Category Archives: Uncategorized

So So Tired

June 30, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

After the concert, it’s so so late

Time for bed, too much to say

Such a great time, so much to see

So worn out, that’s all for today

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Poised

June 28, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

Falling through time and space

Open to everything in my mind

Willing to do it all

Excited to see what I’ll find

Ready to do whatever it takes

Knowing there’s so much out there

Wanting to grab it all

Ready to get my share

In awe of all that is

Knowing I’ve barely touched it

Moving with eyes wide open

Prepared for life’s next hit

Sighing in wonder and joy

Poised to take it all in

Wondering at a lifetime of beauty

Missing it all would be a sin

JKC

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

My Viewpoint

Floating on a cloud, towards oblivion.

Gradually, my brain begins to slow.

My thoughts are generally a jumbled up mess!

Instead, clear decipherable thoughts flow.

What can I accomplish with enhanced clarity?

What can I do when I can actually focus?

Write. I can write write write…

This stuff works like hocus-pocus!

It’s the only thing that touches the pain.

Clearly the biggest benefit I know!

Also, my “high” poems are often the good ones!

I don’t over-analyze, the words just flow.

I’m filled with creativity and ideas,

And, yes, they’re usually the better ones!

Also, I’m confident in what I come up with!

I don’t question myself, tons!

There is a negative side of course;

That is, for me, inside I’m confident and assured,

However, on the outside I get a bit anxious,

Mainly about getting judged and measured,

This is generally from those who are “against,”

My choice in medications!

The uneducated people get me incensed!

Don’t spout your mouth off,

If you don’t know what you’re talking about!!

Don’t think it makes you better than me,

Your ignorance does not get you clout!!

The other negative side effect, for me is…

My memory!! It is horrid while I’m “medicated!!”

For once, my hubby says, it’s worse than his!

So that’s where it takes me,

That’s all it does, both the good and the bad

But anything that even puts a little dent in my pain,

I’m keeping; regardless of those who may get mad!!

JKC
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

I Used To Be Oblivious

June 27, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

So many are oblivious

To those around them

Who choose to suffer

In silence

With an invisible illness

They do not understand

That invisible illnesses exist

They are ignorant and

Unaware that people live

Full lives while silently

Suffering in pain

Physically, emotionally, mentally and psychologically

I knew all about depression

Because I have lived with depression

Since I was a teenager

As did my mother, when I was

Just a young girl

Whom I remember comforting and holding while she cried

I knew all about

The horrible stigmas

That one with depression must overcome

People can be soooo “judgy”

People with depression are often

Seen as weak, or lazy

Among many other condescending things

How uncompassionate people are

People judge, they do and say whatever they choose,

But truly they speak Ignorantly, simply without a clue

About what it’s truly like

To live a life overcome by an invisible illness

They are clueless regarding

What it’s actually like living with it

Day in and day out

Until perhaps they’re blindsided themselves

Or someone that they love is hit with an invisible illness

Having TN and depression, smacked upside the head like a double whammy,

Originally forced me to

Get it together, act like I’m fine

Well, let me tell you, I was NOT fine

I was raised to be polite, follow rules

Keep it together

And always act like you’re okay

Well, guess what

That’s not humanly possible

The pain that TN is known for

Is nerve pain, particularly, nerve pain

On your face

It’s a brutal pain to have to live with, it’s referred to as the MOST painful disorder known to mankind

Needless to say, it’s extremely difficult

To behave “normally”

When you feel like you’re dying moment by moment

When you cannot physically get out of bed

Care for your children

Brush your teeth

Function like a normal human being

Once you experience it

You totally understand why it’s often called

The Suicide disorder

How terribly sad…

I’m not suicidal myself,

Not for my sake, but because of my children

But I can empathize with the feeling, with the absolute need to escape the pain, it’s not a want, it’s a need

That question that pops into your head

“I have to have this fucking pain for the

rest of my life”

It can be very scary and sad indeed, I understand the desire to escape…the very real need for it to end

It is no surprise to me that the vast majority of TN sufferers also fight depression

I’ve become the shell of the person

That I once was

I’m no longer Nieve, innocent, and Ignorant

Regarding invisible illnesses

And I knew all about them…

So, why don’t you try

To find some compassion

Maybe you truly need to live

A day in the life of a person fighting an invisible illness

Or just talk to one of us

Please just say, “I don’t understand”

This opens up a conversation

And conversations ignite

UNDERSTANDING and COMPASSION

Then one day you can say,

“I used to be oblivious

To those around me

Who choose to suffer in silence

To those who have invisible illnesses

But now I understand and I want to help!!”

