Category Archives: Uncategorized

Dr Day!

Today felt busy for some reason. I’m not sure why. I did have a doctor’s appointment early this afternoon, but other than that I had nothing else that absolutely had to get done. By the time we got home it was already almost supper time! Then I played twister with the kids and after supper we went on a “Pokemon Go”walk. This is pretty crazy! It’s probably one of the only times that they were the ones who wanted to go! There were no eye rolls or sighs – it wasn’t even my idea!! So weird! It’s pretty slow walking through. When everyone has their phone out and are mainly focused on the phone, not where or how fast their walking. Still, I almost reached 10,000 steps by the end of the day!  

I guess I need to call my pharmacy back tomorrow. I just got 3 months worth of refills for my prescriptions from my doc. However, when I was taking the bottles out to get ready for bed I noticed each bottle only has 10 pills in it and they all say “no refills” on them. What a pain! Now I need to figure out who messed up, either the pharmacy or my doc. I made sure I’d have enough for when I’m away next week (yay ‼️yay‼️ yay‼️). I don’t want to be in another country running out of meds…that’d sure suck! I can’t bring my medicinal marijuana with me, because, even though I have a prescription for it here, it isn’t allowed and I could get in big trouble. This makes me really nervous because I use it every night before bed, it helps me fall asleep tremendously!! Really!! It’s like night and day difference in ability to fall asleep!! I also often use the lower THC ones during the day for pain! Well, I can’t be doing that down there!! I’m hoping that I feel okay and that I am somehow able to sleep! Jocelyn,another Beachbody coach from Edmonton that I know, said that you basically go from 6-8am until 11:00 at night (or even later…). So, I’m hoping it makes me tired enough to fall asleep at night. Also, it worries me a bit, because if I really overdo it, I end up with bad pain. And, as we just covered, my main pain killer won’t even be there with me. I just have to make sure that I take a nap or rest if I need it. I have to listen to and respect what my body can and can’t do. And right now it’s telling me, or rather, screaming at me to go to bed!! So…I’m off‼️

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Pokemon What???

Well, my kids and I just got started with the new, big craze…dare to guess?? It’s all that people are talking about (according to my kids anyway and I have heard a lot about it over the radio, as well!) POKEMON GO‼️ Talk about a big, or rather, a huge comeback! Yes you can still watch the shows on Netflix (I have a six year old son…and a hubby who’s a bit of a “gamer”!) and some people still buy the cards to play the game. However, this brand new and innovative game has put Pokemon back on the map…literally!!! You don’t need to be a big time gamer to see that. Yes, people are looking for Pokemon while driving (stupid) or walking into traffic, jumping fences into strangers back yards and wandering into poles, trees, lakes and the street. But guys, I’m no “gamer” myself and this generally isn’t a blog that reviews products or apps.  But, this game is fun!! And what an original idea. Also, you have to get your butt off of the couch (I, myself, was lucky enough to witness my oldest push herself up and out of her “butt grooves” on the couch in order to go for a walk with her siblings…so, this game is truly miraculous in my eyes!! Every other tactic to move her has failed, but this game got her moving and it did so right from the get go!!!!) And, you actually have to move!! You have no choice!! The app uses GPS, not a pedometer type tracker. So you can’t shake your phone up and down in an attempt at fake walking…nope! It won’t work!! My kids caught an egg on mine. In order for said egg to hatch into a brand new baby Pokemon, I must walk, with the app open, for 2km!! Yep, this game will get people off of their arses!! The main gist of the game is that you are trying to hunt down and collect as many Pokemons as you can. You can also go to the gymnasiums to “fight” other people’s Pokemons. I’m assuming this is how you get money for the game. I’m not big into fighting, I’ll probably just be one of those crazy people who tries to collect as many Pokemons as possible!! Of course there’s ways to spend real money too, like getting the “pro” app, in app purchases, etc. etc. My kids want me to get as many Pokemons (is that even the plural of Pokemon, or does it just stay the same???) as I can when I’m in Nashville next week!!  I can’t believe it’s only one week away!! Holy cow! I’m getting super excited!! I’ve been told that Summit is tons of fun, but that it’s also exhausting, it’s just go go go from activity to activity. So, I’m not sure I’ll have much spare time to be Pokemon hunting, but you never know!! For tonight though, I’m done with Pokemon hunting, as well as writing. I’m beat!! Have a great night all!! 😴😴😴 And if you’re out hunting, it’s time to put the phone down and go to bed!!💤💤💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Venting And Excited!!

