Tag Archives: #meditech

Shape Wear

To start off on a positive note, I’m definitely feeling better than yesterday. I’ve had a long day and am feeling knackered (Hee Hee – I just love that expression and I hear my friends voice in my head every time I hear or say it!!) I had to drive to St. Albert to see my pain doc today. Same-old same-old…fill this, increas that, decrease this, try that.  I do actually like him, it’s just that treating this damn disease gets exhausting. I just wish that there was a magic pill that is a cure-all…not more pain, no more bottles and bottles of pills, did I mention the no more pain part? That’s life in a dream land, it just doesn’t happen like that now does it?? After my appointment, I went to The Bay to buy a body shaper thing to wear under my dress this Thursday for my dad’s award. Those things are crazy expensive!! Holy moly!! But, with the amount of weight that I’ve gained, I needed to buy one. I’m just not comfortable in my own skin. I feel more like I’m inside this big, wobbly, lumpy body that doesn’t belong to me. It’s like I’m being smothered inside. Talk about being detached from my physical self. It’s like my body has become the enemy. It no longer works right, doesn’t look right, doesn’t feel right…it’s all just off. I hate that I feel that way. So disconnected and separate from my body. It’s so sad really. One of my goals for 2016 is to start doing yoga at least, bare minimum, two times a week, but I’d like to do more. It really appeals to me and it is so much about the mind-body connection through breath and mindfulness. I hope it can teach me how to start feeling “me” again. I don’t know if that makes any sense, but that’s my goal. I can’t keep feeling like this about myself. Also, the mindfulness/meditative part of yoga should help with the pain. But, where I’m at right now, today, is buying an eighty dollar shape-wear thing to wear under my dress, in an attempt to smooth some of the lumps and bumps and wiggly parts – lol! Who ever said breathing’s important?? I can just have it all sucked in for a night, right?! I was once told (& I completely disagree, I’m all about comfort!!) “sometimes you have to sacrifice comfort for fashion!” LOL 

Hmmm…didn’t mean to steer the conversation in that way. Oh well, the truth is what it is. And, the truth right now is, I need to wear this thing under my dress. And that’s that!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Here We Go Again 

Feeling really crappy today. My hubby says I have the flu. I have body aches & shakes & my temperature is high. Well it’s 38.8 or 102. Accept I’m freezing again. But I’m not believing I have the flu. I just had that damn tummy bug a couple weeks ago. How can I be feeling like this so soon? It doesn’t make any sense. I think I’m going to lie down while my little dude is at kindergarten. I’m so damn hot & sweaty…gross! I wonder if I can find the energy to have a shower? It’s like my body has lost the ability to regulate my temperature. Strange. I’m supposed to be going to a friend’s house tonight for an essential oils party thing. One of those MLM programs. Maybe if I have a shower and a rest I’ll be more up to snuff. This is it for now. I’m going to sleep or shower or both. I haven’t really decided which order yet. I really need and want a shower, however I don’t have the least bit of energy. Hmmm. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Joy, Love And Hugs!!

When’s the last time you were overflowing with joy?

Can you immediately recall without too much thought?

Or do you have to take pause to remember a time?

Do you make your own joy…don’t you think you ought??

When’s the last time you said the words, “I love you?”

Do you instantly know off the top of your head?

Can you list those you love without skipping a beat?

Would they know if their names were the ones you said?

When’s the last time you gave someone a hug?

Can you easily remember when the last time was?

These are things that you should do each and every day. 

If you don’t, I truly hope these words give you pause. 

