Category Archives: Uncategorized

A Night With The Creeps

Sorry for the poor editing yesterday. I was pretty tired and out of it while writing. I told myself that I’m going to write a poem everyday for the rest of the year. And, since I already tackled writing daily, I thought making it a poem daily would be an added challenge. So, some days they just flow and others, not so much. But, hopefully, out of every 10 bad ones, there’s a good one. Then, by the end of the year I’ll have a good size collection of good poems. That’s the idea behind it anyway. So, I guess I’ll try to write one now. Some days I just can’t get the ol’juices flowing as easily, so bear with me!(did I use the wrong form of the word, “bear”??? I used to know those things easily, back in my university days!!)

Running in fear,

Sweating and shaking!

Unsure if she’s safe,

Feels like the earth is quaking!

Questioning why,

She has such bad luck!

Just another thing,

To add to the muck!

She hears a sound,

And sucks in her breath!

What’s after her?

She’s scared to death!

And then there’s silence,

In a suffocating way.

It’s too quiet!

Will this be the day?

Did she tell him

She loves him so?

Did she hug her kids,

And let them know?

Out of the quiet,

Someone calls her name.

Does she answer,

Or is this a sick game?

Suddenly a light,

As bright as day!

And her name again.

Does she move or stay?

“Hon” she hears

“Wake up, you’re dreaming!”

She lets out a sob,

“I heard you screaming!”

She opens her eyes, 

To see his caring face.

She grips him tight,

Sweating like she just won a race!

“Are you okay now,”he asks,

Concern in his eyes. 

“I think so,” she answers

“But did the kids hear my cries?”

He shakes his head, no.

“Thank goodness,”she sighs.

She snuggles into his chest,

She’s still afraid to close her eyes.

She feels the rise and fall

Of his chest as he sleeps.

Another long night for her,

For she still has the creeps…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Her Sad Smile

She’s getting ready for her big day.

You only graduate once,

Is what she hears everyone say. 

Yet, her heart isn’t in it,

She doesn’t feel like smiling.

It just doesn’t quite fit.

She knew it’d feel impossible does she want to do this – never,

Because, it’s always looming during big events!

It will be so, always and forever!

She should have been there,

To pick out the dress, to find perfect shoes,

When getting her nails done, as well as her hair.  

A girl wants and needs her Mommy around,

And when she’s not, it feels wrong! 

Like something is off, there’s no steady ground. 

She steps into her shoes and wobbles a bit. 

Mom would have laughed and steadied her. 

She would have asked,”did you practice it?”

These are the times she needs her most!

These are the days her absence fills the room…

These are the moments she would have made a toast…

About her clumsiness and laughed and laughed…

But she’s not here to hold her up or make her laugh. 

Sudden vertigo makes her almost fall- no mom there as a safety raft. 

She pulls Herself together and enters the room. 

Her dad looks nostalgic, he sees her in me…again. 

“I’m sorry dad”she says loud as a boom.

He says,”Baby you’re beautiful and she would be proud.”

But she doesn’t feel comfortable,

Just awkward and loud. 

She feels a slight breeze, “Mommy” she says. 

It flows all around her then is gone. 

She truly believes, she has her ways. 

“I miss you Mommy, oh so much”

The breeze caresses her cheek and disappears. 

“Thanks for coming Mom, I love you too!”

“Who are you talking to” her dad asks.

“Oh, just myself. Dad? I love you!”

They leave together, younger sister trips in her shoes.

“I felt her today” she stands back and whispers to her sister.  

There dad waves, “Coming!!” She smiles at her little sis,”yes, I know me too!”

She steps out the door, with dignity and grace. 

Ready to do this. Feeling much better.

Her dad doesn’t know why it’s there, but he loves the smile on her face!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Simply Innocent 

Surrounded by her fears,

She holds herself back. 

Accepting her current place,

As the end of the track.

Turning away from opportunity,

She blindly moves about.

Unaware of the burning potential,

That’s just waiting to sprout!

Simple innocence keeps her stagnant. 

Naively she ignores the thoughts,

That try to show her there’s more,

Much much more, to life than naught. 

She needs a benevolent mentor,

To take her and gently guide her,

To experience life’s many wonders,

And fill where the empty places were!

How changed would she be,

If she found the courage, 

To allow her guide to show her,

Things that’d help her flourish! 

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

A Good Day

A good day

Wow! That’s new!

Who knew what it feels like,

It’s not something I’m used to!

I just had a headache,

Ah! No big deal!!

Nothing to worry about! 

Nothing to conceal!

How strange it feels,

To receive a kiss on the cheek!

