Tag Archives: #yoga for pain relief

I Hate The Word Hate…

Another day with a migraine!  It hasn’t stopped all bloody week! Ug!!! I’m so so f…ing wanting it to get the hell gone!! Sorry for the language. I’m just feeling at my wits-end. My face is worse today than it’s been in quite some time. I’m not sure why. I wish I knew why. I wish there was a way to know…when it would strike, how bad it would be, how long it’s going to stay…Well, I do know some triggers; the number of hours of sleep I get, how much stress I am dealing with, a cold wind or often my car’s air conditioning, a peck on the cheek, a touch, probably how bad other things are, like my migraines. The thing is that most often, it’s completely unpredictable. Sometimes none of these things lead to pain. So, it is hard to know, day to day, where I’ll be at. So, today, it’s bad. Really bad. And, if I haven’t mentioned this yet, I HATE IT!!! It’s funny, I hardly ever used to use that word, “hate”. I have had talks with my kids about that word. I talked to them about how harsh, absolute and cold it is. When I hear it, especially when it’s about another person. I can feel myself physically cringe. Yet here I am using it over and over again! Yes, it’s not directed at someone, but it is still the same word and carries the same meaning with it. All of the same connotations. Allowing it into my day to day vocabulary brings that negatively with it. I need to find a way to dig myself up and out of the pile of negativity that I’ve been drowning in. The negativity is easy to see, especially if you have read a few of my posts. The problem is that I’ve allowed it to seep into everything!  I feel like I’m infused with negative energy. As if I’m just marinated in negativity! I see it everywhere now. I get upset easier, I get frustrated, overwhelmed, angry, defensive… I am also getting less and less adept at hiding everything. I’ve always been very good at the whole “I’m okay”, “I’m fine”, with the smile on my face, type of person. But now, it’s getting harder and harder to hold it all together. The other thing is that I have stopped caring about things, stopped putting effort into things. I find myself dragging myself from point A to point B. I currently have no motivation. On days like today, I’m just done. Period. Hope my birthday brings a better day with it…I guess I’ll see tomorrow.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

MIA Post…

My Mother’s Day poem is gone!!!😔 this makes me super-d-duper sad. I was chatting with someone in the “support” department, but now I can’t find where that is. Clearly I’m a tech genius! I’m not sure what gave my prowess for I.T. away…I’ve been trying to keep that side of me a secret, but, alas, it’s been revealed to the world. Please don’t overwhelm me with texts, phone calls and/or emails asking for assistance with your various devices. I wouldn’t want to be used for my tech skills 😂! Meanwhile, I’m so tech savvy that I can’t find the chat thing where I was just talking to the guy about my post…I feel like this happened before and I found a way to restore it. The weird thing is that it’s just gone. I didn’t accidentally delete or anything. It’s just “poof” gone. I probably wouldn’t have even noticed if my mom hadn’t gone back to read it. She texted me asking why it wasn’t there anymore. Of course the post I lose is one of the ones I enjoyed, not just one like yesterday’s, when I’m feeling so bad that I just basically write three or four sentences and call it good. So now I should probably figure out where the support chat thing disappeared to! Hopefully I will be able to add more later!!

Well, the Mother’s Day post is still MIA😞. It makes me sad. Also, I don’t really understand how it can just be gone. I’m the only one who is able to add or delete posts to my blog, so how in the world does an entire post just “poof” vanish? It’s very strange. The tech person who said that he’s looking into it hasn’t gotten back to me yet. I know that the world won’t end if it’s not recovered. It just frustrates me. The poem was my Mother’s Day “gift” to my mom and I don’t have it written down anywhere else 🙍🏼 Also, it messes up my “post every day” challenge I’ve made for myself. I haven’t missed a day yet, but now I no longer have one of my posts…And, yes, I’m sorry to say this is all I’m going to write about today. I’ve had this a migraine 💆🏼for two days straight now and it makes it extremely difficult to focus. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Dare To Dream

From the vault…


Open your mind and close your eyes,

Let your dreams take you away.

Spread your wings, fly up and beyond.

Where will you go today?

Dare to dream and set yourself free,

Leave your fears behind.

Allow yourself to float on the clouds

And feel yourself unwind.

Visit a tropical island

Or swim in a waterfall.

Climb the highest mountain.

Do anything at all!

Live your dreams from day to day.

Don’t put limits on yourself.

Believe that you can do it all

And your life will grow with wealth.

So keep your dreams alive and true,

By reminding yourself each day,

Just close your eyes and say these words,

They’ll lead you on your way…

My spirit dances with the wind.

My soul floats on the sea.

My heart sings songs of joy and love.

This is the place for me.

JKC

Yes, I changed the last two words. I’ve always wanted to, but how do you erase paint????

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Everything Will Be Okay 

Tired tired tired today. Just don’t feel up to much. We’re going bowling tomorrow for my little man’s birthday. I’m hoping that I’ll feel better, have more energy or something. Because just thinking about running a 5 year olds birthday party leaves me exhausted. I know that sounds negative, but I get tired so so easily. Grocery shopping leaves me exhausted. Cooking supper, washing dishes, just day-to-day functioning leaves me done in. So I look at things like tomorrow’s party with mixed feelings; anticipation, because it’s his first time bowling and first birthday party that he’s invited friends from school to and he’s so so excited and I just love seeing him so happy and excited. And, I also feel some dread or maybe worry about how I will feel tomorrow, physically I mean, both in the morning and after the party. I do know that worrying won’t help and, if anything, it makes things worse. I know that, even if I end up having a rough day, I will get through it. I will be fine. The party will work out fine. Everything will be okay. I will just repeat that mantra a few times, or over and over, while I go to sleep. “Everything will be okay.”

