Tag Archives: #poetry

The Ones That I Love Keep Me Strong 

If I didn’t have love would I still be here? 

Where would I be without those I hold dear? 

They force me up and out of bed.

They make me remember to use my head. 

They need me here every day. 

They help to take the pain away. 

For them I try to get things done. 

It helps to be needed by someone. 

Those I love help me to smile. 

They remind me to laugh once in a while. 

I need to fight, to carry on,

And the ones that I love keep me strong. 

JKC

Go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

 

 

 

 

 

Waking Each Day To Continue On

Flying away from my crowded mind

Searching for peace, for freedom

Speaking to Angels, for guidance

Wishing on stars, to save my soul

Soaring to heaven on borrowed wings

Jumping from waterfalls to land on clouds

Praying for mastery of my eternity

Reaching for answers to understand my power

Playing with fire to discover my energy

Pondering for hours to find my way home

Ploughing through the earth for acceptance

Singing out loud to share the joy

Laughing out loud to persevere

Waking each day to continue on

JKC

Sorry for not continuing yesterday’s conversation. I was planning to write about chronic pain, but this wanted to be written instead…maybe tomorrow. Thanx for reading. I’m very blessed…

To help people with Trigeminla Neuralgia, for research and support please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

How Our Body Deals With Acute Pain (part 1)

So, I’ve been reading about pain, both acute and chronic and the difference between them (which I’m assuming is obvious!) I’ve also been learning about the difference between pain and suffering, which go hand in hand to make up our personal pain experience.

The system that our bodies use to respond to pain work perfectly in response to an emergency; to acute pain. What happens?  First comes the injury or the illness, in my case, Trigeminal Neuralgia, which I know isn’t acute, but is the cause of my pain. (Of course, for those of you who know me, my chronic pain journey started before the TN, but that isn’t what this conversation’s about.) So, anyway, many parts of the brain are sent a warning that a “threat” is present.  Our brains try to figure out how serious it is. Some areas of the brain transform the signals as physical pain sensations. Other areas of the brain, like those that work on problem solving and emotional-processing are also triggered. These thoughts and feelings about the pain make up our perception of “suffering”. Our brain uses the pain, combined with the suffering to give us our “pain experience.” This is the brains way of making sure we are able to protect ourself.  This is a normal and helpful pain response. Also, our brains simultaneously go into an “emergency stress response,” where our nervous system, endocrine system and immune system are also reacting to the emergency. Basically our body is on high alert in order to keep us alive, to allow our survival.

Here’s something I found interesting. Even once the stressor is gone, our minds and bodies want to know how to prevent this from happening again. We are automatically programmed (did that sound weird, like we’re robots or something??) to try learn as much as possible from the experience, in order to either prevent or be better prepared if the same pain, threat, illness, etc. happens again. This makes me happy and relieved in a strange way, because it normalizes my behaviour. It means I’m not crazy! I’m not as negative as I believed, lol! Why?? Because our brains go over and over the event. Recalling the pain. Telling people about it. Worrying about it coming back or being even worse the next time. So, my “tedious” ramblings about my life and my pain are actually part of a normal pain response.  It is not just because I enjoy dwelling on the pain and how crappy it is. It is not for attention or a way to feel sorry for myself, like being little miss “oh poor me!” (Which I do try hard not to do!!) So, yay yay yay!!  There’s an actual explanation that helps to explain why my pain seems to hang over every part of my life, why it’s almost always on my mind.  I know it may seem strange for this to be something that I was excited to read, but when you’re immersed in daily chronic pain, learning that it is normal to ruminate about it is a relief. It’s not just always on my mind because I’m negative, I need to stop thinking about it, to stop dwelling on it and to just get over it or, at the very least, be more positive about the whole thing. Nope, it’s not my personal version of crazy, our minds intentionally keep the thoughts and concerns, about our illness and how we expereice it, close to the surface!!  It’s trying to be ready for the next time!  This entire protective response to survival and short term pain is not a bad system at all. It has likely played an important part in the survival of our species.

The problems with the above pain reactions occur when dealing with chronic pain. This system works perfectly for short, acute pain/illness. Adding chronic pain is a whole new ballpark! You know, my life and my kind of pain!! Lol!!

I’m just want to be sure to add that I am not a pain specialist or doctor. However I’m a chronic pain sufferer and I’m trying to learn everything I can about it. I do realize that my discrpition here is quite simplified. I’ve been reading numerous new books about pain and have read many during this jouney. I am writing this for my own understanding of what’s going on inside my body, yes, for purely selfish reasons!!  If it ends up helping others understand then that is a bonus!! I am not quoting directly from any book, but, in an effort to not plagiarize, the majority of this information is from a book by Kelly McGonigal called “Yoga For Pain Relief.”

