Category Archives: Uncategorized

Time

Time 

It controls the minutes, hours and days of  all life

It freezes our past like Midas himself

Time constrains, as you cry for more

Time extends, when you wish it would fly

Time cycles around, starting and ending each day

It tracks our years as we grow and learn and live

Time directs our lives 

And, even though time eventually will end for each of us, this end is usually unknown to us, privy to time alone

So, remember to cherish each moment, every hug and kiss, all our laughter and tears, through many ups and downs; time remains the ruler of our experiences of our very lives. 

Respect it, don’t fear it

Remember it, don’t waste it

Enjoy time; don’t allow time to steal you away for long, through sorrow or disease, loneliness or stress, or anger and bitterness

If time controls the moments, we must control our story, told through our experiences, our lives

We can control what we do with our time

Time is precious, so don’t ever take it for granted

Live your best life with the time you have…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Date Night!!

My hubby and I are on our way to Jubilations on our monthly “date”. I can’t remember if I wrote about this after Christmas or not. My hubby got me the best gift this year. He purchased a big calendar and had 12 envelopes, each with a different month written on the outside. Inside each monthly envelope was a gift card or tickets, all prepaid, for us to go on a “date” each month. This way we will go out, without the kids, at least once a month. It also ensured that we can’t use money, or the lack thereof, as an excuse to stay home. It was a very sweet and thoughtful gift, ensuring that we make time to be together, without the kids. That is assuming that the kids “let”us. In the past, when our kiddos argue/fight while we were out, they phone us or text us over and over. It is so frustrating! Damn cell phones make it too easy for them to get ahold of us. It keeps them from learning how to figure things out themselves.  It also is intrusive on the small amount of time Arizona and I have together. The time that is supposed to be our time. So, we’ll see how they do tonight.  Our date is at Jubilations. It is the final week of the current show. It is about Starwars and supposed to be quite funny. We are almost there, so I will let you know how it was afterwards. 

Almost home. The show was really funny. It was very entertaining, with some very talented actors. We really enjoyed it. It was nice to go out. At the end of the show, when I checked my phone, I had missed 15 texts!! My hubby had missed a couple calls and texts as well. Argh!!! Our kids are frustrating me! I’m not going to say anything else. They make mountains out of mole-hills, so I won’t do the same thing right now. We’re just going to go into the chaos now! Goodnight💤💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Fall Deep

Here it is at midnight,

Way too late to be up.

Yet I still have to write,

With only dregs in my cup. 

I’m feeling stretched thin,

And too tired to move.

The words aren’t coming in,

But I have nothing to prove.

I don’t think this is clear,

Because I need to sleep.

I may just end this here

And close my eyes and fall deep…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

An Okay Day

Today was both a long and fast day. I feel like I just woke up and now it’s 11:30 and I should be in bed. But I also feel like it should be Wednesday, but it’s only Monday!! Weird! I’m exhausted and kind of nauseous still. And, it’s hardly news, but my face hurts tonight. It seems to be more of the “norm” for me, which is why it’s turned into a given. (Does that even make sense??) My first drawing class was tonight. I have the same instructor as last session and I was still one of the slowest in the class! I have homework that I have to do for next week. My goal is to do a little each day. The skin on my hands, especially my thumbs  is so dry that it’s cracking. Yuck! (I don’t know why I told you that…I’m just typing on my iPad and all I see is my dry thumbs!) Time for some moisture gloves for bed. I’m really stretching trying to find something to write about. I’m just so tired tonight that I feel kind of like my brain is on that mode on your computer when it’s not “shut down”, more like it’s sleeping or something. That’s how I feel. I’m only partially here, the rest of me is on sleep-mode. I’ve started reading the book by Cameron Diaz called, “The Body Book.” And I’m pleasantly surprised. (Did I already write about this??) I don’t usually buy books written by actors/actresses. I have this bias in my head where I believe that stars just write books because they can. Even if all it contains is fluff! I’m not sure if that makes any sense, but I just get judgmental I guess. I think that it doesn’t really matter how well written the book is or is not, they will be able to get it published based on who they are, regardless of content. And, generally, I don’t read biographies much, they just don’t really interest me. The only reason I picked it up is because I was killing time at Shoppers he other day and I saw it in their book section. As soon as I picked it up, it felt right! Now, that probably doesn’t make sense to non-book-lovers, but just the texture and the way it felt was nice. I read the synopsis and it really appealed to me. So, I bought it! And, so far, I’m glad I did. I’m really enjoying it and love her tone as she talks about health and food and energy and life and information and loving your body and caring for your body. I have a bad relationship with my body. I don’t much like he current shape of my body, but what I mean is that I think I’m angry with my body for always being in pain…does that make any sense?? So, I’m hoping that this book will remind me to take care of my body and be kind to my body and my whole self. So, I’ll keep you posted, but so far I’m really enjoying this book! Hey! I found something to write about! Usually happens when I stop trying so hard – lol!! I’m off to bed now. It’s too late! I wanted to go to bed earlier! Oh well. Goodnight all!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Today I’m Feeling Sorry For Myself!

My damn face hurts!

It’s just not fair!

I feel like whining

And yanking out my hair.

Why me anyway?

What did I do wrong?

In one of my past lives

Was I Genghis Khan?

I just want to yell

And let it out! 

I want show people 

What this pain’s all about.

I’m tired of smiling

And saying, “I’m okay.”

