Tag Archives: #medication

Tree’s Up!!

We decorated our tree today:

  
 

Posed (& held) our dogs in awkward positions & took photos:

  

 Did the same to the kids and hubby:  

Couldn’t find my phone because it was being used for a selfie:

 

Had girls who were short on the serious side:

  

  

Said, “No! No! No!” and “Be careful!!” numerous times and probably sighed just as many!! We’re not the most traditional, we’re mainly silly I know…but that’s what I love about my family!!! I’m pretty lucky to have them!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Tea Party Day

My younger daughter and I went to our annual tea party today. One of her friends’mom has a Christmas tea party for the moms and girls every year. This year the girls made chocolates. There was a big selection of types of chocolate dark, white and red. She had all kinds of sprinkles, nuts, mint, etc. Also, she had different molds, sticks to make chocolate suckers, and chocolate bark. She is so great at entertaining. She has a beautiful home that they just had built. I can cook dinner and maybe some basic chocolate chip cookies. However, at this tea party, she had all sorts of Christmas baking and a rich chocolate truffle cake. My Christmas baking usually consists of making a prepared, boxed gingerbread house with my kids. And that’s about it!! We had a good time. It was nice to see the kids and their moms. The girls are all in grade 8 now. When they were going into grade 7 the town did a bunch of re-zoning and the girls (most of whom had been in school together since play school) were split up. So, it was nice to see all of the girls together again, as well as the moms that I rarely see anymore. I’m tired though. It doesn’t take much for me to get exhausted!! Just going out and visiting and I feel knackered (lol I still can’t get that expression to flow naturally!!) Soooooo tired. Night all!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Busy Busy Day 

My good friend Jo (otherwise referred to as Bubarossa – nicknames we’ve had for each other since junior high. Great Bubarossas think alike…) came over this morning to help me out with our cluttered house. This time we went through my hall closet. It has been stuffed full for a long time, mainly with my numerous jackets (many of which I forgot I even have!!) She’s really good at getting me to go through things and actually throw things out. Also, we took many jackets that don’t fit or aren’t worn anymore and took photos so that I can post them all and on the buy and sell to make some money off of them. Now we can actually use the closet like normal people do…

Too too tired for much more tonight. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

I Was Like The Brave Little Toaster Today!! But It Wasn’t Toast I Was Cooking…

Last night I kind-of chickened out! I felt nervous about “smoking” marijuana (I actually have a vaporizer, I don’t think I’d be able to or even want to, for that matter, smoke it!). I know that in medicinal marijuana the THC is much lower than the THC in marijuana found on the street; often two to three (or even more) times lower, but I still didn’t do it before bed. Also, I was so tired that I could hardly keep my eyes open anyway, so I didn’t really need it for sleep. I did find the courage to move past my old, ingrained belief that marijuana is bad and I tried it twice today. I did two “puffs” like my dr said to start with, but I  didn’t notice anything  significant on the 9:9 ratio. Once my little man is asleep, I will be trying the 18:1. 

Okay, as you know by now, my memory is shot!! So, please forgive me if I am repeating any information from yesterday!

Jenn’s Medicinal Marijuana 101:

In medicinal marijuana, the growers manipulate the chemical ratio between the Tetrahydrocannabinol (THC) and Cannabidiol (CBD). The THC action very specific known as cannabinoid receptors. These receptors are found throughout our bodies, in most tissues and organs, but there are numerous in the brain and nervous system. These receptors are involved in the regulation of many bodily functions including: brain and nervous system activity, heart rate and blood pressure, digestion, inflammation, immune system activity, PERCEPTION OF PAIN, reproduction, wake/sleep cycle, regulation of stress and emotional state and many other functions, which I don’t want to go on and on about here. If you want more information consult the “Information for Health Care Professionals: Cannabis (marijuana, marihuana) and the Cannabinoids”
The above information was taken from the “Health Canada Consumer Information on Cannabis (Marihuana, Marijuana)” pamphlet.

Some critics of medicinal marijuana say that the man made pills (there are actually quite a few if you search it.) that mirror the chemical content of the CBD  (Cesamet or Nabilone is the one I was on 5 or so weeks ago) or those that follow the same the same pathways as marijuana, etc. are all a patient needs. They don’t think that the THC or smoking are necessary or healthy and that those who do smoke medicinal marijuana are doing so because they just want to get “high”. Otherwise, why wouldn’t they just take one or more of the pharmaceuticals that are similar to the Cannabinoids? However, there is also new research coming out that is showing that there is something about the interaction between  THC and CBD that makes it more effective for pain treatment. My pain dr has been in his profession for over 25 years and, in his opinion, based on observations he has made through the years, the medicinal marijuana just works better for neuropathic pain. I absolutely trust him and, frankly, I just want the pain to STOP and if that means I’m “vaping”(as the cool people call it – lol!!) medicinal marijuana, then that’s just what I’ll do!! Whatever helps!!