But, right now my body is in pain. And, my response currently is to do something, anything, to deal with it. I will take medication and I will use hot and cold packs in what will likely turn out to be a fruitless attempt to decrease the pain… Look, the negativity is back!!! Was wondering where it was hiding!! Lol!  I’ll try to continue this topic tomorrow, about chronic pain and why our normal pain response backfires for this type of pain.

But, for now, please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

I Will One Day Be Free

Have you ever had a day when it hurts to wash your face?

Have you ever stepped outside and had a breeze burn your cheek?

Have you ever felt a searing pain from a gentle, sweet caress?

Have you ever stayed in bed for much longer then a week?

Have you ever felt shamed because you have to beg for drugs?

Have you ever felt a shock of pain as a tear escapes your eye?

Have you ever felt so isolated you think you’ll lose your mind?

Have you ever wondered if perhaps a part of you may die?

Have you ever cursed and cried and screamed without uttering a word?

Have you ever felt like curling up so tight that you may burst?

Have you ever held back crazed laughter when you hear “I understand”?

Have you ever smiled and said “I’m fine” when the pain is at its’ worst?

Have you ever judged yourself?

Have you ever felt too small?

Have you ever blamed yourself?

Have you ever felt yourself fall?

I feel and think and experience these things

I live each day immersed in these things

My life has been consumed by these things

I long to break away from these things

I’ll pray and write and ponder these things

Until my answer is “no” to all of these things

I yearn to answer “no” to these things

To find my path away from these things

I’ll keep on trying to get away from these things

I will one day beat all of these things

I will one day be free…

JKC

Please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Random Rhyming Rant!

Pain just sucks!

It makes me mad.

I can’t bloody stand it!

It’s just so bad.

It pierces deep,

It shocks and stabs.

It pisses me off!

As my life it grabs.

I’ve had enough,

Of all of this crap!

I’m venting now,

Just running my yap!

I’m writing anything,

That’s on my mind.

I just need to rant,

With any words I find.

So don’t judge me,

Or what I say.

You don’t understand,

How I got this way.

I need to curse,

To scream and yell.

To get it out,

And escape this hell.

So I’ll write and write,

Whatever comes to me.

To help get it out,

And to let me be.

JKC

Please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Who Am I Anyway? I Mean, Right Now?

Seriously a slow slow day at my house. No one is feeling very well. My oldest looks like she’s a vampire she’s so pale. My middle daughter has been coughing for days and sounds horrible and has a bizzarely husky voice when she talks. And, my little man went to bed too late last night (although that was my fault) so he is crying at the drop of a hat. I’m afraid that he’s getting sick too…I hope not. I hate when little people are sick. I mean don’t get me wrong, I don’t like it when any of my kids are sick, but when they’re really young it’s hard. They need you more. They’re more cuddly and touchy, they don’t understand why they feel bad or why you can’t “make it all better.” I do love the cuddles, but it gets hard to do anything else, when they are really sick and want mommy.  And, of course, I don’t feel well either. I know that’s nothing new but it’s so much easier when I’m the only who feels crappy… This really sounds like me feeling sorry for myself which wasn’t my intention. Sorry for that!

So my hubby is going out of town all week for work, which never happens. I know many people whose husbands work out of town a lot. The majority of whom go “up north” to work at the rigs. I always marvelled at how they get by. I feel so dependent on my husband. It’s strange, because it is not how I ever thought I’d end up, being super dependent on my partner. I went to school, under grad and masters. Worked to take care of myself, with or without a partner. I remember my dad talking to me about making sure I can depend on myself and take care of myself. To never rely solely on another person for your welfare. Yet, here I am freaking out a bit that my husband’s going to be gone all week. I realize that I’m a victim of circumstance and that I obviously didn’t plan getting sick and being unable to hold down a job because of debilitating pain. Still, I don’t like how vulnerable it makes me feel when I think about being alone this week. He does so so much at home. He takes care of almost everything! I’m lucky to have him. I’ve read many sad stories on-line of partners leaving in chronic pain situations. Too many. It is understandable, because I see how much is put onto my husband, but it is still very sad. I don’t know what I’d do if he wasn’t here. I don’t want to think that way. I could understand resentment building up. He has no down time, especially on my really bad days. Anyway, this turned into a bit of a ramble, didn’t it? For this week, I do have many friends who have told me to call if I need anything. Also, my parent’s are home from their BC house and will help out if I need anything. It’s just so strange. I also see him worrying about going and don’t want him to feel guilty. I believe I carry enough guilt for the two of us…probably for many more then just the two of us. I know we’ll (the kids & I) be fine. I just have this weird sense of dread in my stomach and it makes me look at how I got to this place. Of dependence on my husband and anxiety about him being gone. Weird…I feel like I’ve lost so much of myself.

