Tag Archives: #yayme

Clutter Mutters…

I’m super tired right now. I really need to write my posts earlier, especially on Monday’s when I have my art class. I’m just feeling bad. I don’t want to say it, but I feel like I’m catching a cold. If saying it makes it so, I’ll take it back – lol! My son has an awful cough and runny nose and now his ear is bugging him. Poor little man! He barely got over that nasty flu-bug and bam! he’s sick again. I think that the clutter and dust in our house doesn’t help. I have a mile long to-do list and I rarely reach the bottom or finish even half of it! There’s just so so much that needs to be done and I just can’t manage. It’s so so frustrating!! Especially when my inability to function 100% affects my kids health. It fills me with guilt. I need one of those tv declutter makeover things. Just come in, with a big group, and get it done!! I know that’s not about to happen and, to tell you the truth, I don’t want it to happen that way anyway. I’ve been reading the book called, “The Life-Changing Magic Of Tidying Up,  The Japanese Art Of Decluttering And Organizing”, by Marie Kondo. It’s really readable and clear. There’s something about it that appeals to me or speaks to me. I don’t really know how to put it. It also is realistic, in the amount of time it should take to declutter an entire house. Not like some of those, “one weekend and your house is completely clutter-free and organized!!!” Those people haven’t been in my house – lol!! There is no way that we can just clear out years of built-up “stuff” in a couple days. And, I don’t want to do it that fast (well, with my health that’s never going to happen, regardless!!) What I mean is, I need to actually go through things. My hubby seems to think that we can just get a dumpster and clear everything out. However, I know that’s super unrealistic and it wouldn’t feel good to do that. I need to go through things piece by piece, bag by bag, and get it done. Don’t get me wrong, I sometimes get thr urge to just toss everything out at random, but I know, deep down, that that would leave me feeling empty and upset. I am willing to get rid of a lot of things, I just need to be the one deciding what to do with my own stuff! So the goal is to finish reading the book and then go through my stuff following her directions. With a realistic understanding that it’s not going to be done overnight and, despite the criticism I feel I get regarding this issue, but with the intention of going through it all and ending with a home I can love. Just to repeat, in-case someone misheard me, ending with a home that I can love!! No apologies. I’ve run out of the energy to apologize about the way I live. I have to go one day at a time, and that’s the best I can do right now!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Fuzzy Brain Day

Do you roll out of bed, full of pep full of life?

Do you face the new day filled with hope, filled with awe?

Do you start each day filled with love and no strife?

Do you feel the warm tug of life energy’s draw?

Can you face each day feeling open and free?

Can you let negative energy roll right off without fretting?

Do you forgive those who feel threatened from the truth that you see?

Do you understand that they wish for even half the love you are getting?

Do you know you are blessed with a clear mind and heart?

Do you worry about those who choose to live with their hearts closed?

Do you see it’s their choice, as we were all the same at the start?

Do you send your love to everyone, including those who are opposed?

I feel fuzzy brained & I’m kind of just writing whatever. And…it sounds stupid and forced and it sucks. But, I’m posting what I have for now, because it’s late and I’m tired. Sorry for the bad writing tonight!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Sometimes…

Sometimes, it takes too much energy to remember to smile…

Sometimes, I get exhausted from trying so hard…

Sometimes, I forget to be kind to my self, for a while…

Sometimes, it’s too obvious that I’ve permanently been scarred…

Sometimes, I wake and actually feel like I’m in the land of the living…

Sometimes, my smile appears all on its own…

Sometimes, the good days surprise me, like God’s gift giving…

Sometimes, I’m reminded that I’m not all alone…

Sometimes, I wish I could stay in bed all day…

Sometimes, I pray for a miraculous cure…

Sometimes, the pain leaves me speechless, with not a word to say…

Sometimes, to open their eyes, I wish people could enter my brain for a tour…

Sometimes, I believe that things will improve…

Sometimes, I know I have a great deal to offer…

Sometimes,  I want to write, because I feel like I’ve got something to prove…

Sometimes, I know that one day I’ll be a published author…

Sometimes, I dream…

Sometimes, I pray…

Sometimes, I scream…

Sometimes, I really am okay!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!
 

