Tag Archives: #yayme

Time For You!!

Do you ever wish there was more time in the day?

Time to work, time to rest and time to play.

When you hit the sheets how tired are you?

Did you have time to do all you wanted to do?

Or are you totally wiped, with things left undone?

Feeling overwhelmed with no time left for fun!

The world today is all about go go going,

With no time to stop to smell the flowers growing!

So we rush about, running here, running there;

Leaving things undone, but there’s no time to care. 

I’ll get to it tomorrow, I say in my head,

But the next day flies by and I flop into bed. 

I need to find a way for my priorities to change. 

To decide which things in my life I can rearrange. 

I have to drop some things and put myself first. 

If I don’t, the side you’ll see of me is the worst!

Can you find ways to make yourself number one?

Schedule some “me” time and some time for fun. 

The world doesn’t end if there’s still dishes to do.

So, just find a way to fit in some time for you!!

 JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Set The Intentions, If They’re Yours.

Another day when I’m starting to write too late at night! I don’t know what you have to accomplish before you can officially call yourself a “writer”, but I’ve heard that many writers are night-owls. I find myself clear at night (most of the time). For some reason I tend to do most of my writing at night. Well, I guess the only main reason that I write less during the day is because there’s always something that needs to get done. So, I end up running out of daylight. I end up staying up too late to do my writing. I need to set the intention to be finished writing each day by 11:00 or 10:00 or something…that’s not a very clear way of setting up an intention. I guess the other thing is allowing myself to write whenever I want to. I have this weird sense of right and wrong as defined by our society. Go to bed early wake up early…bla bla bla. So then I have this odd sense of guilt when I find myself writing and it’s getting late. Since I’m pretty much able to wake up when my body wants to, generally “too late” ( yet another belief that I’ve been taught). So I have this preconceived idea that if I’m writing too late into the night it’s not “okay”…interesting when you delve into your brain to think about your beliefs. He reasons me behind your actions. Are they really yours?? Do you own them, take pride in following them, or do you move along on auto-pilot doing, or trying to do, what you’ve learned over time, by your parents or society or whom-ever, to be the “right” way of doing things?? Hmmm…something to think about. I need to start living my life with intention… 

Post-workout pic: 

I will exercise 6 days per week!! (Intention set)
 
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

This Week Is Kicking My Ass!!

This week is kicking my ass!! The face pain has been brutal! I’m so sick of it. It’s extremely exhausting and I’m so done! I wish I knew why sometimes it’s so so bad. Like if there’s a trigger I’m missing. I don’t know, I just wish that this damn disease was a bit more predictable. I’ve joined a few Facebook groups for people with TN. I love skimming through and reading and responding to people’s posts. I had a nice talk with one woman today. This day to day pain is so so difficult to live with. Talking with people who are experiencing the same things, going through different dr’s, day after day of relentless stabbing pain and burning up. Guess what?? It’s not just me! This isn’t just my “normal” now, there are many others who live with this pain. People who truly understand! Yay!! Nerve pain is just so so over-the-top painful and it’s really hard to explain what it feels like to people who’ve never experienced it!! I feel guilty for saying this, but it isn’t the first time that I’ve said it and it likely won’t be the last. My hubby had shingles when our (now 18 year old) daughter was only 2. He felt that nerve pain. He’s said it was horrific and he’d never want to go through that again. But, lucky for me (him, not so much – lol), he did experience it, because he understands, he truly understands what nerve pain feels like. He says that he can remember that pain clearly and can’t even imagine living with that kind of pain forever, especially on your face! Here’s another way to explain it; think of an exposed nerve on your tooth (yes, the Trigeminal nerve has nerve endings in your mouth, teeth, tongue, lips etc etc…), the zap of pain you feel when the dentist accidentally touches the nerve with their tools and you jump a mile high because of how badly that hurts. So, now think of that kind of pain being all over your face, still including your mouth. And, it jabs into your face at any old time it feels like. Oh, right, don’t forget about the searing hot sensation that often accompanies it…good times baby, good times…Well, sorry, I’m off to bed. Sleeping helps me find peace. Zzzz…😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

A Day In The Life With TN

Someone’s forcing me to the ground,

With a branding iron on my face!

