Tag Archives: #yayme

Did Next To Nothing

Today was bla. I felt tired and down. 

No huge reason, just out of sorts.

Did nothing much, besides drive around town. 

Didn’t make creme brûlée or any fancy torts. 

For the most part I just sat on my rear…

Watched some television and read my book. 

But I did do my workout, just to be clear.

The second phase is harder than it looks! 

So at least I did one thing, that is good. 

I need to do more, but some days are just hard. 

I some times get lost in the coulds and shoulds. 

I need to be nicer to myself, I have my feelings to guard…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Clean Room

Feeling super tired. My good friend came over this morning and helped me go through my son’s room. It was so bad that you couldn’t even walk in it, literally. He sleeps with my hubby and I and his room has been used pretty much as a dumping site…super unfair to him, since he couldn’t get to a lot of his toys and stuff. Our whole house is bursting at ththe seams. We just have too much stuff for the size of our house. It’s not a big house to start with, the fact is that it’s bursting at the seams! All five of us fit, tightly, but there’s zero room to spare. I wish with all my heart that we could move into a bigger house, but we just can’t afford it. If I was still working…(just add that to my ever-growing pile of guilt). Anyway, if you know me, you know that I’m not now and never have been, a morning person. But today I got my butt out of bed when Jo got here (around 9:30, which is sleeping in for many people, not me though). His room now looks like the room of a five year old little boy. Yay!! When he got home from school he was so so excited and happy. It’s too bad Jo couldn’t stay to see his face. He was so happy. It turned into a very very long day. I’m going to head to bed. I’ll leave you with a couple photos. One of the back of Jo’s van (with all the goodwill and garbage, way too much for Beaumont’s stupid garbage service) and the last one is his room. All nice and clean!! Went from the most cluttered room in the house to the tidiest!!
   

soooo clean!!!
 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

When The Flame Ignites

What happens when the flame ignites?

It shoots it stabs like the blade of a knife!

Who gave this damn thing power and rights?

It hunts me down and takes over my life. 

Where did it come from, sneaking up on me?

Jab by jab, it wickedly strikes!

Why does this disease even have to be?

There is nothing more that I dislike!

When it’s gone it is such a shock!

I don’t know what to do, I just can’t relax…

When will it come back, I’m watching the clock.

It makes me feel like my sanity may crack…

JKC
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

I’m A Survivor 

It’s fire, it’s hot, it’s fast, it surprises 

Fire

Fire Heat

Fire Heat searing

Fire Hear Searing Unpredictable 

Fire Heat Searing Unpredictable Lightening 

It’s long, it teases, it burns, it ignites

Incinerating 

Incinerating shocking

Incinerating shocking jolts

Incinerating shocking jolts jarring

Incinerating shocking jolts jarring blazing

It’s heartless, it’s random, it’s hard, it’s maddening

Antagonizing 

Antagonizing heartless

Antagonizing heartless cruel

Antagonizing heartless cruel monopolizing 

Antagonizing heartless cruel monopolizing controlling 

I’m frustrated, I’m fighting, I’m surviving, I’m (still) living

Survivor

Survivor combatant

Survivor combatant warrior 

Survivor combatant warrior fierce

Survivor combatant warrior fierce determined

I’M STILL HERE AND I WON’T LET IT WIN:I’M A FIGHTER – I’M A SURVIVOR!!!!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Out Of Sorts

Today I feel sort-of out of sorts. Not really sure why. It’s just one of the bla days. The kind that feels like you’re going through the motions, but not much more. So, yes I still ate well and yes I still did my work-out. I just feel a bit off. I’m not feeling much like writing, this will likely end up being stupid short, but I don’t want it to turn into a poor me or whiny post. I have enough of them. I really don’t have anything to say, and , as they say, if I don’t have anything good to say…or is it something nice to say…I can’t even remember. So much for that quote – lol!! The play-by-play of my boring day wouldn’t be that great. So, I’m sticking to my guns here and hardly writing much today. For once when I say it’s going to be a short post, it really will. I need a good nights sleep. Time to recharge and, hopefully feel a bit more like myself tomorrow. Besides, for some strange reason my wrist really hurts and typing with my thumbs is just aggravating it!! Here’s to feeling better tomorrow 🍻. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

In Her Mother’s Eyes 

The sun shone through the crystal in the window,

Sending endless rainbows through-out the room.

Her face lit up momentarily, she was still down though.

Despite the spring sunshine, she felt overwhelmed by gloom.

Her chest ached with pain, the emotional sort of pain,

But the feeling was so intense it felt like physical pain as well!

She didn’t know what to do when the thoughts flooded her brain.

She kept it to herself, isolated and alone, feeling she had no-one to tell.

Day after day, in the same slump, she lived without hardly a word.

Those who knew her best couldn’t possibly understand, right?

She worried that if she told someone, they’d laugh and think she’s absurd!

She wondered about leaving this world, just a short walk into the light. 

She figured she wouldn’t be missed and it would stop all the worries. 

She was scared inside, yet she thought maybe she’d actually feel relieved. 

She wondered if her family knew, when around them she always hurries,

To get away from their concerned eyes, they’d surely stop her, she believed,

To ask if she was okay, or what was wrong, telling her she can tell them anything.