I’m sick of pretending 

Each and every day.

It gets so wearing,

It tears me down.

Some days I feel

Like I’m going to drown.

It’s not okay!

So today I’m going to pout!

I’m going to sulk!

And I’m going to shout!!

(Deal with it…)

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Used My Brain Today!

Amidst the doing nothing feeling sick game that I’ve been playing the last week, something happened today that made me feel useful! It also lead to my writing down a lot of information. My cousin’s friend was just diagnosed with TN. She was wondering about my story/experience with TN. While writing her back I realized that I really do know a lot about TN. It felt good to be able to help someone. It reassures me that I am on the right track with, not only my blog, but the website that I am, slowly, getting together. It’s been hard to find any time! First my little man was sick for a week and then I followed along behind for over a week of the tummy bug too. All the caring for the sickos has left me scrambling to get anything done. My tummy is bothering me again (you know, I tried to eat like a normal person after nearly not eating for a week. So, shocker, I’m feeling sick again. But that’s fine. Receiving that request for information and being able to help someone has made me certain that I’m on the right track. I wish her all he best and hope that she felt like I was able to assist her. That’s important to me. It feels good to help others. Really really good!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

So Frustrated…

Today was not any better than yesterday. The majority of my day was spent in bed. Very very uneventful for me. My hubby came home yesterday, so today the kids and him took all of the Christmas stuff down😥. With my son being sick for so long and then me getting sick and staying sick, I didn’t have time to get to the Christmas stuff. I could barely do basic day to day stuff, so the extra chores were all left undone. I feel guilty all the time. My hubby works his butt off, then comes home to a house filled with things that need to get completed. He does it and he usually gets the kids to help, regardless of how badly they don’t want to do it. There is usually a fight, but in the end they get stuff done. So, the Christmas stuff is put away and the basement has stuff all been changed and moved around. I think with cleaning, well more like with organizing chaos comes before the calm. When you’re going through stuff, piles are bound to happen. My problem is having enough time to finish what I start. So, often, I’m left with the chaos without ever reaching the calm – lol!! I am so frustrated by the way I’m feeling. The first night I got sick was last Friday and here I am, a week later, still super nauseous and with a cold sweat and crampy tummy and and and – there always seems to be something to add on to the list.  I want to write a positive post, not just a whiney post about how crappy I feel. That’s no fun for anyone; the writer or the readers. So, on that note, I’m going to stop now. My face just won’t give me a break and I’m going back to bed. 💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

🌝Bad Day🌞

Bad bad day…cramping, sick tummy (still!!) and a top of the scale pain day. So, this may be the shortest post in he history of my posts (I’m not even sure if that makes sense?!)  I’m shocked that my stomach is so bad still! Today it was, well is, so so sore and so nauseous. Every movement makes me feel like I’m going to be sick. The pain in my face is damn unbearable right now! Sorry this is such a bitchy post. I’m just not in a good place right now. I just have to go lie down. So maybe I’m right about this being the shortest post ever for me…is there some kind of prize I get?? No? Oh well. I’m off to bed then.

🌜🌜Night all🌛🌛

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Unexpectedly It Strikes

It ambushes your senses 

And whips them awake

It’ll kick you around

Make no mistake

It jams up your life 

And strikes down your day

It can gain control 

And take your power away

Unexpectedly it strikes

And it never plays fair

It brings you to your knees

Pain takes you anywhere

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

This Is Getting Old…

This has gotten old really quickly (although it doesn’t feel all that quick, I feel like I’ve been aching for days and days, not just 4 days!!)…I’m so done with this flu-bug. I want to stop feeling the bla and blech and ugh that my body is feeling. My face is bad today too, so it’s kind-of like a combo meal: I’ll take one facial nerve pain, one nauseous stomach and add some stomach cramping for $6.98 please!! I keep counting the days in my head that my son was sick for, to tell myself that the end is near. My girls haven’t gotten this bug yet (knock on wood). That is super strange, because we always seem to pass the bug through each of us. Usually, if anyone sneaks by without getting sick, it’s my husband. However, he’s away again, but when I talked to him on the phone today, he wasn’t feeling well, he had a headache and his stomach was hurting. He’s supposed to stay there until Friday, but if he ends up getting really sick maybe he’ll have to fly home early. I guess we’ll see how he is tomorrow. I’m hoping he doesn’t have it, because it’d be nice to get rid of the bug in our house! Then, maybe, the girls have a chance to slip past this one. I was going to say fingers crossed…again, but instead I’m going to keep sending them healing energy, love and prayers. 

I ordered a new phone case online, with a pretty fairy on it. It arrived today and I was super excited to see it, but they sent me the wrong size. Too frustrating! The first one I ordered, before x-mas was for my iPhone 5s, but we decided to give that phone to our daughter for an x-mas gift. So, yay, I got the new phone and that’s totally awesome (I just don’t get that beautiful case) 😥!! So now my younger daughter’s using that first case I ordered. Then,  again, I order a new case and, would you look at that; I have another one that is the wrong size (they told me to keep it or give it away!)!! So my oldest daughter gets one with a different picture of a beautiful fairy…So, yet again, I have to order a new one and pick another image to go on it, because they both, understandingly, don’t want to have matching phone cases with their mom. At least I don’t have to pay for it! And, I got this beautiful waterbottle, with a fairy on it! It came exactly as I ordered…Yay!!  

This is the image on my waterbottle:

  

I think it’s just beautiful!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!