Marching In The Same Parade

(Brackets contains drum sounds…)
(Dum dada dum dum)

Today was a day of excruciating pain

(Da dum dada)

Inside of course, not out on display

(Dum dum da)

I just hold it in and smile for show

(Dada dada da)

As sometimes it’s just seems easier that way

(Dum dum dum)

It’s surprising how simple it becomes

(Da Ta dum dum)

To pretend all is well and good

(Dum data dum)

I know that those who know me well

(Da da da da da)

Would do something to help if they could 

(Dum a dum a dum)

There’s no quick fix, no bandaid will do

(Dum dum da duuuum)

And I see them hurting, because of me,

(Do do do dum)

When they bear witness to my pain 

(Dum da da da dat)

So, I hide it away where they can’t see

(Da da da da da dada)

I’m not sure this helps anyone of us

(Dum tra la dum)

Playing parts in this strange charade 

(Dum Ta dum Ta)

But the game continues to be played

(Dum dum dum dum)

We just keep marching in the same parade. 

 (Dum dum dum da dum dum da)

And, hey, parades are fun right??!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Time

Time 

It controls the minutes, hours and days of  all life

It freezes our past like Midas himself

Time constrains, as you cry for more

Time extends, when you wish it would fly

Time cycles around, starting and ending each day

It tracks our years as we grow and learn and live

Time directs our lives 

And, even though time eventually will end for each of us, this end is usually unknown to us, privy to time alone

So, remember to cherish each moment, every hug and kiss, all our laughter and tears, through many ups and downs; time remains the ruler of our experiences of our very lives. 

Respect it, don’t fear it

Remember it, don’t waste it

Enjoy time; don’t allow time to steal you away for long, through sorrow or disease, loneliness or stress, or anger and bitterness

If time controls the moments, we must control our story, told through our experiences, our lives

We can control what we do with our time

Time is precious, so don’t ever take it for granted

Live your best life with the time you have…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Date Night!!

My hubby and I are on our way to Jubilations on our monthly “date”. I can’t remember if I wrote about this after Christmas or not. My hubby got me the best gift this year. He purchased a big calendar and had 12 envelopes, each with a different month written on the outside. Inside each monthly envelope was a gift card or tickets, all prepaid, for us to go on a “date” each month. This way we will go out, without the kids, at least once a month. It also ensured that we can’t use money, or the lack thereof, as an excuse to stay home. It was a very sweet and thoughtful gift, ensuring that we make time to be together, without the kids. That is assuming that the kids “let”us. In the past, when our kiddos argue/fight while we were out, they phone us or text us over and over. It is so frustrating! Damn cell phones make it too easy for them to get ahold of us. It keeps them from learning how to figure things out themselves.  It also is intrusive on the small amount of time Arizona and I have together. The time that is supposed to be our time. So, we’ll see how they do tonight.  Our date is at Jubilations. It is the final week of the current show. It is about Starwars and supposed to be quite funny. We are almost there, so I will let you know how it was afterwards. 

Almost home. The show was really funny. It was very entertaining, with some very talented actors. We really enjoyed it. It was nice to go out. At the end of the show, when I checked my phone, I had missed 15 texts!! My hubby had missed a couple calls and texts as well. Argh!!! Our kids are frustrating me! I’m not going to say anything else. They make mountains out of mole-hills, so I won’t do the same thing right now. We’re just going to go into the chaos now! Goodnight💤💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Fall Deep

Here it is at midnight,

Way too late to be up.

Yet I still have to write,

With only dregs in my cup. 

I’m feeling stretched thin,

And too tired to move.

The words aren’t coming in,

But I have nothing to prove.

I don’t think this is clear,

Because I need to sleep.