“Not this” she thought to herself, no-one would understand…

She didn’t even understand why herself, yet her life was hanging by a string!

She looked down at her wrists, wondering how much pressure it’d demand…

Her mom came in her room, she sat and scratched her baby-girls back.

She looked up once, filled with confusion, into her mother’s eyes,

She wondered, should I tell her or keep it inside, as my own burden to bear?

But she saw herself there, in her mother’s eyes and she hugs her mom and cries. 

Her mom holds her tight and almost begs her to open up and share.

She finally starts talking and they talk and cry all night!

Everything has a solution, you just have to figure it out.

Working together, they decide that she needs to fight!

They find someone for her to talk to, and they leave no room for doubt. 

So if you’re ever feeling hopeless and think that no-one’s there,

Take a look around you, from your family to your friends. 

Those who love you will support you and they truly do care

Just talk talk talk to someone, this isn’t when your life ends!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

TN Sucks‼️

Today I’m going to do a cop out…what do I mean?? Well, I am just going to post some TN pix that I found online today while looking for information to put on my website! Since I started this blog to write about my daily struggle with this stupid disease that I have to live with. I haven’t really put anything about TN on here in a while. So I figured I’d do so tonight! It’s not really a whole lot of information, more like some images that appealed to me. I have no idea how the whole online copyright stuff works, so, in advance, I thank those who posted these and do not take any credit for them. They are not “my” images. I’m sure that most of the people on here are my family and friends, who aren’t going to charge me with copyright infringement or anything. I just want to give credit to those who posted them!!

These ones have information:

   
 

Look at all the nerves that come out of the Trigeminal Nerve! No wonder it hurts everywhere!!!

   

This is what they did when I had the brain surgery called Microvascular Decompression (MVD). They put Teflon in mine, not sponge!
   
  
I like these ones:

   
   
Finally, these make me smiley:

   
 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

IM STILL HERE!!!

Ever hear of Patellofemoral Pain Syndrome?? No? Me neither, until today when my doctor told me that’s why my knee has been bugging me. It’s not that big of a deal or a huge injury or anything, but it still hurts! I just have to do a couple extra exercises and stretches everyday to help it. What is in a name…? The name makes it sound like a scary disease or something. However, I guess it makes sense, since they think that the strong and tight quadricep muscle in my upper thigh (Femur) is pulling my knee cap (Patella) up and to the side and the muscle on my inner thigh isn’t strong enough to pull back to keep my knee cap where it belongs. So, it results in…knee pain!! Yay me!! I can only imagine all of the extra pressure that all of my joints have to deal with – because of all e weight I’ve gained over the past few years…it sucks! This is yet another reason why I’m following the 21 a Day Fix food plan and am doing another 21 day challenge! To lose weight, to find my positivity (it’s been MIA for some time now), to learn how to love myself and feel good about myself, to get fit and healthy. I also love the community. There are so many people who are cheering you on as you go! It’s surrounding myself with like minded individuals, people who want to, not only be healthy, but to be happy in their own skin…I want to be happy in my own skin!!! I haven’t been in very great shape over the past few years, not just physically, but emotionally and psychologically and spiritually as well. I’m tired of that negative, complaining, nothing makes me happy person. I know that I have a shitty disease that I have to learn to live with (& I’m not talking about the stupid Patellofemoral thing)! But, the words there are important, I have to live with it! I need to choose to live my life‼️ It may not be the life I foresaw for myself, but I can (& need to) live my life. I still am in here, hiding under all of the fat and the face pain and all the crap hat goes along with it, but I’m still here!!!! This is my life and I’m going to live it, damn-it!!! I’m still here. The landscape may have changed, the career may be down the toilet, but there is still a lot for me to do…I’M STILL HERE ‼️‼️

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Bla Ditty Bla

The following is dragged out of an old notebook. It’s kind of garbage, but I’m just bla. So, either don’t bother or deal with it…lol
Tell me a story, Mommy, please!

Which story would you like my love?

The one with the fairies who hide in the flowers and live in the trees.

And then escape the monsters on the backs of doves?

Yes. That’s the one I love to hear you say!

Those mean monsters rumbled and grumbled and roared so loud!

Then the faires met by the big tree to figure out how to get away. 

And the sad little faires watched as their miniature homes fall in a mound. 

The monsters turn out to be big machines driven by people, right??

That’s right love, they’re tearing down the trees to build people houses. 

But the fairies and animals sneak away at night. 

Yes. They get away quickly and quietly as a mouse. 

But first they snuck into the machines to cut wires and poke holes

They did enough damage to slow things down

So the animals could escape, from the deer to the moles. 

And the fairies flew to a secret forest, which is why we never see them around. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Share Your Story…

Share your story, open up

You have seen and learned so very much

Share your story, let it out

Don’t hold on tightly, it takes a soft touch

Share your story, even the hard stuff 

Let others learn from your failings 

Share your story, release those negatives

Getting it out feels like deeply exhaling 

Share your story, to step out of your shell

Find ways to grow and move forward in life

Share your story, it takes courage 

Letting it out won’t cause any strife

Share your story, don’t forget the good 

Your leaps and bounds may set others soaring

Share your story, it feels good right

Expressing your true self will leave others adoring 

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”