Tag Archives: #meditech

Iphone6S+ Ramblings…

Today was slooow…I don’t know why. I feel like it kind-of dragged out. I’m not really sure why. I didn’t do much, but I just felt like everything was moving in super slow-motion. Sort-of like this:

I hope that worked. We were fiddling around with my new phone last week and gave the slow motion setting on the camera a try. The things that you can do on smart phones these days is pretty amazing!! I’m really enjoying my newest iPhone (According to my hubby, it’s a 6S+. I have no clue what the S stands for, but I’m pretty sure the + is because of the size.) I went into the store feeling pretty sure that I wanted the 6+, even though I wasn’t 100% sure if I’d regret getting the bigger size.  However, now that I’m  a couple weeks in, I’ve decided that I love it! I already have crappy eyes. Even though I wear progressives, I find myself still looking under my glasses very often. I was constantly holding my phone right up to my face. Or taking my glasses off to see it, still held up to my face, or extremely zoomed in on whatever I was trying to read. The same went with writing. I find the 6 plus size just works for me. I was correct in thinking that the bigger one would be user friendly for me(my hubby still calls it my “tablet” though – lol). The other positive benefit for me is, along with bad eyes, I also have big hands. I like that the size fits them better, making it easier to text, write, Google, play games, etc…no more bumping thumbs!! 

Sometimes the direction that my writing takes is so random.  Often I know exactly what’s on my mind and what I need to say. However, most days I just write whatever decides to spew out of me! Today was about my phone…huh, strange! Nothing deep and/or meaningful today. Which is fine. Talking about normal things helps to make me feel a bit more like the average Jo…(excluding my mom and good friend Jo, you are both much much more than average!!! The phrase was clearly not based on you guys…Lol)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

My Poor Little Girl

What a bummy day

I’ve got nothing much to say. 

I took my daughter to get a filling

She could feel when they were drilling!!!😱

They had to give her more and more

It took 5 needles and none before 

I pray she doesn’t take after me

With my resistance to almost all the meds I see

With her sweet half-smile, we took her home 

With an ice pack and a Motrin, she lay down with a groan

Not much else to say, just good night

I’m off to bed, nothing else to write!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

If I Followed My Heart And Wrote Books. This Would Be The Beginning Of A Youth Girls…If I Had The Courage…

Do you ever sense you’re not alone. A glance over your shoulder reveals no-one or nothing is there. Goosebumps crawl along your arms, sending shivers up your back. You glance behind you again, still uneasy. Again, you’re seemingly alone.  I’m pretty sure many people have experienced something like that, but, for most it probably ends up being nothing…

Well not for me! Nope! This new creepy sixth sense is now my normal… (Ya, I know, not cool!) I try not to notice that things in my bedroom have been moved; not halfway across the room, just slightly. Even though I do, of course, notice. I used to wonder, “did I put that there…hmmm”. (Now I just act like I didn’t even notice.) But today’s different. It’s somehow something more. I can’t put my finger on it, I just know. My arm hair stands on end, I feel a chill run through my body. I try to trump the urge to get the hell out of there; to convince myself that I’m imagining things, it’s just my bedroom after all. The scariest thing to ever happen here was when my dad walked in on Jimmy and I kissing in ninth grade, yuck!!!  (Talk about fear!!) Now that really gives me the chills!!

Then suddenly, “ouch!!”something just pinched my arm! Shit! That hurt! Just then I swear I just saw movement out of the corner of my eye.  I whip my head around and nothing. I glance down at my arm, there are two very small punctures with tiny trickles of blood coming out. Before now,”just calm down already, it’s all in your head…”seemed to be my catch phrase.  However, that doesn’t  seem to cover getting pinched or bitten by something you can’t really see. I stood there for what felt like hours, but was probably only 5 minutes or so. (Well, you try standing still after “nothing” bites you!!) Do I go tell mom?? No, she’d think I’m losing my mind, maybe start the “therapy talk” all over again…no way am I doing that!!  I could call my dad, but what could he possibly do, from the “big down-under??”  “Oh honey. You’ve always been so creative with that big imagination of yours!!”

Nope! No help from them. So I guess, maybe, I’ll just grab a bandaid and go back to the “it’s all in my head” idea… pretty hard to convince myself now though!! “Huh…”

Then, my big idea, the Internet!!! I can Google invisible, stuff-flying around, just out of my line of sight, tiny biting creatures, or something along those lines. So, I opened my laptop, popped in ear-buds, cranked “One Direction” and fiddled around online with my ridiculous search…I also decided that I should try to look preoccupied and busy. I’d go for normal, act like nothing is wrong. After all, I’ve got to be the only 16 year old girl on the planet who believes that spirits or sprites or fairies or, well, something visits my house, mainly just my bedroom on a daily basis. Yep, I had to work on finding some sense of normal inside me… Good luck!!