JKC 

Too forced…again 😥

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Pain-Shmain 

Today will be short. I’m having a pain-filled day. My hubby had to run out to pick up his new suit. Next week my dad is winning a very prestigious award next week. It’s a formal dinner and awards ceremony. Apparently the tickets are crazy high per person. Fortunately, my dad’s company paid for tickets for all of us (adults, not the kids). My hubby has been wanting to buy a nice suit for work and then we were invited to go to my dad’s award ceremony, which was the perfect excuse to go out and buy a new suit. He will wear it a lot for work, since his promotion he’s been to a few meetings with the big-wigs, and he’s wished that he had a good suit. So, now he does! ($900.00 later!! Am I outdated or is that a lot of money?!) He should be home soon.  Hopefully it doesn’t take him too long, because it’s raining!!!! So so strange. Edmonton in January and it’s pouring rain?? I came upstairs to lie down, since I’m not well tonight, and my little man, who my daughter was supposed to keep an eye on, followed me shortly afterward. I wonder if she has even noticed he’s not with her? Actually, he probably told her he was going up to cuddle with mommy, or something like that. Anyway, my point is, I’m feeling really awful and he wants me to do something with him on the ipad. He’s five, so he occasionally forgets that we can just talk, we don’t have to yell! And, apparently, something (on the iPad) was just “epic!!” I’m just not feeling well and I’m going to go to sleep the second my hubby comes home…night all!

Wow! Great timing!! My hubby just walked in th door!! Lol. Night all!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Clutter Mutters…

I’m super tired right now. I really need to write my posts earlier, especially on Monday’s when I have my art class. I’m just feeling bad. I don’t want to say it, but I feel like I’m catching a cold. If saying it makes it so, I’ll take it back – lol! My son has an awful cough and runny nose and now his ear is bugging him. Poor little man! He barely got over that nasty flu-bug and bam! he’s sick again. I think that the clutter and dust in our house doesn’t help. I have a mile long to-do list and I rarely reach the bottom or finish even half of it! There’s just so so much that needs to be done and I just can’t manage. It’s so so frustrating!! Especially when my inability to function 100% affects my kids health. It fills me with guilt. I need one of those tv declutter makeover things. Just come in, with a big group, and get it done!! I know that’s not about to happen and, to tell you the truth, I don’t want it to happen that way anyway. I’ve been reading the book called, “The Life-Changing Magic Of Tidying Up,  The Japanese Art Of Decluttering And Organizing”, by Marie Kondo. It’s really readable and clear. There’s something about it that appeals to me or speaks to me. I don’t really know how to put it. It also is realistic, in the amount of time it should take to declutter an entire house. Not like some of those, “one weekend and your house is completely clutter-free and organized!!!” Those people haven’t been in my house – lol!! There is no way that we can just clear out years of built-up “stuff” in a couple days. And, I don’t want to do it that fast (well, with my health that’s never going to happen, regardless!!) What I mean is, I need to actually go through things. My hubby seems to think that we can just get a dumpster and clear everything out. However, I know that’s super unrealistic and it wouldn’t feel good to do that. I need to go through things piece by piece, bag by bag, and get it done. Don’t get me wrong, I sometimes get thr urge to just toss everything out at random, but I know, deep down, that that would leave me feeling empty and upset. I am willing to get rid of a lot of things, I just need to be the one deciding what to do with my own stuff! So the goal is to finish reading the book and then go through my stuff following her directions. With a realistic understanding that it’s not going to be done overnight and, despite the criticism I feel I get regarding this issue, but with the intention of going through it all and ending with a home I can love. Just to repeat, in-case someone misheard me, ending with a home that I can love!! No apologies. I’ve run out of the energy to apologize about the way I live. I have to go one day at a time, and that’s the best I can do right now!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Fuzzy Brain Day

Do you roll out of bed, full of pep full of life?

Do you face the new day filled with hope, filled with awe?

Do you start each day filled with love and no strife?

Do you feel the warm tug of life energy’s draw?

Can you face each day feeling open and free?

Can you let negative energy roll right off without fretting?

Do you forgive those who feel threatened from the truth that you see?

Do you understand that they wish for even half the love you are getting?

Do you know you are blessed with a clear mind and heart?

Do you worry about those who choose to live with their hearts closed?

Do you see it’s their choice, as we were all the same at the start?

Do you send your love to everyone, including those who are opposed?