An ice-pick gets jabbed into my ear!

I wake up sweating on my pillow-case!

My face is burning up,

Don’t move, don’t yawn, don’t cry.

Did you know that crying hurts?

The tears make the pain multiply.

I can’t leave my house without a scarf!

Even a gentle breeze stabs like a knife,

It softly sends a razor down my cheek. 

Is this really how I live my life?

Please don’t kiss me goodbye.

A wave will do just fine!

If you hug me please be careful,

Not to touch this face of mine!

I’m sorry if I don’t want to do anything.

I just don’t feel very good

Hearing that must be getting annoying…

I would go out if I could!

I didn’t choose this for myself,

So why do I take all the blame?

When I do almost nothing at all,

It fills me up with shame.

To live day in and day out, 

In such horrific pain, 

Takes strength, courage and faith,

While feeling you may go insane!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

How?

How do you start to live again,

To move from depression to a life with meaning?

How do you continue moving forward,

When pain and negativity keep intervening?

How do you escape your thoughts,

When they try to pull you down and under?

How do you stay positive and motivated,

When your self-esteem is thrown asunder?

Put one foot in front of the other, 

And take baby-steps each day. 

One seemingly small step forward,

Can start you on your way!

Take time to stop and think about your path,

Where you came from and who you were.

What do you want that’s different?

What “you” would you prefer?

You can get healthier and stronger,

You can be proud of who you are. 

You’re on your way to greatness,

And, baby, you’re the star!!

You can choose the life you want,

Right here and, yes, right now!

What are you even waiting for?

Just ask me to show you how!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

My Damn Face

My damn face rises against me

Sending pain along my skin

The shocking pain is all I see

But I just won’t let it win

My damn face steals my sanity

Leaving me blubbering like a fool

With hardly a trace of my humanity

It tries its best to rule

My damn face stops me in my tracks

Randomly striking when it chooses

Without warning it attacks

It cruelly abuses

My damn face can’t even be touched

The softest breeze brings tears

And leaves my fists tightly clutched

Until the searing pain disappears

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Full Day!!

Feeling super-de-duper tired tonight! I had a long day, especially for me!

This will be maybe my shortest post yet, but I’m just done!! Done done!
Met Shaniice (my coach) at Starbucks (she’s super nervous fe and her kiddos are pretty darn adorable! Came home cleaned up a wlot nter’s worth of dog shit (from not 1, but 2 dogs!!) Then Tay and I did the first part of our workout, went too pick my little man from a friend’s house. Onc home again, we finished our workout. Then we got dressed a bit nicer and we went to my good friend’s house. Her daughter and our daughter are close friends. It was her daughter’s birthday party, we went to help out and to have our own visit. It was a lot to of fun and good to see them, as time goes by so so fast!!

But, I’m just exhausted and need to throw my butt in bed!! Until tomorrow…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Loose Tooth Boy

On our way home from mom and dad’s. Had a good meal, a nice visit and played the monopoly card game. I was a bit,annoyingly, resistant. I’ve never been a fan of monopoly. It just goes on and on and on and on and on… It can get ruthless and, yes it’s just a game, but I’m not one of the super-competitive types (unlike my hubby…& my kids). I’m going to come across as a bit dopey, but I’m not good at taking people’s money or cards or property…well, it’s not that I’m not good at it, but I feel guilty or “mean”. I don’t know. I guess I’m just a suck…

