day. 
Without Jared Padalecki and Jensen Ackles,

I wouldn’t get through my day. 

They have given me something to do. 

They’ve given me something to say. 
My daughter and I get too emotionally involved with our shows. 

Like you’re a part of it or something. 

We cry we laugh we cheer, 

We even high five and sing. 
Okay, maybe not sing.

But it rhymed just right. 

We do get really into it. 

We’re probably quite the sight!
It’s just one of our favourite shows. 

There’s a rumour that this season’s the last.

If that’s really actually true,

I’ll hang the flag at half mast. 
I’d miss it far too much. 

I really enjoy this show.

I know it’s just a rumour,

But I’d really like to know. 
Well, I’m rambling quite a bit. 

There’s not much more to say. 

I’m going to go to bed. 

It’s gotta be this way. 
Night all!💤😴‼

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Blech!!

I’m writing on the iPad again. Yay! I think I like it better. Probably just the size and the fact that I’m blind, so bigger is better. I do have a big phone though. I still felt awful all day today. And…my damn day started around 4:30am! I woke up with a pounding headache and was unable to fall back to sleep. I just lied there (did I spell lied incorrectly…hmmm..I don’t know. ) from 4:30 on, unable to sleep. Feeling like hell. Tossing and turning. I couldn’t get comfortable and was switching positions every 5 minutes!! Super frustrating! So, of course, I felt tired all day! You know, along with having a piercing headache and severe nausea. Yuck! Today was about as productive as yesterday. Maybe even worse than yesterday. Possibly worse Han yesterday. The exhaustion of being unable to sleep has been creeping up on me!! It’s just been night after night for so many days now that I’ve completely lost track! I do know that I’ve been bitching about it on here for almost two weeks now!  Sorry for that…feeling like hell wears you down. It’s hard to think about much else or to concentrate on anything else. 

Like yesterday, there’s not a whole lot to tell about my day…I flopped on the couch for the majority of the day. Except for when I was driving the kids to and from school and driving my daughter to dance.  Then I forced myself to focus and get it together. Driving to dance was uneventful and she danced a bit later, so it wasn’t during a busy traffic time. My daughter and I watched Supernatural again. We’re slowly catching up. It has its freaky moments, but for the most part it’s just very entertaining. My hubby actually got me into it a couple years ago. He’s more caught up than I am. But we’re gaining on it, after a couple serious binge watching days. We just watched an episode with Jodi Mills (that’s the character’s name. I don’t know if that’s actually how they spell it) in it. I like her. She’s one of my favourite characters. She makes me smile. She’s pretty tough and she’s the sheriff of a small town. A strong, independent woman. She’s a great role model!! I enjoy it!! So at least something made me smile today!! There was a really funny scene at the dinner table with her and Claire and Alex, with Sam and Dean there too of course. Too funny! I’m not making much sense I’m just so exhausted…I think I’m going to try to sleep…we all know I won’t be able to, but I’m going to try!! Night All!💤😴‼

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Still Too Ill 

Today was no better than yesterday. How many days in a row have I said that? Too many I think. So many hat I’ve lost track. I feel like hell…this nausea is killing me. I feel like I have nothing to write about, because to tell you about my day is to tell you that I’ve done nothing but sit and feel awful. I mean I got the kids to school. They were fed supper etc. Of course I forced myself to do those things. However, it’s difficult to function feeling this way. I can’t get anything done. I just don’t feel up to it. I feel too nauseous to bloody function and it’s making me crazy. I’ve been having some fibromyalgia symptoms too. Those haven’t bothered me in a while. But random aches and tingling and other things. Just don’t feel well. 