I may just end this here

And close my eyes and fall deep…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

An Okay Day

Today was both a long and fast day. I feel like I just woke up and now it’s 11:30 and I should be in bed. But I also feel like it should be Wednesday, but it’s only Monday!! Weird! I’m exhausted and kind of nauseous still. And, it’s hardly news, but my face hurts tonight. It seems to be more of the “norm” for me, which is why it’s turned into a given. (Does that even make sense??) My first drawing class was tonight. I have the same instructor as last session and I was still one of the slowest in the class! I have homework that I have to do for next week. My goal is to do a little each day. The skin on my hands, especially my thumbs  is so dry that it’s cracking. Yuck! (I don’t know why I told you that…I’m just typing on my iPad and all I see is my dry thumbs!) Time for some moisture gloves for bed. I’m really stretching trying to find something to write about. I’m just so tired tonight that I feel kind of like my brain is on that mode on your computer when it’s not “shut down”, more like it’s sleeping or something. That’s how I feel. I’m only partially here, the rest of me is on sleep-mode. I’ve started reading the book by Cameron Diaz called, “The Body Book.” And I’m pleasantly surprised. (Did I already write about this??) I don’t usually buy books written by actors/actresses. I have this bias in my head where I believe that stars just write books because they can. Even if all it contains is fluff! I’m not sure if that makes any sense, but I just get judgmental I guess. I think that it doesn’t really matter how well written the book is or is not, they will be able to get it published based on who they are, regardless of content. And, generally, I don’t read biographies much, they just don’t really interest me. The only reason I picked it up is because I was killing time at Shoppers he other day and I saw it in their book section. As soon as I picked it up, it felt right! Now, that probably doesn’t make sense to non-book-lovers, but just the texture and the way it felt was nice. I read the synopsis and it really appealed to me. So, I bought it! And, so far, I’m glad I did. I’m really enjoying it and love her tone as she talks about health and food and energy and life and information and loving your body and caring for your body. I have a bad relationship with my body. I don’t much like he current shape of my body, but what I mean is that I think I’m angry with my body for always being in pain…does that make any sense?? So, I’m hoping that this book will remind me to take care of my body and be kind to my body and my whole self. So, I’ll keep you posted, but so far I’m really enjoying this book! Hey! I found something to write about! Usually happens when I stop trying so hard – lol!! I’m off to bed now. It’s too late! I wanted to go to bed earlier! Oh well. Goodnight all!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Today I’m Feeling Sorry For Myself!

My damn face hurts!

It’s just not fair!

I feel like whining

And yanking out my hair.

Why me anyway?

What did I do wrong?

In one of my past lives

Was I Genghis Khan?

I just want to yell

And let it out! 

I want show people 

What this pain’s all about.

I’m tired of smiling

And saying, “I’m okay.”

I’m sick of pretending 

Each and every day.

It gets so wearing,

It tears me down.

Some days I feel

Like I’m going to drown.

It’s not okay!

So today I’m going to pout!

I’m going to sulk!

And I’m going to shout!!

(Deal with it…)

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Used My Brain Today!

Amidst the doing nothing feeling sick game that I’ve been playing the last week, something happened today that made me feel useful! It also lead to my writing down a lot of information. My cousin’s friend was just diagnosed with TN. She was wondering about my story/experience with TN. While writing her back I realized that I really do know a lot about TN. It felt good to be able to help someone. It reassures me that I am on the right track with, not only my blog, but the website that I am, slowly, getting together. It’s been hard to find any time! First my little man was sick for a week and then I followed along behind for over a week of the tummy bug too. All the caring for the sickos has left me scrambling to get anything done. My tummy is bothering me again (you know, I tried to eat like a normal person after nearly not eating for a week. So, shocker, I’m feeling sick again. But that’s fine. Receiving that request for information and being able to help someone has made me certain that I’m on the right track. I wish her all he best and hope that she felt like I was able to assist her. That’s important to me. It feels good to help others. Really really good!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!