Tag Archives: #meditech

Fall Deep

Here it is at midnight,

Way too late to be up.

Yet I still have to write,

With only dregs in my cup. 

I’m feeling stretched thin,

And too tired to move.

The words aren’t coming in,

But I have nothing to prove.

I don’t think this is clear,

Because I need to sleep.

I may just end this here

And close my eyes and fall deep…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

An Okay Day

Today was both a long and fast day. I feel like I just woke up and now it’s 11:30 and I should be in bed. But I also feel like it should be Wednesday, but it’s only Monday!! Weird! I’m exhausted and kind of nauseous still. And, it’s hardly news, but my face hurts tonight. It seems to be more of the “norm” for me, which is why it’s turned into a given. (Does that even make sense??) My first drawing class was tonight. I have the same instructor as last session and I was still one of the slowest in the class! I have homework that I have to do for next week. My goal is to do a little each day. The skin on my hands, especially my thumbs  is so dry that it’s cracking. Yuck! (I don’t know why I told you that…I’m just typing on my iPad and all I see is my dry thumbs!) Time for some moisture gloves for bed. I’m really stretching trying to find something to write about. I’m just so tired tonight that I feel kind of like my brain is on that mode on your computer when it’s not “shut down”, more like it’s sleeping or something. That’s how I feel. I’m only partially here, the rest of me is on sleep-mode. I’ve started reading the book by Cameron Diaz called, “The Body Book.” And I’m pleasantly surprised. (Did I already write about this??) I don’t usually buy books written by actors/actresses. I have this bias in my head where I believe that stars just write books because they can. Even if all it contains is fluff! I’m not sure if that makes any sense, but I just get judgmental I guess. I think that it doesn’t really matter how well written the book is or is not, they will be able to get it published based on who they are, regardless of content. And, generally, I don’t read biographies much, they just don’t really interest me. The only reason I picked it up is because I was killing time at Shoppers he other day and I saw it in their book section. As soon as I picked it up, it felt right! Now, that probably doesn’t make sense to non-book-lovers, but just the texture and the way it felt was nice. I read the synopsis and it really appealed to me. So, I bought it! And, so far, I’m glad I did. I’m really enjoying it and love her tone as she talks about health and food and energy and life and information and loving your body and caring for your body. I have a bad relationship with my body. I don’t much like he current shape of my body, but what I mean is that I think I’m angry with my body for always being in pain…does that make any sense?? So, I’m hoping that this book will remind me to take care of my body and be kind to my body and my whole self. So, I’ll keep you posted, but so far I’m really enjoying this book! Hey! I found something to write about! Usually happens when I stop trying so hard – lol!! I’m off to bed now. It’s too late! I wanted to go to bed earlier! Oh well. Goodnight all!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Today I’m Feeling Sorry For Myself!

My damn face hurts!

It’s just not fair!

I feel like whining

And yanking out my hair.

Why me anyway?

What did I do wrong?

In one of my past lives

Was I Genghis Khan?

I just want to yell

And let it out! 

I want show people 

What this pain’s all about.

I’m tired of smiling

And saying, “I’m okay.”

I’m sick of pretending 

Each and every day.

It gets so wearing,

It tears me down.

Some days I feel

Like I’m going to drown.

It’s not okay!

So today I’m going to pout!

I’m going to sulk!

And I’m going to shout!!

(Deal with it…)

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Used My Brain Today!

Amidst the doing nothing feeling sick game that I’ve been playing the last week, something happened today that made me feel useful! It also lead to my writing down a lot of information. My cousin’s friend was just diagnosed with TN. She was wondering about my story/experience with TN. While writing her back I realized that I really do know a lot about TN. It felt good to be able to help someone. It reassures me that I am on the right track with, not only my blog, but the website that I am, slowly, getting together. It’s been hard to find any time! First my little man was sick for a week and then I followed along behind for over a week of the tummy bug too. All the caring for the sickos has left me scrambling to get anything done. My tummy is bothering me again (you know, I tried to eat like a normal person after nearly not eating for a week. So, shocker, I’m feeling sick again. But that’s fine. Receiving that request for information and being able to help someone has made me certain that I’m on the right track. I wish her all he best and hope that she felt like I was able to assist her. That’s important to me. It feels good to help others. Really really good!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

So Frustrated…

Today was not any better than yesterday. The majority of my day was spent in bed. Very very uneventful for me. My hubby came home yesterday, so today the kids and him took all of the Christmas stuff down😥. With my son being sick for so long and then me getting sick and staying sick, I didn’t have time to get to the Christmas stuff. I could barely do basic day to day stuff, so the extra chores were all left undone. I feel guilty all the time. My hubby works his butt off, then comes home to a house filled with things that need to get completed. He does it and he usually gets the kids to help, regardless of how badly they don’t want to do it. There is usually a fight, but in the end they get stuff done. So, the Christmas stuff is put away and the basement has stuff all been changed and moved around. I think with cleaning, well more like with organizing chaos comes before the calm. When you’re going through stuff, piles are bound to happen. My problem is having enough time to finish what I start. So, often, I’m left with the chaos without ever reaching the calm – lol!! I am so frustrated by the way I’m feeling. The first night I got sick was last Friday and here I am, a week later, still super nauseous and with a cold sweat and crampy tummy and and and – there always seems to be something to add on to the list.  I want to write a positive post, not just a whiney post about how crappy I feel. That’s no fun for anyone; the writer or the readers. So, on that note, I’m going to stop now. My face just won’t give me a break and I’m going back to bed. 💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

🌝Bad Day🌞

Bad bad day…cramping, sick tummy (still!!) and a top of the scale pain day. So, this may be the shortest post in he history of my posts (I’m not even sure if that makes sense?!)  I’m shocked that my stomach is so bad still! Today it was, well is, so so sore and so nauseous. Every movement makes me feel like I’m going to be sick. The pain in my face is damn unbearable right now! Sorry this is such a bitchy post. I’m just not in a good place right now. I just have to go lie down. So maybe I’m right about this being the shortest post ever for me…is there some kind of prize I get?? No? Oh well. I’m off to bed then.