Who am I anyway?? I mean right now? Who am I, who have I become? Am I okay with who I am currently?? Something to ponder…

I’ve been changed by my pain…or maybe by the suffering? Whichever it is, Trigeminal Neuralgia has altered things. If you want to help, please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

By No Means Do I Intend To Give In!

Stupid pain just go away.

Please give me peace for just one day!

I’ve got so many things to do.

I have three kids who need me too!

There’s always something that they need,

But you bleed me dry with all your greed.

My husband’s left to do it all,

When I’m off court he’s tossed the ball.

You just swoop on in to run the show,

And demand that everything else must go.

I’m so so tired of this terrible game,

Yet everyday it’s just more of the same.

You keep on pushing, you just won’t quit,

But neither will I, you can count on it!

I have too much to live for, too much to do,

So I won’t give up my life to you.

You may come down hard and hold the reins,

But I’ll find a way to break those chains.

Today I may have let you win,

But by no means do I intend to give in.

JKC

Please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Do You Ever Feel Like It’s All In Your Head??

Do you ever feel like it’s all in your head?

Like nobody’s listened to a word you’ve said?

They nod and smile and pretend to care,

But you can tell they’d rather not be there!

The doctors tell you there’s nothing else to do.

And you start to wonder if they believe you.

You take pills and pills for everything,

Even for the side effects that some pills bring.

You don’t know why there are so many to take.

The whole damn thing feels like a big mistake!

You pray to God to give you your life back,

As you feel your sanity beginning to crack.

You ask what you did to deserve all of this,

To take the pain away is all that you wish.

The doubt you read on everyone’s face,

Makes you question just how you got to this place.

Did you do something wrong right from the start?

Then the doubt and the guilt flow into your heart.

And now I’ve come full circle to what I first said,

Do you ever feel like it’s all in your head?

JKC

Trigeminal Neuralgia sucks!!!  

So, please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Taken Care Of By My Four Year Old…

So, today I was cared for by my four year old son. I woke up in pain, which is not new and he asked his dad (my hubby) to get me some ice. He was lying down beside me, rubbing my arm and saying “don’t worry, it’ll be okay mommy.  I love you.” My hubby had to go to work. Before he left he got me fresh ice and brought up a yogurt tube and breakfast bar for my little man. Then, I had the television set to Disney Jr. and he was playing a game on the iPad. I was half asleep, lying beside him on my ice pack. The whole time I had my arm around him and he kept rubbing it and telling me he loves me and that I will be okay. I have a pretty terrific little boy. He’s such a sweetie. It fills me with guilt…I should be taking care of him! So so hard…

Yep…that was pretty much my day. Nothing accomplished but guilt! Well, I made it through an extreme pain day without completely falling apart. So, I guess that’s something…maybe? I’m feeling super low right now and very unmotivated to write. So, I think this is about all I’m going to write for today. I don’t forsee myself having anything positive to say and I’m in too much pain anyway. Sorry for the boring post! Better then nothing though.

Hey, don’t forget to sign the petition to get the World Health Organization (WHO) to put Trigeminal Neuralgia onto their “Health Topic List” at http://www.tnnme.com

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Imagine A World Of Fantasy And Dreams

Imagine a world of fantasy and dreams.

A world where nothing is as it seems.

A butterfly may wink and wave hello.

A flower can chose which colour to grow.

A mushroom tips its’ hat as you walk by.

Walking on the grass makes the dandelions cry!

There are surprises everywhere you look,

You feel like you’ve fallen into a book.

Astonishment shows all over your face,

A bumble bee asks if you’ve lost your place.

Your jaw drops open converying the shock,

It’s hard to believe a bumble bee can talk!

Since magic has created all of these things,

Perhaps it can grant you a pair of wings!

Yes, now you can fly above the trees.

High in the air you drift with the breeze.

It’s nice to let go, to feel so light and free.

To fly above the mountains and over the sea.

You skim along the water where the whales sing.

You can fly anywhere and do anything.

Imagine a world of fantasy and dreams,

Where you decide how everything seems!

JKC

Please go to http://www.tnnme.com to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!