Why do I let things bother me so much. I’m over-sensitive it seems. (Which is why I bought the book that I did the other day, “The Life Changing Magic Of Not Giving A F🌟uck.”) I have what the camp-director said “We thought we’d make it more fair this year!”running through my head.  I still don’t quite understand how picking 2 of the girls to come back for the entire summer to be LITs, while letting the other kids try it for only one camp, is fair. I guess she just has a very different definition of “fair” than me. She also asked those two girls not to tell any of the other girls that they get to go back for all of the camps. I, personally, think that asking kids to lie or, at the very least, mislead their friends is wrong. Of course my daughter figured it out when they both came in all smiling and happy and then the leaders were with them sharing a group hug. She leaned over to her other friend and said, “I bet they get to come back for the whole summer!” And, of course, she was correct. They called my daughter and the other two “the three musketeers” all week. The one girl is my daughter’s best friend, from school, not just camp. As if they weren’t going to talk to each other about it!!  Give me a break! So now my daughter gets to be an LIT for a whole two nights…She’s being very accepting and mature about the whole thing. She’s excited to at least get a small chance to try LITing. But, if they truly cared about being fair, they probably could have given each kid two camps if the other two were part of the rotation and not given the privilege of going all summer. However,I’m not going to say anything. And, for the record, I’m certainly not in any way, shape or form trying to say those two girls aren’t capable or anything like that. They’re very sweet girls and I’m certain that they’ll do a fine job. I’m just not happy with the unfairness of the whole thing. It’s been bugging me and I wanted to vent about it. Hopefully no one who reads this will overreact or take it to heart. It is just one of those, get it off my chest by writing about it, things. I should probably be careful about what I say. I truly don’t intend to hurt or point anyone out. I just don’t like being told something is one thing, when it is actually something very different. I don’t want to upset my daughter (she’d likely be super mad at me if she knew I was writing about any of this) or anyone else. I just needed to vent and then I’ll release it and move forward from here. Most important to me is that my daughter is happy. They’re going to have a whole bunch of girls next year who will want more than one camp to LIT at, because they’ll then be “experienced”. I don’t know what they’re setting themselves up for…I guess we’ll just wait and see. I’m finding the whole thing utterly frustrating!! Sigh…okay. Moving on now!

I can’t believe that I leave for Nashville one week from tomorrow!! Crazy! I’m starting to get really excited!! It’s going to be a whole new experience! I’m not sure even sure what to expect with a conference/workshop thing of this size. There are supposed to be around 25,000 coaches attending. I know that the Saturday morning we shut down Broadway street in Nashville and have a mass group workout for ALL of the attendees! It’s going to be crazy! I wonder if it’ll be on the news. Or at least local, Nashville, news. I’m hoping that the workshops help a lot with the business aspect of Beachbody. I’ve gotten no-where with regards to building my coaching business. I’m supposed to be selling challenge packs and running accountability groups. But, so far I’ve done squat!! You’re supposed to build your network with like-minded people that you meet me n Facebook groups, etc. The problem is that most of the groups I’m on are with people who hav TN, like me. This is what they suggested I do, but some of these people are bed-ridden or practically so. They’re living in excruciating pain and just scraping by health-wise. So, it just feels wrong to try to sell them workout programs. When you can barely function or get out of bed, you can’t even imagine having the energy to workout. And, I know this from personal experience!! I’ve been in that dark, hopeless, all you know and see is pain, place. If someone had told me to try exercising I would have wanted to punch them in the face!! Even if I now know that exercise truly does help, most of these people aren’t there yet. I’m not going to push them either. If someone approaches me for more information then that’s different. But, no one is asking me, “what are you doing?” Supposedly, onc I’ve “friended” people, they will see my posts about my day-to-day life using Beachbody and it will pique their interests and then they will ask me. Yah – nope!! Not happening to me…AT ALL!!!  So, I probably should start visiting different groups, so all of my “friends” aren’t suffering from TN.  So, anyway, my point was that I really hope that there is a workshop on building your network. Some of the top coaches have like over 10,000 friends. I’m not even close to that!! I hi how maybe is part of the problem…hopefully they talk about it!!