So, I truly did nothing today…my daughter and I both felt crappy. We sat around most of he day watching Supernatural. We’re only on season 11.  This year season 13 starts, so we’re two seasons behind. The rate we’re going, with days like today, it won’t be long before we’re caught up!!  We hadn’t watched it in a while, but we put it on again yesterday and jumped back in with two feet!! I can’t believe that they killed Charlie. Oops!! SPOILER ALERT!! (Yes, I’m two years behind, but I may not be the only one!!) It felt like a binge watch today. It’s just so difficult to do stuff when you feel like I’ve been feeling. I guess you either get that or you don’t. Most people don’t know what it’s like to feel like crap, day in day out. Personally, I’ve had a lot of experience with it. A LOT of experience. More than I’ve ever wanted or needed to have, truth be told. I’ve had my fair share. I feel ready to pass the baton. To whom?! Well, no one. I wouldn’t wish my health history on my worst enemy…not that I really have any enemies, but you know what I mean. It’s not something that you’d wish people to experience. You definitely wish for understanding from others, but not the actual experience of it. It’s like what I always said about my nerve pain, that most people can’t really fathom. I’m glad, after the fact, that my hubby had shingles all those years ago. He remembers the pain, the horrific nerve pain. So, when I started getting it on my face he was able to understand. He couldn’t imagine it on his face. He had it on his back. He says to feel that on your face would be horrible. But at least he gets it! I would never have wished for him to have shingles, but his experience led to understanding of mine. That’s generally not the case. Most people can’t really understand what it’s like to be in pain day in and day out. To wake up everyday feeling tied down. Blinded by the pain. It eats at you, it eats at your life. It just sucks. So if my head and face and damn tummy could all just stop being so damn temperamental, I’d really appreciate it!!

Well, that was quite he ramble! And here I said that I have nothing to write about…because I don’t feel well, I’m going to cut myself off here and try to sleep. Night All!💤😴‼

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Stress And Sickness

I still feel like hell…

Nothing’s changed since yesterday

I don’t feel well!!

I feel nauseous – so sick

I still have a stupid headache too

It needs to change – and quick

I just want to lie down in bed

Again nothing I take works at all

I just need to rest my head

At least my hubby has a job

We thought after today he may not

My sanity they were able to rob

They created a new position for him

He’s not very happy about it

At least he’s still there, chances were slim

It’s a long involved story

It’s been happening for a while

Things were feeling gory

My phone doesn’t like that word

Oh well, I used it anyway

This whole thing seems absurd

It kind of – semi rhymes

Not very well, I’m afraid

I really suck sometimes

All I did was worry

Hoping things would be okay

My hubby was full of fury

I hope works out

What my hubby says about it

Leaves me with some doubt

But there’s nothing he can do

He can’t just go and quit

We rely on all his income too

What a stressful time

It makes it hard to think

Maybe that’s why I can’t rhyme

I’m going to go to bed

I’m ready to do so

To go and rest my head

Sigh…

Night All! 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Sick And Tired

I felt sick today…all day long! Yuck. Nothing I took, nothing I did made it better. This morning I woke feeling nauseous with a pounding headache. Yuck! That sucks! Not a fun way to wake up feeling. The tummy pills that I have didn’t help me at all. Believe me, I’ve tried taking them all day. It sucks…I think I mentioned that!!

Despite how I was feeling, I got up and had my coffee. I watched a couple shows flopped out on the couch. Then, I forced myself to get up and help my daughter with her bug room. We cleaned almost everything up. We only found about 5 or so of our friendly neighbourhood carpet beetles. Which is really good. We managed to get around the entire room with the bug killer – all of the baseboards around the room. We also set up 4 traps. 1 in her closet and three throughout her room. Hopefully this will eliminate them from her room for the most part. So that she can start to sleep in her room again. She’s missing having her own space. She usually spends hours in her room. Hopefully they’ll be evacuated from there or we’ll get that ones that are still there with the traps. We didn’t find a whole ton of bugs and none on her bed, which was good. We did find a few, shell kind of things it looked like they hatched or something from. They were really gross. I just am praying that we have things under control!! Our cleaning took pretty much the entire day!! We basically cleaned till 4:00pm. Then, we watched another episode of the Bachelorette. They were in Geneva, they got to see the Swiss alps, what neat things she gets to do. I’m pretty jealous-lol

After that I made supper. Following supper I was super lazy, because I didn’t feel well at all. I watched Home Grown, another HGTV Reno type show it’s entertaining. They do make wish we had money to fix our house though…I guess I can dream…cause that’s about all we can afford!??

