This week is kicking my ass!! The face pain has been brutal! I’m so sick of it. It’s extremely exhausting and I’m so done! I wish I knew why sometimes it’s so so bad. Like if there’s a trigger I’m missing. I don’t know, I just wish that this damn disease was a bit more predictable. I’ve joined a few Facebook groups for people with TN. I love skimming through and reading and responding to people’s posts. I had a nice talk with one woman today. This day to day pain is so so difficult to live with. Talking with people who are experiencing the same things, going through different dr’s, day after day of relentless stabbing pain and burning up. Guess what?? It’s not just me! This isn’t just my “normal” now, there are many others who live with this pain. People who truly understand! Yay!! Nerve pain is just so so over-the-top painful and it’s really hard to explain what it feels like to people who’ve never experienced it!! I feel guilty for saying this, but it isn’t the first time that I’ve said it and it likely won’t be the last. My hubby had shingles when our (now 18 year old) daughter was only 2. He felt that nerve pain. He’s said it was horrific and he’d never want to go through that again. But, lucky for me (him, not so much – lol), he did experience it, because he understands, he truly understands what nerve pain feels like. He says that he can remember that pain clearly and can’t even imagine living with that kind of pain forever, especially on your face! Here’s another way to explain it; think of an exposed nerve on your tooth (yes, the Trigeminal nerve has nerve endings in your mouth, teeth, tongue, lips etc etc…), the zap of pain you feel when the dentist accidentally touches the nerve with their tools and you jump a mile high because of how badly that hurts. So, now think of that kind of pain being all over your face, still including your mouth. And, it jabs into your face at any old time it feels like. Oh, right, don’t forget about the searing hot sensation that often accompanies it…good times baby, good times…Well, sorry, I’m off to bed. Sleeping helps me find peace. Zzzz…😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

“Hopefully one day I’ll get it right, or at least have fun, while about it I write!!”