I just saw the time. I gotta run or I’ll just keep rambling on forever!!!😴😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Garage-Saling Day

My hubby and I drove around garage-saling this afternoon. We didn’t really have a lot of money for us. I just enjoy garage sales and my hubby enjoys driving his new car with the top down. So, we both were happy. We actually found a little carry-on style suitcasethat will work perfectly for him when he goes out of town for just a night or two for work. We do have a small suitcase, but It’s a bit too big for using as a carry-on. He does get away with it a lot of he time, but the one we bought at the garage sale will just work better!! After garage-saling (okay, that’s not an actual word and it looks weird, but it’s the 3rd time I’ve written it, so I think you know what I’m trying to say) we popped by my good friends house and had a drink with them out on the patio. It was quite nice. The sky was blue, no rain (finally) it was hot out, but not too, I’m about to cook, hot. I haven’t seen them in a while. If I don’t make a point of going out and seeing people, I turn into a recluse. I can very easily curl up somewhere with a good book and be quite happy! I think that getting sick has made me learn to be okay being by myself, or just seeing my family, but rarely anyone else. 

I have to get my butt into bed a bit earlier than normally, I just feel beat for some reason. I think being out in rhe sunshine tired me out, if not, I can’t explain why I’m so so sleepy, I just know that I am! So goodnight for now😴😴😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

A Busy Day In The City!

I had a busy day today. We went to Southgate to get some essential oils for our diffusers. And, of course, you can’t (or at least I can’t) go to the mall without going to the book store!! I had like $20 and got some awesome deals!! Yay! So, I got a new zentangle art book, a book called,”The Happiness Equation” and a book called, “The Life-Changing Magic Of Not Giving A F🌟uck”. The last one looks hilarious and is, obviously a paradoy of the book called, “The Life-Changing Magic Of Tidying Up”. At least that’s what I think that’s what it’s called. I do own it and the sequel. This girl me just sounded really good and definitely entertaining!! Also, I certainly “Give A F🌟ck” about far too many things and take things personally and worry worry worry. This book is about how to do all of those things less, which will certainly help me. I just take everything to heart and too seriously. I’ll worry about somethings forever and then when I talk to the person about it or when whatever I was worrying about comes to pass, more often than not, it turns out being not a big deal at all. So I worried and fretted for nothing. I need to “chill”, as my kiddos put it! Anyway, it sounded like there is actually a lot of good advice in the book, while being filled with humour, which is something I really enjoy. The happiness book is pretty self-explanatory I’d think. It sound very interesting to me and it’s buy the same guy who wrote, “The Book Of Awesome”. Which I heard was good, as well, it was a “staff pick”, if that means anything to you. I also liked the texture of the cover and the paper (which only book nuts like myself will understand, which is the reason that I don’t use my kobo very often…I just like the whole experience of reading, the smell of the book, the way it feels, and just, well, everything that goes with it!) And from the bookstore we went to the Lego store, which made my little man very happy. He was super patient the whole time so I let him pick out something  that was under $30.00. He ended up with Stewart’s Lego. The set is from the scene where Hon Solo gets frozen in carbonate. The last place we went to was the pet store. I’ve had some difficulties with tiny, microscopic bugs in my tank. Not thing they’ve suggested has worked on them so far. So I ended up with a bottom feeder that they (the people at the pet stor) are hoping will eat the bugs. If not, it should at least clean up my tank. So that’d be nice!! Wow! I have to wake up in five hours. Yikes!! I’m outta here and off to bed!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Life In A Bubble and Fancy Car!!