JKC

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

A Night Without Pain

June 25, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

A night without pain

Like a breath of fresh air

To fall asleep easily

With not even a care

Generally nights drag

And I’m up all hours

Or else I sleep under

Super drug powers

To lie in bed quietly

Just thinking and dreaming

Instead of passed out dead

Or practically screaming

A night without pain

What a treat that would be

Let me know if it happens

It never does for me

JKC

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Her Insolent Behaviour

June 24, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

Frequently she gives in

To her blind temptations

Certainly it will reappear later

Like it always does

Yet, she generally behaves rashly

Without thought of the future

Or coming repercussions

We believe that she most certainly

understands and knows what’s coming

However, she brashly continues

Without thought or concern

About who she may hurt

Or possibly offend

Solely focused on herself

She ignores the emotions

And reactions of others

Even those whom she claims

To be close to

Consequently, she has been left

On more than one occasion

Selfishly she questions why

Lacking any empathy

Truly not even attempting

To see another’s viewpoint

She brazenly continues

To exhibit little to no concern

Towards anything that does not

Relate to her

Even her family recoils

At her behaviour

Sighing in resignation

Clearly accustomed to her audaciousness

If karma truly exists in this world

She had better watch her back

As she has left countless ruins behind her

JKC

{Note: This is not written about anyone specific, I just wrote the words that popped into my head!!)

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

ALONE😪

Alone, she gazes out her window

Alone, she ponders in silence

Alone, she dreams of something more

Alone, she considers how she got there

Alone, she recalls when times weren’t so lonely

Alone, she reaches for the phone

Alone, she pulls her hand back, apprehensive

Alone, she tries to contain her tears

Alone, she examines her life

Alone, she questions herself, “Is it her disease”

Alone, she wonders when she became this introverted, uncertain person

Alone, she lets the tears come

Alone, she prays for relief

Alone, she wishes she could turn back time

Alone, she feels like just a shell

Alone, she prays for even a fraction of the person she was

Alone, she questions the value of her life

Alone, she has many dark thoughts

Alone, she feels empty

Alone, she forgets much

Alone, she cringes from the pain

Alone, she realizes that her heart is also pained

Alone, she feels isolated and worthless

Alone, she questions her sanity

Alone, she doubts herself

Alone, she knows she should reach out

Alone, she knows she must not wait until she’s too far gone

Alone, she yells to God, “Why me??”

Alone, she wishes she could leave it all behind

Alone, she wonders if she’d be missed

Alone, she believes that she has no options

Alone, she feels completely stuck

Alone, she wants it to stop

Alone, she wants it to end

Alone, she should never be

Alone, she must reach out to someone

Alone, she doesn’t believe there’s anyone to reach out to

Alone, she sobs

Alone, she begins keening

Alone, she falls to her knees

Alone, she prays for help

Alone, she doesn’t know where to get help

Alone, she needs to go online and search for the Facebook group: Not Your Typical Chronic Pain & Fucking Anxiety Family

NOT ALONE, she can find support, laughs, friendship, and much more.

NOT ALONE, she can talk about anything and everything; there is nothing that you can’t say…well, unless you’re being rude or inappropriate (obviously).

Don’t stay alone‼️

Don’t allow your health issues to win; by breaking you down and isolating you‼️

Reach out‼️

Alone, she found the support group and realized, she’s no longer alone‼️

JKC

You are not alone, look at all of these TN warriors‼️

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Nightmare

June 23, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

Th familiarity struck her as odd.

She couldn’t recall anything like this place,

But it was there, screaming out in her head

“There’s something more in this space!”

A sense of fear crept up her spine.

Now why was she feeling afraid?

Her palms went damp, as she broke into a cold sweat,

Is this a game being played?

“Where am I?” She said into the quiet darkness.

“Huh”, she thought, “was it always this dark in here?”

She knew in an instant, as instinct took over,

That she had to get out of there, was an exit near?

Where was she anyway? Why couldn’t she remember?

She heard a quiet shuffling sound and whipped around.

Nothing, she could see nothing at all!

Then what in the world had made that sound.