Wow, isn’t this a long post!!! Please remember I AM NOT AN EXPERT!!! I’m just learning about these things myself. Much of what I’ve written today was either things I’ve read, information from the pamphlet I have, things I’ve heard, from my doctor, my husband (Hee Hee!!), etc. I am on the opposite side of the experts!!! And now, I’m off to get high! LOL!! Only joking!!! Sort-of…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Nervously Going Ahead 

I’m feeling a bit anxious today. I have tried so many different medications it’s getting a bit ridiculous. The pharmaceutical staff at the Rexall, where I get all of my prescriptions, recognize my voice (I think they all do now and there are quite a few of them!!) My pain doc’s receptionist also recognizes my voice. I can’t even remember half of the meds I’ve been on. I generally can recall the name, if I’m asked something like, “have you taken (fill in the blank here) in the past?” However, if I’m asked to recall a past medication off the top of my head or what medications I’ve been on, I will likely miss quite a few. I have a small notebook that I got intending to track what I have been on in the past, as well as what I’m currently taking and whether or not it helps, as well as any adverse side-effects.  The problem is that I always forget to use it. It’s just one more thing I should be doing that’s added to my mile long to-do list. I guess that if I really needed to know, because of a new doc or specialist or something, my pharmacy would print it off for me. I am good at listing the current meds that I’m taking, which is important, especially if there was some kind of emergency and I have a list in my “notes” on my phone. The new iPhone has a comes with an app appropriately called “Health”. I haven’t yet filled the forms out. I know that I should though. It is such a smart addition to the apple apps that are automatically on the new phones (they’re in the App Store if you don’t have on of the new phones.) I need to take the time to fill in my medical information, in case there was ever a reason that I couldn’t tell emergency medical people myself. I think that it’s a very smart addition to the phone. I just have to do it. 

I’m super tired right now. The reason I’m feeling nervous is that my medicinal marijuana arrived today. I haven’t tried it yet. It makes me nervous. I think it’s because of the ingrained beliefs that I was taught as a kiddo about marijuana. Interesting how those beliefs stop co with us. I have a great deal of new knowledge regarding medicinal marijuana. I’ve been reading a lot and I know it is better for me than many of my past and current meds. And I really believe that. However, I just feel a bit nervous about it. Yet, i am so so done with pain!! I’m at a point where I’d probably try anything!!! Also, I need something that I can use long term and Oxy-codone (to name only one of my many medication) is hard on your body. So, here goes nothing. I have to try the one my doc said to use at for sleep.  Until tomorrow…wish me & my vaporizer luck!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

I’m A Strange One…

Today felt busy…weird because it wasn’t all that busy, yet I felt like I kept running out of time. It’s probably partially due to the clutter in our house. Too much stuff! So, anytime you go to do something, it takes forever because there’s just no space!  Trust me, I’m not exaggerating at all. If you’ve been to my house then you know it’s true (🎤 girl you know it’s true -🎶 oo oo oo 🎶- I love you 🎵… any old fans of the famous lip-singers??) Don’t know where that little ditty came from. Sometimes I wonder what is really going on in my mind…there may be no space in my house, but the way I’ve felt the past few days, there’s definitely a bit of space up there, if you know what I mean – lol. So, why not throw an exercise bike into the mix!! I need to start moving, doctors orders!!! So does my hubby, maybe Santa will deliver it!!  Hmmmm…food for thought. What a strang post this is. I am just jumping all over the place. Probably because I’m so sleepy. It’s making me a bit goofy😜😋😛 I’m just done today. So so sleepy and silly. I’m off, for a new adventure with my pillow and maybe a good dream. Night all!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”
Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

To Party Or Not To Party – That Is The Question 

Arizona turned 40 in November, 

But look! We’re already in December!

What happened to the birthday party?

The cake, the drinks, his dark Bacardi?

We blinked our eyes and time just flew!

So now what in the world should we do??

Is it too late to do something for him?

I don’t know if a party would sink or swim…

Leaving everything up to me,

Made his birthday as boring as could be.

But there’s a chance it may not be too late. 

We’re trying to decide on a date. 