🌜🌜Night all🌛🌛

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Unexpectedly It Strikes

It ambushes your senses 

And whips them awake

It’ll kick you around

Make no mistake

It jams up your life 

And strikes down your day

It can gain control 

And take your power away

Unexpectedly it strikes

And it never plays fair

It brings you to your knees

Pain takes you anywhere

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

This Is Getting Old…

This has gotten old really quickly (although it doesn’t feel all that quick, I feel like I’ve been aching for days and days, not just 4 days!!)…I’m so done with this flu-bug. I want to stop feeling the bla and blech and ugh that my body is feeling. My face is bad today too, so it’s kind-of like a combo meal: I’ll take one facial nerve pain, one nauseous stomach and add some stomach cramping for $6.98 please!! I keep counting the days in my head that my son was sick for, to tell myself that the end is near. My girls haven’t gotten this bug yet (knock on wood). That is super strange, because we always seem to pass the bug through each of us. Usually, if anyone sneaks by without getting sick, it’s my husband. However, he’s away again, but when I talked to him on the phone today, he wasn’t feeling well, he had a headache and his stomach was hurting. He’s supposed to stay there until Friday, but if he ends up getting really sick maybe he’ll have to fly home early. I guess we’ll see how he is tomorrow. I’m hoping he doesn’t have it, because it’d be nice to get rid of the bug in our house! Then, maybe, the girls have a chance to slip past this one. I was going to say fingers crossed…again, but instead I’m going to keep sending them healing energy, love and prayers. 

I ordered a new phone case online, with a pretty fairy on it. It arrived today and I was super excited to see it, but they sent me the wrong size. Too frustrating! The first one I ordered, before x-mas was for my iPhone 5s, but we decided to give that phone to our daughter for an x-mas gift. So, yay, I got the new phone and that’s totally awesome (I just don’t get that beautiful case) 😥!! So now my younger daughter’s using that first case I ordered. Then,  again, I order a new case and, would you look at that; I have another one that is the wrong size (they told me to keep it or give it away!)!! So my oldest daughter gets one with a different picture of a beautiful fairy…So, yet again, I have to order a new one and pick another image to go on it, because they both, understandingly, don’t want to have matching phone cases with their mom. At least I don’t have to pay for it! And, I got this beautiful waterbottle, with a fairy on it! It came exactly as I ordered…Yay!!  

This is the image on my waterbottle:

  

I think it’s just beautiful!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Stinkin’ Flu Just Sucks!!

This has got to be the worst flu-bug ever. I hate being sick, especially the throwing-up, crampy tummy part! Yesterday I actually managed to write a poem as my post, while lying in bed. I’m pretty sure that tonight isn’t going to be much of anything, I’m definitely not on the right brainwave for a poem tonight. I’m too busy feeling yucky, my brain doesn’t want to handle much more. Also, talking about my day isn’t going to take up any space…because I can probably say it all in a couple of sentences: I was in bed all day, except for when I drove my son to kindergarten. I was feeling too sick to get up and moving again,  so Tay (my oldest kiddo) went with her friend to the schools to pick up her siblings for me. And, there you have it, two sentences! Oh wait, I did do something else, after sleeping for a couple hours, I watched The Peanuts movie with my youngest two (upstairs in my room, so I could lie down.) And…that’s about it. I think I covered all of the day’s highlights, nothing much more to add. Did I mention that there wasn’t much to write? I seem to be writing a lot on the topic of not writing a lot…huh. Makes me think of years ago when I wrote my English departmental final. The topic I wrote about was “how to choose a topic to write about.” (By the way, I did really well on that one!! English was my highest grade. That sure was a long long time ago!! It makes me feel old.) And, that’s all she wrote. Seriously, that’s all I’m going to write about tonight. Hopefully I start feeling better tomorrow. I hope it goes through me faster than my son. He first was sick on Monday and the last time he threw-up was Saturday night!! That’s a long time to feel sick. I hope that my girls and/or my hubby don’t get sick. My hubby’s out of town for most of the week, so he should, hopefully, be fine. I guess I just have to wait and see how the girls do. Crossing my fingers didn’t exactly help me, so I’m just hoping that they are able to stay healthy. Sending them some strong, healing energy and prayers!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Some Way Some How

Are you feeling down?

Are you feeling blue,

Like things aren’t working out for you?

Have you paid your dues?

Have you done your time,

Are you tired of the effort of the climb?

Are you giving up?

Are you unwilling to pray,

Is today the day you walk away?

After all your time.

After all you’ve done,

Are you sure that it’s time to quit this one?

I know it’s hard. 

I know it’s tough,

But a little bit more may just be enough!

Hard work will pay.

Your time is now,

Success will come, some way some how!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!