TN Meeting 

This morning I went to the TN support group. This is the first one I’ve attended. It finally worked out that I could go. There were about 20 – 25 people there. Most of them were older, which I guess makes sense, as TN is more common in older people. Also, most people had their spouses or caregivers with them. My hubby didn’t go with me, we didn’t know that spouses attend. For those of you new to this blog, let me explain what TN is. It’s a facial pain disorder called Trigeminal Neuralgia. (TN is actually the main reason I began this blog!!). It is categorized into two types, typical, type 1 and atypical, type 2. In typical people experience severe sharp, stabbing jolts of pain on one side of the face in one to three branches, either the lower jaw and area in front of the ear, the middle of the face or the upper area including the forehead. In atypical TN there is more of a constant burning, tingling type of pain in one or more of the facial areas.  TN is often referred to as the most painful disorder known to humankind. It is also called the suicide disorder. I’ve had TN for about five years now. It’s awful. I have both typical and atypical TN, because I’m just one of the lucky ones I guess… About 3 years ago I had the MVD surgery, which is brain surgery where they put teflon in my brain over the branch of the trigeminal nerve in between blood vessels that are compressing the nerve.  The theory is that the blood vessels have worn away the myelin sheath on the nerve, which cause it to fire randomly and sporadically, causing TN pain. My surgeon found a couple big vessels compressing my nerve and was really hopeful that the surgery would be a success, however it didn’t work. My pain levels remained the same. For a very long time I was pretty incapacitated by pain. I’ve been on numerous different medications and have tried many things. Recently the pain has decreased. I don’t know why. I can’t attribute it to anything, but it definitely isn’t as bad as it was before. It’s still there, but it isn’t as bad. It was nice to see that I’m not the only person who’s had to deal with this TN crap. The meeting shows you that! I’ve spoken a lot about TN in the past, if you want more info or want to hear how I dealt with it, go back to when I began my blog!! I’m going to get ready for bed now!! Night all 💤😴

To help with research and treatment for Trigeminal Neuralgia please go to (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.””Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Hey! Let me know what you think! Thanx❌😘❌‼️

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