Tag Archives: #pain

Find Your Way 

Today I tried to catch up on laundry so that I can pack tomorrow. The kids and I are off to BC with my mom and dad on Tuesday. So, of course, I left most of the laundry until today because that’s just what I do. Story of my life. Last minute, last minute, last minute. Some things never change. Once a procrastinator always a procrastinator! 

I figure, there is always going to be a to do list. There’s always going to be something that needs to get done. Just one more thing…it doesn’t end. There has to be a way to prioritize the list, or it can drive you mad. These days everything is so go, go, go.  It’s like if I do nothing, whether or not I feel sick, I’m judged negatively. If you like to relax, you’re lazy. If all you do is work, you’re a workaholic who should spend more time relaxing (ie: being lazy). There is no “right way”. Some people are night owls and some are morning people. Some find time with friends and fun is a great way to let go. Other people crave and need alone-time to recharge. Some people follow their kids around picking up every toy scattered behind them. Others have the kids help tidy, while others tidy up once the kids are in bed. If I regularly eat supper at 7:00, when the average time may be 5:30, does that make me a bad person? Am I doing things “wrong”? And, hey, who gets to decide what is right or wrong anyway?? Why do we let others dictate how we live our lives? Again, I say, there is no “right way.” Everyone needs to find “their way”. Figure out what fits with you. What feels right.  Then once you find your sweet-spot, when you’ve discovered “your way”, live your life without apology. Yet, be kind to those who may continue to judge you. Wish them all the best and hope for them to find “their way.”

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Everyone’s home!

Right now I am so very tired. I have nothing tonight, not feeling inspired. My hubby is home, I’m so very glad. I picked my daughter up from camp,the goodbyes make her sad. Now everyone is home and I like it like this. Patterns fall back to normal and there’s no-one to miss. We’re all feeling exhausted and just done in. There’s so much house work to do, but I’m waiting until tomorrow to begin. I have a lot to do to get us on our way, because the kids and I are to my parent’s to stay. We’re going to be away for a week or so, but my hubby has to stay home, he just can’t go. He has too much work he has to get done, he’ll be working while we’re having fun. I promised myself I wouldn’t go to bed late, so if you want anymore you’ll just have to wait!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Feeling Frustrated 

Well now I’m mad! I just had a long post and guess what happened?  Seriously, guess because that’s what I’m trying to do because I have absolutely no idea where it went! I’m sorry but I can’t do more tonight. I spent a long time and ive already stayed up much later than I intended to.  I was so proud of myself for getting done…sometimes I want to throw my iPad, or whatever electronic device happens to be driving me mad, across the room. Tomorrow our house will get back to normal. Both my daughter and hubby get home! It’s been strange with them out of town. I wanted to get more done, around the house, but that didn’t happen. My damn face is so unpredictable. I just really wanted to show my hubby that I’m not completely useless. He and my younger daughter were basically making fun of what it would be like here, with them gone, how useless I’d end up being. They were joking around, but it hurts because I have myself convinced that I’m pretty useless, but them joking about it confirms that feeling. Oh well. I really can’t write more. I’m going to bed now! Something is definitely up with this because I just tried to post this and it said an error has occurred. Like I said, chuck it across the room!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Painting Makes My Heart Smile😍

Today has been super hot! In this heat it’s so so hard to get anything done when it’s this hot out. I don’t even feel like eating. Just nothing. Nothing. Nothing. Nothing. So, that’s pretty much what my day was filled with, nothing. Well, maybe a bit more than nothing…I sat in our living room, roasting, watching a new (to me) TV show on Netflix with my daughter. I think it’s called The Witches of East something, hmm, I can’t remember. I kept saying The Witches of Eastwick, which was a movie from years ago. I think it had Jack Nickleson, Nicole Kidman and Bette Midler (spelled wrong??) in it. And that’s super strange that I actually remembered all of that, it is so out of character for me – lol! My hubby is super good at remembering things like that. One of my good friends is too. She is super good at it actually! If you play Trivia Crack on the iPad, or any trivia game, you want her on your team!! Anyway, that kind of went off on a tangent, hee hee!! East Side! That’s what it’s called, The Witches of East End. That’s what the show we watched all day is called. Netflix is super good at drawing you into shows, because it just continuously plays the show, episode after episode. The difference with today was that I was painting a ceramic fairy while watching tv. It’s the first time I’ve “arted” in a long time. I was using acrylic paint, which is so different from the watercoulors that I usually try to paint with. Not that I’m any big artist or anything. I wasn’t born with some amazing talent or anything. Basically, it was the opposite. My sister was so good at drawing. I was super envious of that. I’ve had this urge or feeling that tugs me towards drawing and painting. However, I’m not an amazing artist. I wish though, because I love how I feel when painting. I want to take an actual drawing course, to learn the basics. I’ve taken a couple watercoulour courses and just really really like it. Most of the other people in the courses were talented and I felt a bit like a little kid with my lacking skills! But, I really enjoyed it. I could get lost in it. I really  wish I did it more often! I have an amazing art desk (that my dada made from a China cabinet thing) but I never seem to use it. I should really find time to though, like once a week or something. I need to take that time for myself. My pain Dr said that I need to do something fun at least once a week. He did say “outside the home”, but at least it would be something that I enjoy. I suppose I do have some small sets that are portable and it wouldn’t be too difficult to walk or drive somewhere inspirational to paint/draw/write. Hmmm something to start doing…???