I just wrote whatever words spewed out of me. So, no spellcheck, no proof-reading, no critical remarks…leave those here_____________!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Tree’s Up!!

We decorated our tree today:

  
 

Posed (& held) our dogs in awkward positions & took photos:

  

 Did the same to the kids and hubby:  

Couldn’t find my phone because it was being used for a selfie:

 

Had girls who were short on the serious side:

  

  

Said, “No! No! No!” and “Be careful!!” numerous times and probably sighed just as many!! We’re not the most traditional, we’re mainly silly I know…but that’s what I love about my family!!! I’m pretty lucky to have them!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Tea Party Day

My younger daughter and I went to our annual tea party today. One of her friends’mom has a Christmas tea party for the moms and girls every year. This year the girls made chocolates. There was a big selection of types of chocolate dark, white and red. She had all kinds of sprinkles, nuts, mint, etc. Also, she had different molds, sticks to make chocolate suckers, and chocolate bark. She is so great at entertaining. She has a beautiful home that they just had built. I can cook dinner and maybe some basic chocolate chip cookies. However, at this tea party, she had all sorts of Christmas baking and a rich chocolate truffle cake. My Christmas baking usually consists of making a prepared, boxed gingerbread house with my kids. And that’s about it!! We had a good time. It was nice to see the kids and their moms. The girls are all in grade 8 now. When they were going into grade 7 the town did a bunch of re-zoning and the girls (most of whom had been in school together since play school) were split up. So, it was nice to see all of the girls together again, as well as the moms that I rarely see anymore. I’m tired though. It doesn’t take much for me to get exhausted!! Just going out and visiting and I feel knackered (lol I still can’t get that expression to flow naturally!!) Soooooo tired. Night all!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Busy Busy Day 

My good friend Jo (otherwise referred to as Bubarossa – nicknames we’ve had for each other since junior high. Great Bubarossas think alike…) came over this morning to help me out with our cluttered house. This time we went through my hall closet. It has been stuffed full for a long time, mainly with my numerous jackets (many of which I forgot I even have!!) She’s really good at getting me to go through things and actually throw things out. Also, we took many jackets that don’t fit or aren’t worn anymore and took photos so that I can post them all and on the buy and sell to make some money off of them. Now we can actually use the closet like normal people do…

Too too tired for much more tonight. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

I Was Like The Brave Little Toaster Today!! But It Wasn’t Toast I Was Cooking…

Last night I kind-of chickened out! I felt nervous about “smoking” marijuana (I actually have a vaporizer, I don’t think I’d be able to or even want to, for that matter, smoke it!). I know that in medicinal marijuana the THC is much lower than the THC in marijuana found on the street; often two to three (or even more) times lower, but I still didn’t do it before bed. Also, I was so tired that I could hardly keep my eyes open anyway, so I didn’t really need it for sleep. I did find the courage to move past my old, ingrained belief that marijuana is bad and I tried it twice today. I did two “puffs” like my dr said to start with, but I  didn’t notice anything  significant on the 9:9 ratio. Once my little man is asleep, I will be trying the 18:1. 

Okay, as you know by now, my memory is shot!! So, please forgive me if I am repeating any information from yesterday!

Jenn’s Medicinal Marijuana 101:

In medicinal marijuana, the growers manipulate the chemical ratio between the Tetrahydrocannabinol (THC) and Cannabidiol (CBD). The THC action very specific known as cannabinoid receptors. These receptors are found throughout our bodies, in most tissues and organs, but there are numerous in the brain and nervous system. These receptors are involved in the regulation of many bodily functions including: brain and nervous system activity, heart rate and blood pressure, digestion, inflammation, immune system activity, PERCEPTION OF PAIN, reproduction, wake/sleep cycle, regulation of stress and emotional state and many other functions, which I don’t want to go on and on about here. If you want more information consult the “Information for Health Care Professionals: Cannabis (marijuana, marihuana) and the Cannabinoids”
The above information was taken from the “Health Canada Consumer Information on Cannabis (Marihuana, Marijuana)” pamphlet.

