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Oh Save Me From This Sleepless Night 

Oh save me from this sleepless night,

The pain, the fear, my dreamless plight.

Head on pillow, body weary

Cruel mind seeing thoughts to clearly.

My self-inflicted torture, I long to escape.

My brain, my thoughts, my minds landscape.

Oh precious slumber have you forgotten me?

Oh restless night how I long to greet thee.

To dream in peace, to still my mind.

To quiet the chatter, to leave chaos behind.

Oh save me from this sleepless night.

Mr Sandman please, end my dreamless plight!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Up And Down

Share, love, laugh and play

Cry, scream, fight and pray

Sing, jump, give and share

Hate, pain, fear and glare

Feel, enjoy, live and smile

Dread, fright, scorn and beguile

Trust, faith, hope and delight

Regret, dread, fail and spite

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Salvation

Searching my soul

Serving my spirit

Surrendering my sins

Surviving my shame

Sacrificing my smile

Sabotaging my sexuality

Sensing my struggle

Seeking my strength

Silencing my skepticism

Sparking my senses

Salvaging my sanity

Sharing my surprise

Savouring my success

Shinning my serenity

Saving my self

SALVATION!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

What Is Nerve Pain Anyway?? (Part 3)

Everyone who reads this knows by now that I suffer with nerve pain. But what is nerve pain anyway? And, how is it so different then other pain?  Aren’t our nerves what sends signals to the brain about pain? So, what’s the difference between regular pain and nerve pain? I’ve written about pain before, acute and chronic. But what is nerve pain??

The two main categories are pain caused by tissue damage, also called nociceptive pain, and pain caused by nerve damage, also called neuropathic painPain is also classified by the type of tissue that’s involved or by the part of the body that’s affected (chest pain, back pain, headache, etc.)

nociceptive pain: Most tissue damage occurs from an injury to the body’s tissues. The injury can be to bone, soft tissue, or organs. The injury to body tissue can come from a disease such as cancer. Or it can come from physical injury such as a cut or a broken bone. The pain you experience from tissue damage may be an ache, a sharp stabbing, or a throbbing. It could come and go, or it could be constant. Pain from tissue damage can be acute, For example, sports injuries. Or it can be chronic, such as arthritis or chronic headaches.

neuropathic pain: Nerves function like electric cables transmitting signals, including pain signals, to and from the brain. Damage to nerves can interfere with the way those signals are transmitted and cause pain signals that are abnormal (& bloody awful!!) Nerves can be damaged by diseases, trauma, certain chemotherapy drugs, and also as a result of stroke or an HIV infection, among other causes (as if those weren’t enough!) The pain that comes from nerve damage could be the result of damage to the central nervous system (CNS), which includes the brain (like my TN) and spinal cord. Or it could result fro, damage to peripheral nerves, those nerves in the rest of the body that send signals to the CNS.

The pain caused by nerve damage is often described as burning or prickling. Some people describe it as an electrical shock. Others describe it as pins and needles or as a stabbing sensation. Some people with nerve damage are often hypersensitive to temperature and to touch. Just a light touch, such as the touch of a bed sheet, can set off the pain.

Trigeminal Neuralgia, is the fun disease I get to live with (note the sarcasm!) My Trigeminal nerve (the biggest nerve in the body) was found with 2 large veins that were pressing into it, damaging its protective outer myelin sheath layer.  I had the Microvascular Decompression (MVD) surgery and the Neurosurgeon put Teflon into my brain, underneath these blood vessels to protect my nerve and allow it to heal. Problem is, the surgery didn’t work and I’m still here with a damaged and consequently misfiring Trigeminal nerve. I get horrible shocks and stabs of pain. The pain is intense and lightning like, and it can occur in my lips, scalp, forehead, eye, nose, gums, cheek, and chin on one side of the face. The pain can be set off by touching a trigger area or by slight breeze. Frankly, the pain sucks! It’s so so awful and so so hard to treat!! 

(The majority of the above information was found online at WebMD, I do not intend to plagiarize, just not sure how you do a bibliography for a web site!!)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Is This Paradise 

A fitful night of restless sighs

A silent night barraged by the raging noise inside my head

Words and thoughts and fears and regrets

A night where the disparaging voices can’t be tamed

Overtaken by reproachful thoughts of shame and guilt

Smothered by dreams of joy and hope

Pain and sorrow and faith and trust

Tumble together in a twisted truth

Is this paradise?

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

How Random…

🎉🎉Happy Birthday to my sister!!🎉🎉

So, I’ve been kind of off all week. I feel like the days have kind of been a blur. Nothing much has happened. It’s been a lot of the same old thing…I don’t know why I just feel so bla.