I had another strange day. It was like everything was sort of, I don’t know how to explain it. Hmmm…it was almost like I was in a bubble or behind a pane of glass watching. It feels like I just got up and that I did nothing at all. Then, boom! It’s bedtime and the day is over. I did my PIYO, I searched online for “at home” jobs again, I watched Big Brother and So You Think You Can Dance with my daughter (our usual summer shows), but I felt disengaged, like an observer, not a participant in my own life. I know that probably doesn’t make any sense to anyone, but that’s just how today felt to me. My face was okay. I was kind of on edge, because I felt a couple “twinges”and I was so sure it was going to turn into a full blown attack, but, thankfully, it didn’t. Yay! Yay! Yay! I played UNO with my little man and I drew for a bit. Come to think of it, I actually did do a lot, yet it still felt weird for some reason that I, obviously, can’t really put my finger on. Strange…
My hubby has been really excited. He, or we I guess, just bought my dad’s 1991 Miata from him. My hubby is calling it his mid-life crisis car. He just loves it though. I’m not so sure that my dad really wanted to sell it at all, but they just bought a new vehicle and have a truck and a car and a motorcycle, so for just the two of them, it was way too many vehicles. So, if you know my dad, you’d know that he takes really good care of things. Therefore it’s in immaculate condition. My hubby does feel a bit guilty becaus he thinks my dad didn’t really want to sell it either. I think my dad knew that it was the logical thing to do and my dad runs on logic, not emotion. So, he is probably missing it, although I can’t ever see him admitting that. My hubby did tell him that anytime he wants to go for a spin to just pop by and go for it. Still, my dad probably won’t. He’ll just miss it without telling anyone that he does, even though we all know it anyway. That sounded awfully convoluted, but I’m sure you understand what I’m saying. I don’t think my momma really wanted my dad to sell it to us. She’s worried about if it breaks down or something’s wrong with it, will we blame them, etc., which is reasonable. However, we know it’s not a brand new car and that something may very well break down. Until then, my hubby is having a blast! I love seeing him happy. He’s so often stressing about things, it’s nice to see him enjoying himself. He’s taken all the kids for rides and is looking for all sorts of reasons to have to go out somewhere. It’s pretty funny actually. Funny, but good. 
I feel like I’m just rambling away. So much for having something specific to write about. I’ve been reading lots of blogs and find that so many of them are about special fix topics that they research and write about. I tend to use this more like a public journal. I just write whatever happens to be going through my, often muddled, brain. Especially muddled with some of my meds. Sigh… I think that I’m going to header for today. No specific topic for me…ramble ramble ramble!!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Work From Home???

I had a pretty quiet day. A long drawn out morning. It was strange. For some reason 3 hours passing felt like 6. I woke up early. Too early to get up ( in my world – lol), still super tired, but I couldn’t fall back asleep. I read a bunch of things on my phone. I’ve been reading up with n different ways to work from home. I’ve been feeling like, on my good days, I should be doing something to contribute to our income. There has to be something that I can do online. I have to talk to my friend about the mystery shopping thing she was telling me about. I just am so tired of feeling like I do nothing. Well, not just feeling that way I guess, because I do do nothing. At least nothing to help us financially. My hubby isn’t asking me to do anything, it’s just my feeling of self-worth I guess. I just want to contribute to our lives. It’s frustrating have no the education I do, the brain that I do and not to be using it ever. It’s more than just self-worth, it’s wanting to do something!!! Well, hmmm…I’ve heard about the whole survey taking for money and I’ve been doing that a bit. But, for the most part, it’s for some kind of point system and if you want to actually make any real amount of money, that’s not the way. I’m still, of course, doing the whole Beachbody thing, but to be honest, I’m not getting very far financially. I still love the program and think their products, shakeology and he workout packs, are exceptional. However, I’m having a difficult time finding challengers. I’m hoping that Summit training can help me a bit with that. I’ll see in a couple weeks (Nashville baby!!). Until then, I’m looking at other things, keeping my eyes open, etc. I’ve also been looking into product testing. Similar to some of the survey companies, some do both. However, again, I’m not sure if, other than getting some cool products, you probably can’t make too much off of it. So, hey, if anyone has any brainwaves, feel free to let me know in the comments. If hey work that is. They can get a little glitchy…I’m going to head to bed now since it’s 12:30 and I’m still tired from last night’s short nights. And, a tired Jenn means pain…yuck‼️

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

Normal Writing Time!!

