Tag Archives: #TN research

Small Blessings

October 18, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

I feel like I blinked and suddenly it’s after 3:00. Time has a way of doing that. Then that long list of what you have to do that day ends up getting cut in half, as you have to revisit your list and prioritize. Generally I’m having a good day if I end up getting even one of the things on the revised list done! It’s like, “Woohoo!! Yay!! Time to celebrate! I think one of the reasons that I don’t get any of the extra things done is because I have a hard time even getting the day to day things finished. So, yes, getting extra things done is quite the accomplishment. That is the Woohoo day.

My hubby bought the new rock band for the play station 4. So we have had a very loud day. I don’t know what it is about that game, but we all have so much fun when we play it. We have the original one and many of the extra songs/games. It is something we all do together as a family. Even if one of us is just sitting and watching/listening, we just enjoy ourselves. Those family moments are to be treasured, as they are most important and easy to take for granted.

So, I am off to enjoy my family. I need to hold onto all of the small blessings. They ad up to a beautiful life!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Fitbit

October 16, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Today I refuse to go to bed late! Even if this is super short. I have got to switch my schedule, up too late, sleep late, doing nothing… I got a Fitbit today. It can sinc with my phone, for texts and music and a ton of info about yourself. Heart rate, throughout the day/night, sleep schedule, # of steps and much more. I just have to figure out how to use it! Also, it’s a bit big and clunky, definitely not all that feminine. But, I have heard good things about them and very helpful in showing you your patterns, so, hopefully, you can make positive changes. I really need, I mean I really really need to make some major lifestyle changes!! So I’m hoping that it helps me, even if only a little.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

His Loving Jail

October 15, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Running wildly, not enough,

He skillfully creeps after me.

Breathing heavy, can’t contain it

Far louder than it should be!

Fear rolls through me,

Takes control of things,

Yanks my movements,

As if on strings.

Tugged still.

Only escape, my mind,

While in his loving jail,

His touch, so kind…

JKC

(Huh. My mind fascinates and baffles me all at the same time…with what it creates, words unexpected. Don’t ask me about the “deep meaning”. Let it mean whatever it does for you…)

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Mangled…

October 14, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Too tired today. It felt like a write-off day! I have been zoned out completely. My eyes are red and poofy. I look like a “stoner!” ( as we called the smoking/druggy kids in high school.) So, how things change and shift. I’m now the “stoner.” I know my medication is sedating, that’s why my highest dose is at bed-time. However, I feel the heaviness of the sedatives all day long. And, my stupid feet are still poofed up. The pharmacy went through my meds & possible responses and they said that it isn’t a side-effect related to any of them. If my gabapentin was recently raised there may be concern, but I’ve been on that for a long time at the same dose, since prior to my brain surgery & it’s coming up on two years since the surgery. It’s strange that it still aches & hurts where my incision was, sometimes horribly. So so so weird… But, I’m so used to pain somewhere on my body, that I almost don’t believe myself… some times it’s like this is someone else’s mangled life…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me)sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

That She Tried To hide…

Hmmm…write write write,

What’s on my mind tonight?

We spent the long weekend in Penticton BC.

Because my mother-in-law’s last day is soon to be.

Two days to visit and two to drive,

Just leaves me feeling half-alive.

(I’m sorry it’s probably insensitive to say that,

But, with the pain and exhaustion, that’s just where I’m at!)

We weren’t going to go, but decided we should,

It was the right thing to do, it went (and felt) quite good.

There were ups and downs, it was bitter-sweet,

But it was important to go for our final meet.

She was excited to see us, but broken inside,

A fact she tried so very hard to hide.

She carried such sorrow and shouldered her pain,

Knowing she’d never see us again.

I walked away with those thoughts in my head,

Cradling the words that were left unsaid.

I don’t envy what she is going through,

Never knowing when the end will come for you.

Like waves, the fear seemed to be rolling off of her

Leaving her exposed and feeling so unsure.

A day at a time, we’ll take it from there,

She needed to know that people do care.

I send her my blessings, of faith, hope and love,

She said, “I’ll be with you whenever you smell the scent of Dove…”

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Long Car Day -didn’t upload yesterday!