We got home and I started to feel super dizzy and nauseous. I’m not sure why. It’s not a nice feeling. I hope I fe l okay tomorrow, because I’m meeting my coach (Shaniice) tomorrow at 12:30 and in the evening we’re going to visit with some friends. Their oldest is one of our middle daughter’s close friends. It’s her birthday party tomorrow and we’re going to help out where it’s needed and then just hang out and visit. I’m looking forward to it. We always have a good time when we see them. So, I hope that this yucky feeling goes away. It’s funny how used to pain I am, but when other things, seemingly less severe hit me, I still feel just as yucky as anyone else would feel, if they were dizzy and nauseous. I sometimes feel like it’s so normal for me to be feeling bad, that when I feel like tonight, it’s like my family’s reactions is non-existent. How t that I need them to feel bad or sorry for me or anything.  Just a small recognition that something’s off, I’m not feeling well. Now when I feel like I do tonight and I say something about it I get nothing. Oh well. I guess I’ve used up all of my “I don’t feel well” complaints for the year, or more like, for a lifetime!! Oh well. I’m a survivor and, even if a little “aww, feel better” or even a”can I get you anything” would be nice, life’s not over without it. I just had a little gravol and I’m going to bed. Fingers crossed for feeling better tomorrow!!

One last thing. When we got home my little man bit into a cookie and his already wiggly tooth got even more loose. So loose that, not much later, he pulled it out. A little early, and only one tooth, but of cours my hubby and I both broke into “all I want for Christmas is my two front teeth…”

Here he is:

 

🎼All I want for Christmas is my 1 front tooth🎤
 
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Feel Like I’d Make A Good Coach!!

Just got off the phone from this weeks coaches team call. There’s so much going on with Beachbody right now. I’m still very green, but it’s neat to hear about all the things that will soon be available. Also it makes me want to try BOD, which is Beachbody on demand. There’s a new reality show coming a cooking show that teaches how to cook great things, while still using your containers and eating clean. All sorts of workouts that you can do. It’s pretty cool. Soon dvd’s are going to be a thing of the past. It’s all pretty neat. I’m hoping that I can run a challenge group with my coach in April. Even if I don’t have anyone to sign-up for one yet…hopefully soon I will. I love the whole idea of being a coach. To help people learn to take care of themselves, to eat well and exercise. There’s a lot of self-care and self-love and confidence and body image issues. It may not be exactly what I originally planned for a career, but it’s something. It’s doing something!! If I can help someone to see that they are deserving of love.  That I can be a part of someone’s journey to health and wellness, is something. It’s important and something I think I’d be good at. So, hopefully, I can move forward, myself, continue eating well and exercising. Just to start living and functioning as a normal(ish) person. If I can do it, with all of the bs I have the pleasure of dealing with day to day, health-wise, then I can certainly help others. It’s not that far off from my helping career that I had in a past life, lol. I’m not a big sales type of person, but I’m absolutely a helping others type. That’s for sure. Doing this online, at home, according to my own schedule and when I feel up to it, just fits with where I am right now. It helps to give me a purpose again. So, if anyone is interested in the 21 day fix or BOD or joining a community of really incredible and kind people, just let me know!! Putting yourself first is important. If you don’t take care of yourself, you won’t be the best you that you can be. If you feel good and confident with yourself, if you take time to care for yourself, you will be ready to take care of others, especially those you love. (How cheesy does this all sound…??)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Waiting…

I’m sitting in my van while my daughter’s in dance.

I may just have a nap, while I still have a chance!

I brought things to do, but don’t feel up to it.

My meds made me sleepy so I just may rest a bit. 

Sorry that’s repetitive, it’s just what’s on my mind. 

If I stop writing soon, you’d likely think I’m kind. 

It’d give you a little break from my random rhyming. 

It’s probably getting annoying, you’d rather I start miming!

I don’t know if that’s a word, my phone didn’t underline it. 

I just can’t get comfortable, no matter how I sit. 

I was going to do some Beachbody training. 

Listening to how I should get started, instead I’m here complaining!

I’m happy that my hubby’s coming home today. 

I really don’t like it at all when he’s away. 

I know he has to travel, it’s no longer brand new. 

That doesn’t mean I like it, and I’m never going to!!

I have to go to the bathroom, but there’s no where to go. 

I’m not sure if I’m allowed to go inside, I just don’t know!

I think I’m going to stop now, my damn face is bugging me!

I may write more later, I guess we’ll have to see. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”