Some critics of medicinal marijuana say that the man made pills (there are actually quite a few if you search it.) that mirror the chemical content of the CBD  (Cesamet or Nabilone is the one I was on 5 or so weeks ago) or those that follow the same the same pathways as marijuana, etc. are all a patient needs. They don’t think that the THC or smoking are necessary or healthy and that those who do smoke medicinal marijuana are doing so because they just want to get “high”. Otherwise, why wouldn’t they just take one or more of the pharmaceuticals that are similar to the Cannabinoids? However, there is also new research coming out that is showing that there is something about the interaction between  THC and CBD that makes it more effective for pain treatment. My pain dr has been in his profession for over 25 years and, in his opinion, based on observations he has made through the years, the medicinal marijuana just works better for neuropathic pain. I absolutely trust him and, frankly, I just want the pain to STOP and if that means I’m “vaping”(as the cool people call it – lol!!) medicinal marijuana, then that’s just what I’ll do!! Whatever helps!!

Wow, isn’t this a long post!!! Please remember I AM NOT AN EXPERT!!! I’m just learning about these things myself. Much of what I’ve written today was either things I’ve read, information from the pamphlet I have, things I’ve heard, from my doctor, my husband (Hee Hee!!), etc. I am on the opposite side of the experts!!! And now, I’m off to get high! LOL!! Only joking!!! Sort-of…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Nervously Going Ahead 

I’m feeling a bit anxious today. I have tried so many different medications it’s getting a bit ridiculous. The pharmaceutical staff at the Rexall, where I get all of my prescriptions, recognize my voice (I think they all do now and there are quite a few of them!!) My pain doc’s receptionist also recognizes my voice. I can’t even remember half of the meds I’ve been on. I generally can recall the name, if I’m asked something like, “have you taken (fill in the blank here) in the past?” However, if I’m asked to recall a past medication off the top of my head or what medications I’ve been on, I will likely miss quite a few. I have a small notebook that I got intending to track what I have been on in the past, as well as what I’m currently taking and whether or not it helps, as well as any adverse side-effects.  The problem is that I always forget to use it. It’s just one more thing I should be doing that’s added to my mile long to-do list. I guess that if I really needed to know, because of a new doc or specialist or something, my pharmacy would print it off for me. I am good at listing the current meds that I’m taking, which is important, especially if there was some kind of emergency and I have a list in my “notes” on my phone. The new iPhone has a comes with an app appropriately called “Health”. I haven’t yet filled the forms out. I know that I should though. It is such a smart addition to the apple apps that are automatically on the new phones (they’re in the App Store if you don’t have on of the new phones.) I need to take the time to fill in my medical information, in case there was ever a reason that I couldn’t tell emergency medical people myself. I think that it’s a very smart addition to the phone. I just have to do it. 

I’m super tired right now. The reason I’m feeling nervous is that my medicinal marijuana arrived today. I haven’t tried it yet. It makes me nervous. I think it’s because of the ingrained beliefs that I was taught as a kiddo about marijuana. Interesting how those beliefs stop co with us. I have a great deal of new knowledge regarding medicinal marijuana. I’ve been reading a lot and I know it is better for me than many of my past and current meds. And I really believe that. However, I just feel a bit nervous about it. Yet, i am so so done with pain!! I’m at a point where I’d probably try anything!!! Also, I need something that I can use long term and Oxy-codone (to name only one of my many medication) is hard on your body. So, here goes nothing. I have to try the one my doc said to use at for sleep.  Until tomorrow…wish me & my vaporizer luck!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

I’m A Strange One…

Today felt busy…weird because it wasn’t all that busy, yet I felt like I kept running out of time. It’s probably partially due to the clutter in our house. Too much stuff! So, anytime you go to do something, it takes forever because there’s just no space!  Trust me, I’m not exaggerating at all. If you’ve been to my house then you know it’s true (🎤 girl you know it’s true -🎶 oo oo oo 🎶- I love you 🎵… any old fans of the famous lip-singers??) Don’t know where that little ditty came from. Sometimes I wonder what is really going on in my mind…there may be no space in my house, but the way I’ve felt the past few days, there’s definitely a bit of space up there, if you know what I mean – lol. So, why not throw an exercise bike into the mix!! I need to start moving, doctors orders!!! So does my hubby, maybe Santa will deliver it!!  Hmmmm…food for thought. What a strang post this is. I am just jumping all over the place. Probably because I’m so sleepy. It’s making me a bit goofy😜😋😛 I’m just done today. So so sleepy and silly. I’m off, for a new adventure with my pillow and maybe a good dream. Night all!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

To Party Or Not To Party – That Is The Question 

Arizona turned 40 in November, 

But look! We’re already in December!

What happened to the birthday party?

The cake, the drinks, his dark Bacardi?

We blinked our eyes and time just flew!

So now what in the world should we do??

Is it too late to do something for him?

I don’t know if a party would sink or swim…

Leaving everything up to me,

Made his birthday as boring as could be.

But there’s a chance it may not be too late. 

We’re trying to decide on a date. 

It’s something we will think about, 

We’ll let you know, no need to doubt!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!