Tag Archives: #meditech

TN Sucks‼️

Today I’m going to do a cop out…what do I mean?? Well, I am just going to post some TN pix that I found online today while looking for information to put on my website! Since I started this blog to write about my daily struggle with this stupid disease that I have to live with. I haven’t really put anything about TN on here in a while. So I figured I’d do so tonight! It’s not really a whole lot of information, more like some images that appealed to me. I have no idea how the whole online copyright stuff works, so, in advance, I thank those who posted these and do not take any credit for them. They are not “my” images. I’m sure that most of the people on here are my family and friends, who aren’t going to charge me with copyright infringement or anything. I just want to give credit to those who posted them!!

These ones have information:

   
 

Look at all the nerves that come out of the Trigeminal Nerve! No wonder it hurts everywhere!!!

   

This is what they did when I had the brain surgery called Microvascular Decompression (MVD). They put Teflon in mine, not sponge!
   
  
I like these ones:

   
   
Finally, these make me smiley:

   
 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

IM STILL HERE!!!

Ever hear of Patellofemoral Pain Syndrome?? No? Me neither, until today when my doctor told me that’s why my knee has been bugging me. It’s not that big of a deal or a huge injury or anything, but it still hurts! I just have to do a couple extra exercises and stretches everyday to help it. What is in a name…? The name makes it sound like a scary disease or something. However, I guess it makes sense, since they think that the strong and tight quadricep muscle in my upper thigh (Femur) is pulling my knee cap (Patella) up and to the side and the muscle on my inner thigh isn’t strong enough to pull back to keep my knee cap where it belongs. So, it results in…knee pain!! Yay me!! I can only imagine all of the extra pressure that all of my joints have to deal with – because of all e weight I’ve gained over the past few years…it sucks! This is yet another reason why I’m following the 21 a Day Fix food plan and am doing another 21 day challenge! To lose weight, to find my positivity (it’s been MIA for some time now), to learn how to love myself and feel good about myself, to get fit and healthy. I also love the community. There are so many people who are cheering you on as you go! It’s surrounding myself with like minded individuals, people who want to, not only be healthy, but to be happy in their own skin…I want to be happy in my own skin!!! I haven’t been in very great shape over the past few years, not just physically, but emotionally and psychologically and spiritually as well. I’m tired of that negative, complaining, nothing makes me happy person. I know that I have a shitty disease that I have to learn to live with (& I’m not talking about the stupid Patellofemoral thing)! But, the words there are important, I have to live with it! I need to choose to live my life‼️ It may not be the life I foresaw for myself, but I can (& need to) live my life. I still am in here, hiding under all of the fat and the face pain and all the crap hat goes along with it, but I’m still here!!!! This is my life and I’m going to live it, damn-it!!! I’m still here. The landscape may have changed, the career may be down the toilet, but there is still a lot for me to do…I’M STILL HERE ‼️‼️

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Bla Ditty Bla

The following is dragged out of an old notebook. It’s kind of garbage, but I’m just bla. So, either don’t bother or deal with it…lol
Tell me a story, Mommy, please!

Which story would you like my love?

The one with the fairies who hide in the flowers and live in the trees.

And then escape the monsters on the backs of doves?

Yes. That’s the one I love to hear you say!

Those mean monsters rumbled and grumbled and roared so loud!

Then the faires met by the big tree to figure out how to get away. 

And the sad little faires watched as their miniature homes fall in a mound. 

The monsters turn out to be big machines driven by people, right??

That’s right love, they’re tearing down the trees to build people houses. 

But the fairies and animals sneak away at night. 

Yes. They get away quickly and quietly as a mouse. 

But first they snuck into the machines to cut wires and poke holes

They did enough damage to slow things down

So the animals could escape, from the deer to the moles. 

And the fairies flew to a secret forest, which is why we never see them around. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Share Your Story…

Share your story, open up

You have seen and learned so very much

Share your story, let it out

Don’t hold on tightly, it takes a soft touch

Share your story, even the hard stuff 

Let others learn from your failings 

Share your story, release those negatives

Getting it out feels like deeply exhaling 

Share your story, to step out of your shell

Find ways to grow and move forward in life

Share your story, it takes courage 

Letting it out won’t cause any strife

Share your story, don’t forget the good 

Your leaps and bounds may set others soaring

Share your story, it feels good right

Expressing your true self will leave others adoring 

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Too Wiped

I hope that no-one has their hopes up for inspiration, or anything…I am so tired!!! We just got home and we both wanted to leave a whole lot earlier. We thought we were giving a couple (who my hubby works with) a ride home. Turns out, nope, they’re going to someone’s house. It’s not like they’re horrible people or anything, they’re actually quite nice, I like them. It probably just slipped their minds. I’m just tired is all. I need to sleep. Zzzz

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Never Again Will They Trust Blindly

Share your joy, your love, yourself

Openly and freely

Show your care, your trust, your faith

Even if they push back steely 

They’ve been hurt, been wronged, been wounded

Harshly and cruelly 

They’ve lost their cares, their trust, their faith

Their resistance seems unruly

Share your honesty, your hope, your heart

Patiently and kindly

Gently break down their walls, their resistance, and their fears

For never again will they trust blindly

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

I Won!! 