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Stupid Stupid Wifi!!!

Our wifi is making me crazy! It keeps kicking me off or not letting me on at all. I know that my posts have been pretty bla these days, but today looks like it’ll be a short one again today. It’s a pain in the butt writing on my phone. Also, I don’t want to use too much data. I’m not 100% sure how it works. I think some times when you’re on certain aps the use of wifi is on continuously, but others use the wifi when you originally open up the ap. Then if you have to save anything, change levels on a game, etc it uses internet. I don’t really have any idea why I’m going on about this. Talking about using too much wifi on my phone while using wifi…huh – lol

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

The Bla’s 

Our house feels weird tonight…My hubby’s not home right now & I had to drive my youngest daughter to camp this afternoon. So there’s just the three of us here. Kind of a strange feeling. There’s a strange kind of silence in the air. Hard to explain really. It’s just a change in the energy I guess. 

Speaking of energy, I don’t know what has been up with me. The past couple of weeks I feel like I have the energy of a sloth. It’s like I drag my ass from one thing to the next. Barely wanting to move or do anything at all. I’m just a big pile of Bla. The pain has been bad the past couple weeks. Perhaps the bla’s go hand in hand with the pain? I need to get my butt to bed earlier and start forcing myself to get my fat arse off the couch to go for a walk or something. But, for now, I’m just moving it to bed😴

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Before Her Scars Had Healed

She rakes her nails along her skin

Needing to find a way to feel

She’ll dig and dig until there’s blood

To remind her she’s still real

Without the pain she’s just a shell

Existing in an endless void

Spirit buried deep in her heart

Any semblance of a child destroyed

Her body’s riddled with scars

Self-inflicted over the years

They mark her inner struggles

They mask her deepest fears

She taught herself to shut down

To never show her fear

She gradually became numb

She never sheds a tear

Regardless where she finds herself

She’s stuck behind her shield

Constructed very long ago

Before her scars had healed

JKC

(Before anyone goes off on me and gets all worried about me. I’m not writing this about my experiences. We’ve been going through junk in our house, because we have so much to clear out, and I found a painting that a young lady painted for me back when I had a career. This has put her in my mind, remembering her story and her pain and her scars. She’s been in my head…)
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Bla Diddy Bla Bla

Argh!!! I can’t write I can’t sleep I can’t sleep and write. Staying up late is a super dumb dumb move. I had a beautiful poem written. Then, I managed to fall asleep. Then, my hand rested on the backspace button. Well, the result is probably obvious…But, over half of the poem, gone, kaput, bye bye…aaaaaaahhhh! Sorry folks, I have to redo too much of the poem and it’s stupid late. So, this is all until tomorrow, when I finish the poem. 

I’ve never seen a purple cow, I never hope to see one. But, just the same, I’d rather see a purple cow then be one!!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Life Drags On

The past few days have been bad. I can’t even remember what I wrote last night. I fell asleep numerous times while writing.  I feel like all week has been nothing but negative negative negative…I try not to let the pain control it all. Sometimes it’s just all-encompassing. When it’s this bad day after day, I just can’t get past it. It runs the show. I’m exhausted and wiped. I find it hard to come up with ideas of what to write about. This morning when I was taking one of the pill bottles off the shelf, the lid wasn’t on correctly and the entire bottle spilled!! Of course it was a brand new prescription filled yesterday, a triplicate prescription that is not easy to just re-fill. So I had to dig around my bathroom carefully to find 100 tiny, yellow pills…not fun! Nope, not fun at all! These pain days just seem to drag on and into each other. It’s easy to forget where I am in them all or what day it is, especially when the kids are out of school. The pain drags the days into weeks into months. Am I getting any closer to anything? I wish I knew. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Young Love

Do you remember young love? 

With its ups and downs,

Like learning to fit someone else’s glove.

Do you remember how that young love felt?

Its awkwardness and shyness, 

Times you were sure your would heart melt.

Can you recall that ache in your heart?

Thinking only of him.

Each and every  time you were apart!

Do you remember the times of joy?

The love and the laughter.

Certain “this time” you’d found the right boy. 

Can you still picture when your heart was broken?

Many shattered promises, tears and anger.

Confused and abandoned, too many things unspoken 

Have you witnessed your a loved one go through this?

It’s normal and expected. 

Not one more broken heart is what I truly wish. 

DJKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!
Hopefully one day I’ll get it right, or at least have fun, while about it I write!!