So, today I was cared for by my four year old son. I woke up in pain, which is not new and he asked his dad (my hubby) to get me some ice. He was lying down beside me, rubbing my arm and saying “don’t worry, it’ll be okay mommy.  I love you.” My hubby had to go to work. Before he left he got me fresh ice and brought up a yogurt tube and breakfast bar for my little man. Then, I had the television set to Disney Jr. and he was playing a game on the iPad. I was half asleep, lying beside him on my ice pack. The whole time I had my arm around him and he kept rubbing it and telling me he loves me and that I will be okay. I have a pretty terrific little boy. He’s such a sweetie. It fills me with guilt…I should be taking care of him! So so hard…

Yep…that was pretty much my day. Nothing accomplished but guilt! Well, I made it through an extreme pain day without completely falling apart. So, I guess that’s something…maybe? I’m feeling super low right now and very unmotivated to write. So, I think this is about all I’m going to write for today. I don’t forsee myself having anything positive to say and I’m in too much pain anyway. Sorry for the boring post! Better then nothing though.

Hey, don’t forget to sign the petition to get the World Health Organization (WHO) to put Trigeminal Neuralgia onto their “Health Topic List” at http://www.tnnme.com

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Imagine a world of fantasy and dreams.

A world where nothing is as it seems.

A butterfly may wink and wave hello.

A flower can chose which colour to grow.

A mushroom tips its’ hat as you walk by.

Walking on the grass makes the dandelions cry!

There are surprises everywhere you look,

You feel like you’ve fallen into a book.

Astonishment shows all over your face,

A bumble bee asks if you’ve lost your place.

Your jaw drops open converying the shock,

It’s hard to believe a bumble bee can talk!

Since magic has created all of these things,

Perhaps it can grant you a pair of wings!

Yes, now you can fly above the trees.

High in the air you drift with the breeze.

It’s nice to let go, to feel so light and free.

To fly above the mountains and over the sea.

You skim along the water where the whales sing.

You can fly anywhere and do anything.

Imagine a world of fantasy and dreams,

Where you decide how everything seems!

JKC

Please go to http://www.tnnme.com to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Okay. I’m too frustrated today. I phoned the Dr that I was supposed to see last Friday who ended up cancelling (2days before) to see if she has rebooked me for a new time for my “pain assessment”. She had said that she will get me in as soon as possible, since he was “out of town” on the day of my original appointment. So the new date is April 24!!!! Seriously I am so damn tired of this type of bullshit! Sorry for the language…I think I’m just at the end of my rope!  Hanging by threads only… I couldn’t sleep last night and am exhausted tonight. So, I’m not writing much more tonight. Just one important thing!

Please Please Please go to the following website and sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) onto their “Health Topic List”. (Yes, the horrible disease that I am living with on a day to day basis and constantly complaining about!!) There is no cost involved, just your name and email address is needed to “sign” the petition. They’re at 15,902 signatures. The goal is for 20,000 signatures, so please sign and forward the information to all of your friends and families, to annoy them, have them sign and then forward it on to their friends and families to have them sign and so on and so on. Also doing so will make me smile!!! 😍😍😍😍😍 Lol!!

Trigeminal Neuralgian and Me:

http://www.tnnme.com

There are other ways to support TN research and awareness. There are additional links listed at the end of the petition. Also, if you go to http://www.zazzle.com and enter Trigeminal Neuralgia into their search engine, you can find a variety of purchases that go towards TN research, support  and awareness. But, only if you want to.

But, to reiterate! Please please sign the petition (yes, it’s free!!!).

FIND THE PETITION HERE:

Trigeminal Neuralgia and Me

http://www.tnnme.com

Thanx everyone!!!

Oh and, just in case anyone asks, no I do not make any royalties or anything. I am not a part of these organizations, they just make me happy and the Petition is super important to me. That is all!!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!