I feel fuzzy brained right now. My sinuses are feeling like they’re about to burst! And, sorry for the grossness in advance, but I feel the goop dripping down into the back of my throat…yup, warned you for a reason. And, to top it all off, I feel my throat getting scratchy. It’s strange because I felt it coming on. This afternoon I felt fine, but then around supper my throat started to feel a bit sore. Then my sinuses started, the grossness and my ears feel plugged up. And now I feel like poop (as opposed to a worse word that I could have used there…) It was just weird as it slowly developed throughout the day. It came on in super slow motion, but now I just feel sick. Yuck! 

Tonight I got a message from one of the girls who ran the 21 day fix hat I’ve been doing and she told me that I won the challenge!! Yay!! I ended up with the most points. We got points for drinking enough water, following the diet without “cheating” and for being active (doing my Tai Chen every day with my daughter!!). Then there were extra points you could earn daily for participating in the group activities. There was usually a daily task and a nightly check-in (all on Facebook). Then at the end of the 21 days, they added up all of the points and, yay!!!!, I won!! So I’m getting a new workout kit called Hammer and Chisel. So, once the 90 day Tai Chen program is finished, I’ll have a new 60 day program to do! The Tai Chen should get me in better shape, so that I’m ready to take on the harder program. Keep in mind that this is the company who came out with the Insanity series…so, not easy stuff. Hammer and Chisel is pretty intense, but the timing should work out well. Once I’m done th Hammer and Chisel it will be right around the date of the Mud Run that I’m planning on signing up to do with some of the ladies who’ve been a part of the challenge I just did. Food wise, I’m doing the 21 day fix, again, as part of another challenge group. The thing I like about all of this is the community. I’ve met so many people doing this and they’re all nice and super supportive, of everyone. You’d think that there’d be a lot of competing, for customers and challenge participants, etc. However, it’s not the case. More than one coach run the groups and the coaches participate in the challenges as well. In any challenge then there are people who may have different coaches, but it doesn’t matter. The way they support each other and cheer each other on is addictive. It makes you feel like you’re a part of something important. It’s just a lot of fun, which, of course, makes sticking to it so so much easier. I also like that they share recipes and ideas and teach about clean eating.  It’s not just a “diet” that you do, you lose weight, you stop, you gain it back. These guys teach about meal prep about nutrition and so much more. Wow! I kind of sound like an infomercial – lol! I’ve just been enjoying this a lot. The next challenge starts Monday…who’s joining me??? 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

He Thinks Of Her

Through rain in the winter, like tears carved from ice, head down, he walks and he thinks of her.

Through days clear and bright with dappled shadows from the trees, he stares at the shapes and he thinks of her. 

Through nights filled with anguish, with tears stabbing his heart, he struggles to wake up and he dreams of her. 

Through mountains tall and jagged forever demanding his attention, he drives round the bends and he thinks of her.  

Throughout his days, his tortured soul,  bombards his heart and mind with thoughts of her and he knows he’ll never stop, so he thinks of her. 

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Hello World 

Hello world, can I have another go?

Hello world, I won’t accept a “no”. 

Hello life, where do I even start?

Hello life, I won’t let you fall apart. 

Hello day, you’re not the only one!

Hello day, and I’ve only just begun. 

Hello moon, you seem to come so fast!

Hello moon, time never seems to last. 

Hello God, am I on the right track yet?

Hello God, I’m getting close, I bet!

Hello Sun, you offer a brand new day. 

Hello Sun, there’s always a different way!

Hello world…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Why???

Why

Why do 

Why do certain 

Why do certain words

Why do certain words work

Why do certain words work better 

Why do certain words work better poetically?

Maybe 

Maybe because

Maybe because they

Maybe because they sound

Maybe because they sound like

Maybe because they sound like they

Maybe because they sound like they just

Maybe because they sound like they just fit

Maybe because they sound like they just fit right 

Maybe because they sound like they just fit right in

Maybe because they sound like they just fit right in the

Maybe because they sound like they just fit right in the context

Maybe because they sound like they just fit right in the context, either

Maybe because they sound like they just fit right in the context, either emotionally

Maybe because they sound like they just fit right in the context, either emotionally or

Maybe because they sound like they just fit right in the context, either emotionally or even

Maybe because they sound like they just fit right in the context, either emotionally or even spiritually

Don’t ask me what I’m doing, either than wasting a lot of your and my time – lol! Sorry!!

Where

With war and hate

Is the love?

When 

With violence and abuse

Is the justic?

Why

With rage and rape

Isn’t justice enough?

How 

With pain and anger

Are there so many negative people?

Who

With despair and despondency 

Can the victims trust?

What

With thought and commitment 

Can fix this mess???

Sorry guys. I feel like I have this overflowing well of negativity spewing out tonight! Not really sure why. But, I am sure that I’m done for the night. My brain has nowhere positive to go.  

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”