So, on the sound advice from a very close friend, my poem streak ends today. That’s not to say that I’m never going to write any poems, but it just means that I’m going back to regular writing in addition to poem writing. I know that I said I want to see if I can write a peom every day, but I found that on some days it was difficult and, consequently, my poems ended up sounding forced. And…that really bothers me a great deal. I may not be writing a bazillion books or anything, but when I’m in the right mindset, I can write me a good poem!! 

So, speaking of poems, yesterday, July 10, 2016, my poem was officially published‼️‼️‼️. You can find it on the Pain News Network site. To support me, please check it out and add a short comment. It will increase the likelihood that I will get more of my writing published by them!! Thank you!!Thank you in advance!! To check it out, go to http://www.painnewsnetwork.org and look for where it says, A pain poem – Locked Inside. Or click on this direct link: http://goo.gl/QF5FOd. I’m pretty excited about it! I know it’s just a web site, but it’s still a very amazing feeling! It makes me want to do more!! Write write write!!  

We had to drive to camp Wohelo at Pigeon Lake to drop off my middle daughter at camp. Last year was a gong show (you can probably find an old post about it), so I have my fingers crossed that this year will be better. She really wants to be chosen as an LIT (leader in training). There’s no reason why she shouldn’t be chosen, but that’s what we thought last year. But, I can’t worry about it all week. I’ll just have to wait and see what happens. I can’t do anything about it, so that’s that. I have to release it to the universe. When I keep worrying it wreaks havoc on my body!! Too much stress is bad for pain…weird eh?! Actually, it’s pretty darn normal. 

Well, I’m off to bed, where I will NOT worry about my kiddo…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

I’ll Stick To Staying True 

I don’t think anyone really reads this.

I just write for myself, I guess.

The stats on hits and views is low.

It makes me sad and a little stressed.

Writing helps me feel like I’m doing something!

Even if it’s just for me, myself and I.

Still, it’d be nice to have more views,

Or followers standing by!

I know that I can be brutally honest,

About how I’m feeling on a given day!

I don’t sugar coat or lie at all,

I just write what’s happening that day!

The truth is TN is the worst of the worst!

Also, it’s true that depression goes hand in hand!

With severe, chronic pain, depression is normal,

It’s not something I can command!

So, yes my posts might make you cry.

They may even make you doubt.

But, sadly, it’s a reality for many people, 

So accurate information must get out!

So that’s what I decided to do,

Write about my life, day to day.

It’s my way of saying this is really my life,

Even though it’s hard to live this way!

I haven’t been given a choice,

About depression or my pain.

I must take it as it comes,

Then write about it again and again!

Yes, it’s hard to live with.

Yes, it’s the most painful disease of all!

So obviously my posts can be sad,and difficult to read; 

It’s not like I’m  having a ball!

We need to find compassion!

We need more research too!

So, I’ll continue writing, 

I’ll stick to staying true!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”

My Invisible Illness

I have an illness that you can not see

I look like you and you look like me 

You ask me for dinner

I plan to meet you

I wake up in pain

Now what do I do?

I have an illness that you can not see

I didn’t ask for this to happen to me

If I always cancel

Please don’t get mad

I want to see you

But the pain is so bad

I have an illness that you can not see

I pray each day that it will just let me be

I might look okay

Even act normally

But on my bad days

It’s alarming inside me

I have an illness that you can not see

Please understand and stop judging me

It may take four times

Perhaps even five

I’ll see you when I’m well

And feeling alive

I have an illness that you can not see

I wonder if I will ever be free

I may look normal

Without physical signs

But my pain is real

It’s the worst of its’ kind

I have an illness that you can not see

I look like you and you look like me

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”