Category Archives: Uncategorized

A Boring Post

It’s so so late,

I almost forgot,

To write something,

So, down I’ll jot!

Gee, I sound like Yoda!

Just for the cheesy rhyme,

Time, I don’t have a lot of.

In total Yoda style this time!

I’m so tired.

This will be short

I need more sleep.

But I had stuff to sort.

Now my puffer,

Is not working right!!

I better go fix it,

Ug! What a night!!

So I’ll say goodbye.

Sorry this is so bad.

I’ll do better tomorrow!

Hope you’re not too sad😢

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Flawed

Hiding behind the lie that is my face. 

Did I forget to nod and smile with social grace?

Why do I fucking care what people think?

The effort to be “normal” makes my heart sink. 

Don’t let them see the truth hiding within my skin. 

The vibrant pain that endures within. 

No cast nor rash nor marks that tell the truth. 

Want to scream, cry, moan and groan, but that’s uncouth. 

At least according to social acceptability it would be. 

Do I still truly care what they’d say about me?

The effort to “be okay” is exhausting and disheartening. 

With every phoney smile I feel my spirit slowly darkening. 

Can I ever pick up the pieces and reassemble myself?

Will I always be lost and alone without my health?

I’m sick to death of this never-ending facade. 

There must be something better, this way’s so flawed!

Must my silent suffering forever be?

Must I always care about who can truly see?

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Give Thanks

I am thankful for my hubby.

He’s always here for me!

Without him right beside me,

I don’t know where I’d be.

I’m so grateful for my children.

They bring me joy and love!

They make me smile and laugh.

For them, I thank God above.

I’m so blessed to have my family. 

Yes, we may get crazy and loud,

But, I’d be lost without them.

They make me so very proud!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Behind These Eyes 

Behind these eyes

I try to erase

The criticism and scrutiny

I see on each face

Behind these eyes 

I hide the truth

I smile, I nod

No need for a sleuth

Behind these eyes

I hide the pain

If it could bleed

Red tears would rain

Behind these eyes

I yearn to cry

To let it out

But they stay dry

Behind these eyes

Words cut deep 

But it won’t be known

I’ll never weep

Behind these eyes

I scream and yell

Yet all is quiet

My pain hides well

Behind these eyes

I pray for relief

A day, an hour 

However brief 

Behind these eyes

I see you clearly 

Your love and exasperation 

I love you dearly 

Behind these eyes…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Locked Inside

Locked inside, I can’t get out of this rebellion called my face

Clawing from the inside to escape this hellish embrace

This mocking normalcy on the outside hiding the hell within

There’s nothing to show the judgers the truth hiding behind my skin

The lightening strikes with no warning of the coming storm

Leaving me in sudden agony far from the appearance of the norm

Funny stares and looks while I fight away the tears

Trying not to expose the truth behind my quaking fears

If there was evidence of each fight, scream, scratch and tear 

Is this how my tormented and brutalized face would appear

Covered in rips and scratches, lines drawn upon lines 

Indicative of my daily struggle to survive these impervious binds

JKC

This photo of street art is what inspired the above poem…


To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Accountability Is Tricky 

She did not like

Where she was at

She felt so stuck

And that was that

She would not see

That she could alter

Her thoughts and actions

She would not falter

She did not want

To take the blame

Accountability is tricky

And hard to tame

She turned away

From her truth

She blamed the times

Back in her youth

She finds it hard

To look at herself

She won’t accept 

Her hand in her health 

She doesn’t think

That she can grow

She’s given up

She’s saying no

She doesn’t know

It’s not too late

There’s always time

To change your fate

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Another Day, Another (Kinda Crappy) Poem

Another day, another (kinda crappy) poem.📱

I told myself I’d try 👍🏼

To right a poem everyday,✍🏼

For a different way to get by.🕵🏼

Tonight it’s late.⏰

I’m super tired.😴

I’d rather talk normally,🤐

But I’d consider myself fired!😢

Yup! I’d fire myself,😱

Because I take my challenges seriously!🤔

I wanted to see if I could do it!🏆

I was acting really curiously. 😜

But if you know me well,👩🏼

I mean really well!👨‍👩‍👧‍👦

You’d know that I have 🤗

A stubborn streak, if truth tell.😕

So this isn’t great,👎🏼

Not even a bit,👅

But I met my expectations!👏🏼

It doesn’t mean I have to love it!💔

Not that all poems must rhyme,📝

Like this feeble one!🖊

But it’s better than nothing, 〰

And now it’s done!! (Yay!)🎈🎉🎊🎉🎊🎈

Goodnight🛌💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Highs And Lows, Ups And Downs

When something bad happens,

How do you respond?

Do you calmly assess things,

Or wind up needing bail bonds?

In life there are always 

Highs and lows, Ups and downs.

Your reaction when things are low

Can set you apart from the clowns!

“Freaking out” or “losing it”commonly describe

Those who overreact  

When they hear bad news –

They act half-cracked!!

Take time to practice 

Thinking things through.

Get good at knowing

What you should do.

Then in moments of high stress,

When things seem to implode. 

You’ll be more prepared

To keep yourself in a steady mode. 

Then people will look to you,

With admiration and respect. 

Instead of stepping back,

Thinking, “what the heck?!”

The moral of the story

Is find a way to self-regulate!

So that during intense times,

You won’t be fitted for a jacket that’s “straight!!” 

JKC

This was written feeling very nauseous, with a cramping up tummy and during cold sweats…that is why it is so… Well, I don’t know the word that I’m looking for, I just don’t particularly like today’s post. But I really need to lie down and sleep! 

 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

You Can Do It

Frightened of change?

Finding yourself stuck?

Unstable and unhappy,

With perhaps some bad luck?

Do new things fill you up,

With anxiety and fear.

Would you rather remain stagnant.  

For the reasons stated here:

It’s comfortable and safe.

It’s familiar and routine.

There are rarely any surprises,

“That’s just how it’s always been!”

Yes, change is hard,

But it won’t happen overnight. 

Small changes day to day,

Can begin to set things right!

Drink enough water everyday,

And track it for a week. 

What else do you want to change.

What other differences do you seek?

If you experience success,

Like with the water drinking,

You’ll see that you can do it,

And I hope it gets you thinking!

“What else can I do?”

What else could be changed?

Start looking at your diet,

What unhealthy foods could be exchanged?

Are there healthier options?

You don’t have to do it all!

A complete overhaul may not be needed, 

It’s possible to start small. 

Some do prefer to do it all at once,

But I think gradual works too. 

It depends on the person,

And what they want to do. 

Just know that YOU CAN DO IT! 

And it doesn’t have to be scarey!

You can even take it slowly,

There’s no need to be wary!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

You Are Divine!

Why does it take an occasion,

Like a funeral or a wedding, 

To bring us together?

How does time slip away so quickly? 

“We’ll get together sooner next time,”we say,

But we don’t. 

Why does life need to be so busy and go go go?

Will we one day slow down and wonder,

“How did we get so old?”

When will we realize that the only time we have

Is NOW?

Will it be too late?

How do we start to change our perspective,

And our priorities,

To live a life with purpose?

Can we make the things that matter, 

Our families and friends,

Come first?

Do you live your life with intention,

Seeking meaningful moments,

That inspire?

Can you make small, deliberate, changes

To your day to day interactions,

To live your life by design?

Be willful and consistent with your words,

Your actions,

And your life!

You can be the change that you seek. 

You are powerful.

You are divine. 

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”