It’s something we will think about, 

We’ll let you know, no need to doubt!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

A Long Day But A Good One 

I’m just beat or, as my good friend says, I’m knackered. We had a long long day. My daughter was dancing at the festival of trees. So we had to wake up much earlier than I’m used to (it didn’t help that I went to bed way too late last night. And, yes I know that was my fault. I have this bizarre disorder where, regardless of how much time I have, I am almost always late. I drive myself crazy! Well, actually, I drive my family, my hubby the most,mcrazy too! I lack time-management skills…but, back when I was working, I was rarely late. I know it’s disrespectful, especially for appointments. I really don’t do it intentionally!! I feel like I look at my watch and it feels like maybe 10 minutes have passed, but actually it’ll be 30 minutes later. Strangely, I have never been late when I have to get my daughter to a dance competition…weird.)

Well, did I ever get off topic – lol. My daughter’s new dance studio has an extra group that you can choose to sign your child up for. They call it the “Elite Team” and the cool thing is, they give the dancers extra opportunities to perform, prior to the competition season. This gives the dancers experience dancing in front of an audience, without worrying about the judging and everything else that goes with competing. It should help with their confidence, so they feel ready to perform when they are in competitions. She did really well and had lots of fun. Also, our son had a lot of fun at the festival of trees. They have so many activities for kids and he really enjoyed himself. You purchase tickets and then choose which activities you want to do, each worth a certain number of tickets (it all goes to the University Hospital Foundation). He decorated a gingerbread man, got a “festive tatto”, decorated a mini-tree (he was so excited that he got to keep it!!) they had a hockey net set up where you get 3 shots and get a prize, and he sent a letter to Santa. There were lots of things to do. It was really nice. Afterwards, our daughter had her regular dance class, so we went x-mas shopping while she danced. Then we had other running around to do. It was a good, fun day. I kept my face complaints to myself, but I’m done in and off to bed! 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

In A Galaxy Far Far Away Is My Brain …(Hopefully)

So I can barely function right now. Literally!! I am so so tired that my eyes are not staying open. I don’t think I will be able to write much at all. I keep falling asleep. I need to take advantage of it and actually go to bed!! Once I almost dropped the iPad. I had a really really busy day! It was just go go go all day, with hardly any breaks in between things, until past suppertime. I saw my pain doctor and he changed my medication again. Also, he upped the oxycodone so that, hopefully, it may help. He’s very very good! He is super nice, easy talk to, and he actually seems like he cares. Also, he doesn’t judge you, consequently I don’t feel like what I say to him is wrong or bad. As a result, I tend to feel more free talking to him about things and saying things that I might hesitate to say to other docs. Many doctors make you feel uncomfortable, like you’re seeking out pain medication just to get high. Dr Hauptman’s goal is to make me pain-free. Once we get there, I rejoice. Then, from that point, we can slowly back off some of the meds and see which ones help and which don’t. The first goal is to make me pain-free. And I have to admit I agree with him, pain-free sounds great to me! Also, starting next week, on Tuesday or Wednesday, I get my first shipment of medical marijuana to try. I’m super nervous because of the whole legal illegal debate thing…But, for now, I’m off to bed. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Eye Have Red Eyes…

Eye may have a new fun thing to deal with for a couple weeks. My eyes have been sore and bothering me. Both eyes have felt dry and almost gritty and, just irritated,especially the left eye. So, I went to the doctor today and she thinks that I might have something called Episcleritis. She’s not 100% sure. She told me to make sure I see an eye doc tomorrow. I’ve never heard of it, but the name was a bit scary! However, from what I’ve been reading, it’s actually pretty common and not severe or scary. If it progressed into Scleritis, it would be worse. So, since I’m super tired and, my eyes are both wanting to stop looking at an iPad and just close…I took some pictures and mine aren’t that bad at all (compared to the nasty eye problems that I’ll never be able to erase from my corneas on google images – I just shivered a little there!) As a was saying, I have copy and pasted an information sheet from http://www.eyecaretrust.org.uk.  
First, my lovely eye pictures 👀
This is my left eye👁, that is bothering me the most:

  
This is my right eye 👁 (forgive me for the blurry picture, I can’t seem to get a better one and I’m exhausted, so I stopped trying):

  

This is…you guessed it, both of my eyes 👀! (I’m so so proud of my smart readers!! Good guessing‼LOL):

 

This is a diagram 

that I found online:

  
And, finally, Here’s the information (who knows, I may go to the eye doc tomorrow and have them say, they’re just strained or something simple… Well, if so, I am now full of information about Episcleritis – lol)

  
  

Thank you, http://www.eyecaretrust.org.uk much much appreciated!!
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!