My daughter and I have gotten into the show “The 100.” We have been watching it all week! It is feeling like an addiction. It’s so easy to just watch and watch episodes back to back. We keep saying “well, just one more episode.”  We’ve managed to watch a season and a half in under a week! So crazy and so easy to do! I think that PVR’s and then Netflix (& all of the new streaming networks) have completely changed how we watch TV & movies. It wasn’t so long ago that there was a movie rental store on every street corner. Then you could “rent” a movie “on demand” from your home. Netflix wasn’t far behind. Now, we PVR our favourite shows, who even watches commercials these days?? We get our movies on Netflix or (a’hem, occasionally) download them ourselves. I actually miss watching previews or trailers (whichever you prefer to call them) before movies. They would keep me up to date about what is coming out soon. But now, who needs them? My husband just logs onto the play station network, then there’s a network (IGN or something?? Don’t quote me on this!) and you can watch previews of new releases to theatre, or new DVD releases, or probably whatever previews you’re interested in.  Frankly, you can pretty much watch whatever you want on-line now…My youngest daughter rarely watches actual “TV” now, she’s either on YouTube or Netflix. I had no idea where this conversation was going. Huh. It’s pretty crazy how quickly technology is changing things. I have kids whose ages are not that close & I can really see the difference between my kids. My four year old doesn’t know how to use a mouse, but he can navigate my iPad better then me. It just changes so so quickly! It’s hard to keep up. My kids &/or hubby help me whenever I don’t know what to do…with my phone, the TV, the WiiU, the PS4, my iPad, etc. etc… I haven’t even figured out how to add photos on this blog yet!! Well, one day at a time I guess…

And, on that note, I’m going to go to bed now! This whole conversation…how random!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

 Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Here’s Hoping Tomorrow’s A Better Day

Today I really don’t have much to say. 

It seems that time just quickly flies away. 

It’s now time to get ready to go to bed. 

The first thing I do, is think ahead,

And if needed, remember my TN tips!

Before brushing teeth, try to avoid your lips,

While applying Anbesol gel to your teeth and gums,

Then quickly brush your teeth, while it numbs!!

To wash your face use water that’s not too cold or hot,

I wash with pressure as it causes less pain, believe it or not!

Pat to dry, definitely don’t rub,

And whatever you do, do not scrub!!

Spray a light toner, if that’s something you like to do.

For night cream, again applying pressure works here too!

If the pain’s bad the toner will do. Lotion? No way! I will skip it!

And, for pain above the bad range? Just forget all of this shit!

Just take med after med after med,

Then throw your ass into bed!!

Don’t forget to have heat or get ice.

Lie down and pray for your sleep to be nice!!!

Hopefully you’re able to get some rest,

Good sleep helps you feel your best…

Well, that’s what I’m told anyway,

Here’s hoping tomorrow’s a better day!!

JKC

 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!    

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

I Feel Like I’m Going A Bit Crazy…

A strange day. I feel like I’m going a bit crazy.  So many intentions with nothing getting done. Just filled with bla, a little more bla, with a bit more bla on the side…I feel like there are so many things to do, yet nothing ever actually gets done. I just sit around in my messy house with ice on my face doing nothing. Sad really. It kind of makes me feel useless. Nothing is getting accomplished at all. I have these lists in my head, of all the things that I need to do, from things I want to write about, to laundry, to dishes, to de-cluttering. The lists go through my head, again and again, but it never gets done. I have bins of things that I need to go through, that I’ve needed to go through for a long long time. My kids rooms are overflowing with stuff, clothing, toys, just stuff. I have piles of books. I do love books, always have, but I have books everywhere, and far too many according to my husband!  I’m just feeling incredibly overwhelmed, yet nothing gets finished.  I feel like I’m going a bit crazy.  I have many great friends who help me, with emotional support, food, anything I need. Also, many offers to help go through all the stuff at my house. But, it’s embarrassing and I feel ashamed and, for some reason, I feel this bizzare urge to hold onto things. I feel like I’m going a bit crazy. Pain and depression hand in hand sucks! Really really sucks…don’t know what’s with me today. Don’t know what’s up with me anyway. Was going to write about something significant or meaningful or something…I don’t know.  But, it’s obviously not happening. Just a bit of self-pitty going on I guess.  Anyway, I’m going to stop now. I don’t think this is helping me right now…

Oh, did I mention that I feel like I’m going a bit crazy???

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!   

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

And You Find You’re Standing Strong

Do you believe in coincidence?

Or things happening by chance?

Do you believe in destiny?

What’s behind each circumstance?

Do things happen for a reason,

Like they were just meant to be?

Do you find yourself arriving

In a place you didn’t foresee?

Still somehow you can sense

That you are right where you belong.

Then things all come together,

And you find you’re standing strong.

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Bla Bla Bla…Goodnight!

Not with it today. It’s been a strange day. Feel like I just got up and now it’s bed time and I don’t know how that happened. Just blinked and it’s time to start getting ready for bed. It’s such a strange feeling, like the day snuck past when I wasn’t looking. So now I’m sitting here feeling just as bla and out of it and exhausted as when I first woke up. I’ve hardly moved or done anything, other then get my girls from school and dance. I just have this yuck feeling about me,    I can’t seem to shake it. I don’t feel like moving or talking or doing anything, not even writing. Just plain old bla…

I know, I know, yesterday all I wanted to do was stay in bed. Well, today I just want to go back to bed. My whole body is just achy and sore. My face is on fire and being shot through with pain. I’m feeling super tired out and blechy. I’m just plain bitchy tonight. So I think that I am heading to bed now. I’m allowed an off day or two right??  Well, my own answer is, ” yes! yes! yes!”  

And on that note, bla, bla, bla…goodnight!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!