October 13, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Long drive today and too too exhausted. Sorry folks. This is about all you get. Penticton was emotionally draining and we have so long to go and I don’t want to use roaming costs to write this. Talk more tomorrow!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Well, I guess this didn’t upload while in the mountains. Didn’t miss a big post! Lol

A Child’s Words Of Wisdom…

October 11, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Why can there not be shadows in life?

When I want to sneak-up and say, “surprise!!”

Why can there not be shadows in life?

So I’d see more than sorrow in your eyes.

Why can’t it just be love?

It should at least be life’s first rule!

Why can’t it just be love?

This world’s too sad and cruel.

No maybes, just do!

What’s there to think about?

No maybes, just do!

But how do I wade through my doubt??

Why can’t we just do nothing?

There’s always way too much to do!!!

Why can’t we just do nothing?

So I can spend all my time with you!!

JKC

Why can there not be shadows in life? Straight from the mouth of my five year old son, literally!! Really, the first three lines in each section above are (word-for-word) things that my 5 year old son has said! Kids bring abundance and joy!

So, 👨‍👩‍👧‍👦(my family) + 👩🏼 (me) = abundance and joy

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Edited with BlogPad Pro

Rewind – Repeat!

October 10, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Long busy day?

Rewind – Repeat

Feels like there’s not enough time?

Rewind – Repeat

Always tired?

Rewind – Repeat

Feeling frustrated and negative?

Rewind – Repeat

Anxious and unsettled in my tummy?

Rewind – Repeat

Wish I could do more…with my kids?

Rewind – Repeat

Wish and wish and wish for more?

Rewind – Repeat

Hope one day I’ll feel better?

Rewind – Repeat

Hope one day I’m myself again?

Rewind – Repeat

Yup…sorry for the negativity!! That’s just where my head is today.

Zzzzzzz…

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Edited with BlogPad Pro

Red & Tired Eyes…

October 9, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

My head is pounding and I’m trying to lie on the hotel bed with my feet raised on pillows. My ankles and feet are so swollen that the pressure when I walk or rotate them is so tight it feels like there has to be invisible bands wrapped around my ankles, pulling tighter each time I move. I’ve had it happen before, but this is the worst yet! I bought some epsome salts, foot cream and compression socks at the Walmart. So, I’m keeping this short again, so that I can go soak my feet before bed.

The next few days here are likely going to be difficult. I don’t think there’s an easy way to deal with terminal loved ones. There’s certainly no rule book, at least not that I have seen! So, after a 12 hour car ride we just didn’t feel like we were quite ready to get pulled (or sucked) into things yet. Tomorrow morning, after breakfast I guess, we’ll head over to the respite house to see my mother in law. Well, actually, I am calling ahead to see how she is doing etc. It’s been so difficult, up until now, finding out anything about how she is doing, what to expect, etc. Tomorrow we see how she really is. Hopefully we will be able to make sure that her doctor and charge nurse, or anyone else who may be working with her, opens up the communication from this point onwards. I understand that they can’t just pass on health information to anyone, but we are, supposedly, on the list of people who she has given her consent to have access to her medical information. Just hope tomorrow opens up some of the doors that we haven’t been able to get through until now.

My feet look like the feet that “the humans” have I’m Wallee…that’s bad…! TMI???

Anyway, I have to stumble towards the bathtub and soak my feet now. Fun fun!! LOL

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Edited with BlogPad Pro

Don’t You Ever Pause

October 7, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Don’t you ever pause,

To hear the words you speak?

Can’t you even see

You make others so meek?

Are you really so blind

You don’t see what you leave in your wake?

You call the shots

Anything else is a big mistake

But you don’t rule the world!

You just think you do

It must be sad and lonely,

Living in the bubble that’s you…

JKC

I got my teal on…

Did you???

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Edited with BlogPad Pro

The Spirit Scribe

I challenge myself to write 365 posts in 2016to heal Body, Mind & Spirit. Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Tag Archives: #TN research

Small Blessings

Fitbit

His Loving Jail

Mangled…

That She Tried To hide…

Long Car Day -didn’t upload yesterday!

A Child’s Words Of Wisdom…

Rewind – Repeat!

Red & Tired Eyes…

Don’t You Ever Pause