I feel fuzzy brained & I’m kind of just writing whatever. And…it sounds stupid and forced and it sucks. But, I’m posting what I have for now, because it’s late and I’m tired. Sorry for the bad writing tonight!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Sometimes…

Sometimes, it takes too much energy to remember to smile…

Sometimes, I get exhausted from trying so hard…

Sometimes, I forget to be kind to my self, for a while…

Sometimes, it’s too obvious that I’ve permanently been scarred…

Sometimes, I wake and actually feel like I’m in the land of the living…

Sometimes, my smile appears all on its own…

Sometimes, the good days surprise me, like God’s gift giving…

Sometimes, I’m reminded that I’m not all alone…

Sometimes, I wish I could stay in bed all day…

Sometimes, I pray for a miraculous cure…

Sometimes, the pain leaves me speechless, with not a word to say…

Sometimes, to open their eyes, I wish people could enter my brain for a tour…

Sometimes, I believe that things will improve…

Sometimes, I know I have a great deal to offer…

Sometimes,  I want to write, because I feel like I’ve got something to prove…

Sometimes, I know that one day I’ll be a published author…

Sometimes, I dream…

Sometimes, I pray…

Sometimes, I scream…

Sometimes, I really am okay!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!
 

Marching In The Same Parade

(Brackets contains drum sounds…)
(Dum dada dum dum)

Today was a day of excruciating pain

(Da dum dada)

Inside of course, not out on display

(Dum dum da)

I just hold it in and smile for show

(Dada dada da)

As sometimes it’s just seems easier that way

(Dum dum dum)

It’s surprising how simple it becomes

(Da Ta dum dum)

To pretend all is well and good

(Dum data dum)

I know that those who know me well

(Da da da da da)

Would do something to help if they could 

(Dum a dum a dum)

There’s no quick fix, no bandaid will do

(Dum dum da duuuum)

And I see them hurting, because of me,

(Do do do dum)

When they bear witness to my pain 

(Dum da da da dat)

So, I hide it away where they can’t see

(Da da da da da dada)

I’m not sure this helps anyone of us

(Dum tra la dum)

Playing parts in this strange charade 

(Dum Ta dum Ta)

But the game continues to be played

(Dum dum dum dum)

We just keep marching in the same parade. 

 (Dum dum dum da dum dum da)

And, hey, parades are fun right??!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Time

Time 

It controls the minutes, hours and days of  all life

It freezes our past like Midas himself

Time constrains, as you cry for more

Time extends, when you wish it would fly

Time cycles around, starting and ending each day

It tracks our years as we grow and learn and live

Time directs our lives 

And, even though time eventually will end for each of us, this end is usually unknown to us, privy to time alone

So, remember to cherish each moment, every hug and kiss, all our laughter and tears, through many ups and downs; time remains the ruler of our experiences of our very lives. 

Respect it, don’t fear it

Remember it, don’t waste it

Enjoy time; don’t allow time to steal you away for long, through sorrow or disease, loneliness or stress, or anger and bitterness

If time controls the moments, we must control our story, told through our experiences, our lives

We can control what we do with our time

Time is precious, so don’t ever take it for granted

Live your best life with the time you have…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Date Night!!

My hubby and I are on our way to Jubilations on our monthly “date”. I can’t remember if I wrote about this after Christmas or not. My hubby got me the best gift this year. He purchased a big calendar and had 12 envelopes, each with a different month written on the outside. Inside each monthly envelope was a gift card or tickets, all prepaid, for us to go on a “date” each month. This way we will go out, without the kids, at least once a month. It also ensured that we can’t use money, or the lack thereof, as an excuse to stay home. It was a very sweet and thoughtful gift, ensuring that we make time to be together, without the kids. That is assuming that the kids “let”us. In the past, when our kiddos argue/fight while we were out, they phone us or text us over and over. It is so frustrating! Damn cell phones make it too easy for them to get ahold of us. It keeps them from learning how to figure things out themselves.  It also is intrusive on the small amount of time Arizona and I have together. The time that is supposed to be our time. So, we’ll see how they do tonight.  Our date is at Jubilations. It is the final week of the current show. It is about Starwars and supposed to be quite funny. We are almost there, so I will let you know how it was afterwards. 

Almost home. The show was really funny. It was very entertaining, with some very talented actors. We really enjoyed it. It was nice to go out. At the end of the show, when I checked my phone, I had missed 15 texts!! My hubby had missed a couple calls and texts as well. Argh!!! Our kids are frustrating me! I’m not going to say anything else. They make mountains out of mole-hills, so I won’t do the same thing right now. We’re just going to go into the chaos now! Goodnight💤💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!