I’m feeling sick and want sleep. I’m going to take off and get to sleep. Wow do I ever hope that I feel better tomorrow. This sucks. Night All! 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Still Tired Mon!!(practicing my Jamaican) lol

Well, today I felt sick and tired. I don’t know why. I had chills all day and my tummy felt/feels pukey. (My iPad doesn’t like that word!) I spent the morning sleeping in until about 9:45-10:00. Which was nice. Even though I was tired, it took me forever to fall asleep last night. I was tossing and turning. I couldn’t get comfortable. It was terribly frustrating when I felt so darn tired. I was like, he! I can finally go to sleep at bed time, then when I finally get to lie down, I can’t sleep for the life of me. I really wonder if it is because I’m no longer taking my Suboxone. Dr Hauptman, my pain dr won’t like that one bit!! The good thing is that I haven’t had any huge flare-ups of pain, so maybe it was meant to be and I didn’t actually need it anymore…I don’t know. All that I do know is that I wish I could sleep better. 

Once we got up, I sleepily drank my coffee, which didn’t even really help with the sleepiness. As the day progressed, my tummy started to feel ill. I got the shakes for a while. I houngan I was just really hungry, but eating didn’t really help. I helped my middle daughter bake brownies. I think we overcooked them.They’re a little hard, but hopefully The kids will eat them. I certainly don’t need them. I need to lose weight not gain it!! I have fallen off the Weight Watchers wagon.     I’m having a difficult time getting back on, but if we’re going to Jamaica, I really would like to feel a lot better in a bathing suit than I currently do!!

After the brownies were done, we had to get ready to go to dance. I drove her to dance around 3:30. I had to stay in the city, because there was a parent’s meeting at 5:00, so it didn’t make sense to drop her off at 4:00 and then drive home, to turn around and drive back. So, I stayed in the city and went and got us each a sub from Subway. That’s when I was having the shakes and really thought that I needed food to help! Unfortunately, the food didn’t help…it did help kill time a bit, then I read my Jamaica book in the car until it was time to go in for the meeting. The meeting depressed me…about 80% of it was spent talking about the upcoming Disney trip that the dance school is going on. What an opportunity! The kids get to dance in a Disney parade all through Disney. They get to perform on stage. They get training classes. The prices were very reasonable too. It’s so sad. I really wish we could do this for her! I just don’t think it’s a true possibility. It’s not realistic. I really wish we could afford for at least her to go and spend her time with another family. I know some would welcome her with them. What a cool opportunity. I left feeling like worst mom ever. All these wealthier families are like right on, sounds great, sign us up, etc.etc.  I just stayed quiet I knew it wasn’t realistic right now. My hubby’s job is not feeling all that secure after last weeks crap…I’m kind of freaked out by it. I’m so used to him having employment, I don’t know what we’d do if he lost his job!! So I’m not currently in a position where I can say, sure you can go dance in Disney land. 

After the meeting, I drove home and stopped at Sobeys to grab a few groceries. Then I went home to my daughter and son, my hubby was at a funeral all day. His old friend’s brother hung himself. Very sad. He was only 32 years of age. So many years of life ahead of him. When I got home, we put the groceries away and then we did the dishes – fun stuff right!! My oldest decided to order pizza. I only had a couple slices. I had the sub a few hours earlier and my tummy still wasn’t great… she had to go to bed early, for work tomorrow. My son and I played a game for a bit, then I watched a little bit of tv and then it was get ready for bed time. And here we are!! It’s almost midnight and I’m beat!! I’m going to head to bed…well, I’m already in bed, I’m going to go to sleep!! Night all💤😴‼

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organizationu (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”