I flinched and cringed

And waited all meek…

But it didn’t come 

On my cheek and my ear.

I’m shocked it didn’t hurt

Or even make me tear!

So I brushed my teeth,

And only felt a twinge!

I stopped and waited

For the heat to singe…

But it didn’t come,

What a surprise!

Not a shock of pain!

Such joyful cries!!

So I scrubbed my face,

And wore a mud mask!

I feel fresh and clean!

I so enjoyed the task!

So here’s to today,

May my luck continue!

If not, I’m grateful for today,

I’ve no complaining to do!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Our Caregivers 

They mean well,

They do, it’s true!

But they don’t really get it,

Even when they think they do.

They touch you tenderly,

With compassion on their minds.

But it makes you flinch,

While they’re trying to be kind.

They do so much for you,

That it fills you with guilt!

But you just want to hide,

And cuddle up in your quilt!

You try to appreciate,

All of the kind intentions,

But inside the frustration builds,

And fills you with tension!

It’s just another thing,

You feel guilty about!

There are so many reasons,

You wish you could just shout!

You try to hold back the tears,

Until you’re on your own. 

Crying in front of them,

Makes them feel futile and alone. 

They love you so much,

They want to do all they can!

They want to fix things,

Especially if your caregivers a man.

Men tend to want, 

To physically fix it,

But this isn’t about,

Pieces that don’t fit!

Just take care of the kids,

The dogs and the rest!

I’m so grateful for all you do

You’re just the best!!

Thanks for your love,

Your patience, your thoughts!

If I had to do this alone,

I’d become a crackpot!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Time

Time blows by.

Forever running the race.

Leaves me in the dust,

With my hand upon my face.

Time drags forward,

Inch by agonizing inch.

Wishing this day would end. 

Every movement makes me flinch!

Time ticks along.

Moving to its own beat.

I’m waiting for this pain to end.

Ready to hit control, alt, delete! 

Time landed at bedtime,

Where I was waiting for hours today!

Hoping to end today’s pain,

By sleeping it away!

Time has practically stopped.

The night drags longer than before! 

Sleep and pain begin their battle,

But I don’t want another war!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Who Is She

Some days she flies!

Small as a fairy.

She flits all over, 

She’s so busy, very!

Some days she shrinks,

Low and flat like inchworms. 

She slumps along,

Her lowered head confirms.

Some days she soars!

High as an eagle.

So full of pride,

She appears regal!

Some days she roars!

Mad as a lion. 

People stay clear,

Or they’ll be crying!

Some days she sings!

Clear as a bell.

Full of joy and at peace.

This is when she’s well.

Most days we’re guessing,

Who will she be?

It’s up in the air.

We wait and see…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

We’re Different

Lightening strikes unexpected. 

Electrifying my face!

Must react and do something, 

Before I’m a blubbering nutcase!

What works for her

And what works for him

Probably won’t work for me

The chances are slim

Everyone is so different 

Unique individuals though 

Not lumped into one category, 

“They’re the same from head to toe”

Yes, we have the same illness

But we all have different pain

Different coping skills

Different ways to deal with the strain

Different things that get us through

From mantras to crafting to writing 

From sobbing to gaming to laughing

From depressed to happy and exciting

To a whole wack of other beautiful

And incredibly courageous things 

that get us through…

The pain that TN Brings

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

The Hidden Truth

Plunging into a land unknown,

Where her alter-ego slept.

Waking the monster was a mistake. 

She didn’t know what it kept!

Memories of the poignant times, 

Filled with pain and regret.

Suppressed for very good reason. 

Sealed with a wish to forget!

Tumbling out from her vault,

Came all the detritus long lost.

Throwing her into chaos and pain,

She hadn’t realized the cost!

Wading through the images,

As they assaulted her brain.

Making her gasp for her breath,

She was stunned by the pain!

Scrambling to forget again,

Trying desperately to clear her mind.

She’d rather keep it all hidden away,

Than face it and leave it behind!

Stuck back in her phoney existence, 

Pretending all is well.

Denying the truth behind her eyes,

A truth she can barely quell…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Are You Hiding Today??

Are you hiding today?

Or are you free?

Can you come in the open?

Am I able to see?

Are you hiding today?

Or are you in a trance?

One too many meds,

Inside you, per chance?

Are you hiding today?

Or are you in the dark?

Squeezing your eyes shut,

Your expression so stark?

Are you hiding today?

Or are you playing dead?

Under eye circles,

The darkest of red.

Are you hiding today?

Or are you sleeping at last?

Hopefully the pain,

Won’t break through too fast.

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”