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

This Joyful Mask

Around and around we go again.

Will there ever be an after?

Will there ever be an end?

It comes, it goes.

It starts, it stops.

I try to hide it, but I think it still shows.

This joyful mask I wear.

A smile or laugh, to hide behind,

When the pain’s too much to bear…

JKC
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Happy Birthday Baby!!

Happy Happy Birthday to my baby boy! 

Today you’re five years old.

So have a birthday you’ll enjoy!

Eat cake and ice cream and have a super day.

Enjoying presents, playing games 

Having everything your way!!

Wherever you go and whatever you do,

Remember you’re my special little man

And that I’ll always love you!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

The Writing Takes Care Of Itself

My little man turns 5 tomorrow! I can hardly believe it! He’s my baby. It’s crazy!! I don’t know where the time went. I seriously don’t… I know people say things like that all the time, but I feel like I have a lot blanks over the past few years. Due to my medication, I think… It’s so so frustrating. It makes me so angry! Not just angry, sad. It makes me so sad. I want some normal. I am too tired of all of this garbage! I suppose I don’t forget it all, when I stop and actually look back. I can slowly fill in the blanks. Some is fuzzy and if I make an effort to recall things, more comes back to me. There are some things lost though. My short-term memory is bad. I forget things I just read or said. I lose my train of thought super easily! I forget that I’ve watched movies. Sometimes I lose the entire movie, like everything!! Other times, if I think about it or watch it again, it’ll come back to me. I forget emails that I read. Birthday party invites my kids show me. If I don’t put the info into my phone right away, I may forget all about it. My hubby and I can have a conversation about, maybe phoning the dentist to make an appointment for one of the kids and if I don’t write it down, I will easily forget all about it… I must be super frustrating to live with! Lol! I try to laugh about it, but I wonder if all of this damn medication is doing more harm than good! Shouldn’t the positive aspects of a medication (like pain relief, for example) out weigh the negative side-effects? Because, I don’t think my pills have that balance, the good results being higher than the bad… I was planning on having this discussion with the pain specialist. To decide if I should go off of a number of my meds. Many people have asked me about medical marihuana. From what I’ve read, the long term effects of medical marihuana use (am I even spelling that correctly??) seem to be less harmful than that of some of my current medications. I’ve read that it has helped some people with MS as well as some with TN. There is so much stigma about this, but frankly, if it helps, that’s all I care about!! However, it’s pretty damn hard to have this conversation with a Dr who is continuously cancelling and rescheduling your appointment!! Anyway, how I went from my son’s 5th birthday being tomorrow to medical marihuana is a bit of a mystery! I guess that is what you get when you just write whatever’s on your mind. The writing takes care of itself and I say whatever I needed to say. And now, what I need to say is that I’m knackered (I love this word!! I have a good friend who uses this all of the time and I’m trying to adopt it as my own! I don’t know if it actually sounds like “me”, but it is an apt description of how I’m feeling! It just seems to cover it all, from being physically tired to being mentally and emotionally tired as well. I just love it…is that strange?? If so, oh well! Lol)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Unrest

I am filled with a Strange sense today, like something important is astray

I have an unsettling feeling of unease, a foreign scent within the breeze

Mid-step it makes me pause, yet I can’t quite ascertain the cause

It leaves me with a wary heart, my body heavy in each and every part

I wish I could put it into words, or find some way for it to be heard

It’s everything and nothing mixed as one, it’s building up, yet remains undone

So if you see a slight hitch in my step, or sense me lacking my general pep

I can’t yet give the answer why, as it floats away from my conscious eye

I’m left without answers to this test, and this sense of unrest upon my breast

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Words…

Words…

Some flow quickly, from my head or heart and through my hands

While others are coaxed, slowly and delicately the ideas expand

None are wrong or right, nor good or bad

They draw out the truth, whether happy or sad

I need not judge, for they speak my heart,

Though hesitate, I might, for shame or regret can smart

Yet hiding behind mirrors, is to offer full exposure

After all, I’m in desperate need for some closure

Releasing it all as it comes, without hesitation or pause

Is certainly not an easy way out of the blame or cause

But I hope that, perhaps, I can begin to heal myself

If not physically, emotional relief is healing, in and of itself…

Just words…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Enough Said

Life with chronic pain sure does like to drain everything I’ve tried in vain and leaves me with a frazzled brain.  I feel just like the rain or caught in the wrath of Kane with this stupid awful pain it’s driving me insane!! I don’t know what to say or what to write today. I hate when I feel this way and when the pain won’t stay away. Sometimes it’s just so slow or rather, I feel so. I have no get up and go, my body just says no! I want say “I’m great”, but my answer comes too late. I want to jump up and celebrate, but my body says, “no wait”…  So I feel frustrated and sad. Then that just makes me mad! I wonder if things are really that bad.  How much overreacting is to be had? If I expect only the worst, won’t that be what happens first? If I’m down and feeling yuck doesn’t that effect my luck? If we create what we believe and think, am I the manifesting a life that’s bound to sink? If I get stuck in the negative and the “oh, poor me”, what more from life do I expect to see? If I want to head in a way that’s new, I have to find a way to wade through all of his goo…I kind of feel like I’m rambling on just to fill up space, meanwhile I have too much pain shooting down my face. So I guess that means I have to go to bed, and that’s that – enough said!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!