There it was again, closer this time.

She had to do something. Why was she still standing there?

She tried to step, but could hardly move.

Suddenly, in that moment something brushed past her hair!

She screamed and tried to run!

She got about 3 feet before being yanked back.

“What the…?” She was chained to something.

Suddenly the fear overwhelmed her and she started to yack!

She wiped her face with the back of her hand.

She couldn’t recall anything. She’d had a couple of drinks,

She’d just felt beat and had gone to bed.

She tried to stop crying with a couple of blinks.

What was going on? Where was she? Who did this?

She grabbed hold of the chain and yanked it as hard as she could,

But it didn’t budge. She thought she heard a quiet chuckle.

Someone was there, watching her!! “Not good. Not good. Not good.”

She said in her head. What should she do?

She asked,”Who’s there?” No answer, just the suffocating silence.

Again a quiet shucking sound.

“Help me!” She yelled, hoping whomever it was wouldn’t use violence.

Suddenly she was grabbed from behind,

and a hand was put over her mouth and he yanked her down by her hair.

“Stop screaming” a menacing voice said into her ear.

She was so frightened she just nodded and sucked in a breath of air.

Just then she saw the reflection off of something shiny,

“A knife!!!”she thought in a panic. This time his chuckle was right in her ear.

She tried to jerk away. He held the knife to her throat.

She had never before experienced such a level of fear.

As he pressed it into her throat, she suddenly sat straight up,

In her bed. She was drenched in sweat.

“A nightmare?”she said out loud. There was her husband, snoring beside her.

She was still shaking. She went into the bathroom and got her face wet.

She snuggled close to her husband, but didn’t dare close her eyes.

Oh how real and true that had felt and seemed.

She tried to calm her breathing.

That was worse than anything she’d ever dreamed.

An Abundant Life

June 21, 2016Uncategorized# 21 day fix, # atypical facial pain, # kids, # laser therapy, # shakeology, #acute pain, #affiliate marketing, #beachbody, #Beaumont AB, #cannabidiol, #cannabinoids, #cannabis, #challenge groups, #chronic fatigue, #chronic pain, #clinical depression, #coaching, #dependency, #edmonton, #facial pain, #get in shape, #health and fitness, #lasertherapy, #life by design, #los weight, #mairrage, #marihuana, #marijuana, #medication, #medicinal marihuana, #medicinal marijuana, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #side effcts, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #vaping, #vaporisor, #vapping, #wealthy affiliate, #www.tnnme.com, #www.zazzle.com, #yayme, #yoga for pain relief, beautiful #painJenn

When things get hard,

What do you do?

Do you walk away,

Or push right through?

If you stumble,

Or you fall?

Do you brush yourself off,

And stand up tall?

Do you believe,

That you can win?

Or are you convinced,

That you will never get in?

Attitude is everything,

It Takes you far!

It shows everyone,

What kind of person you are.

When you are positive,

And believe in yourself,

Your life will grow,

And be filled with wealth!

And not just money,

But love and joy!

Your life will be abundant!

(This is not just a ploy.)

You need to think and focus,

On all your goals and dreams.

Thank the universe for them now,

No matter how strange it seems…

The universe wants to help you.

So be grateful and love!

And it will seem that your desires,

Practically fall from above!!

This doesn’t mean,

You don’t work for things!

But if you’re in harmony with the universe,

Your life just sings!!

JKC

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

This Endless Game

Every night it goes the same

I’m stuck inside this endless game

With a toke right now

And another in a while

I just sit here getting high

While the time goes flying by

With a toke right now

And another in a while

I play around on my phone

While I hover like a drone

With a toke right now

And another in a while

Suddenly an hour’s passed

I have to rush to bed so fast

With a toke right now

And another in a while

And then I get to bed so late

This is something that I hate

With a toke right now

And another in a while

So I wake up the next day

Feeling exhausted in every way

With a toke right now

And another in a while

Then it starts all over again

But it’s the only thing that hits my pain

With a toke right now

And another in a while

JKC

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

The Spirit Scribe

I challenge myself to write 365 posts in 2016to heal Body, Mind & Spirit. Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Category Archives: Uncategorized

So So Tired

Poised

My Viewpoint

I Used To Be Oblivious

A Night Without Pain

Her Insolent Behaviour

ALONE😪

Nightmare

An Abundant Life

This Endless Game