Tag Archives: #pain

Nervously Going Ahead

December 3, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

I’m feeling a bit anxious today. I have tried so many different medications it’s getting a bit ridiculous. The pharmaceutical staff at the Rexall, where I get all of my prescriptions, recognize my voice (I think they all do now and there are quite a few of them!!) My pain doc’s receptionist also recognizes my voice. I can’t even remember half of the meds I’ve been on. I generally can recall the name, if I’m asked something like, “have you taken (fill in the blank here) in the past?” However, if I’m asked to recall a past medication off the top of my head or what medications I’ve been on, I will likely miss quite a few. I have a small notebook that I got intending to track what I have been on in the past, as well as what I’m currently taking and whether or not it helps, as well as any adverse side-effects. The problem is that I always forget to use it. It’s just one more thing I should be doing that’s added to my mile long to-do list. I guess that if I really needed to know, because of a new doc or specialist or something, my pharmacy would print it off for me. I am good at listing the current meds that I’m taking, which is important, especially if there was some kind of emergency and I have a list in my “notes” on my phone. The new iPhone has a comes with an app appropriately called “Health”. I haven’t yet filled the forms out. I know that I should though. It is such a smart addition to the apple apps that are automatically on the new phones (they’re in the App Store if you don’t have on of the new phones.) I need to take the time to fill in my medical information, in case there was ever a reason that I couldn’t tell emergency medical people myself. I think that it’s a very smart addition to the phone. I just have to do it.

I’m super tired right now. The reason I’m feeling nervous is that my medicinal marijuana arrived today. I haven’t tried it yet. It makes me nervous. I think it’s because of the ingrained beliefs that I was taught as a kiddo about marijuana. Interesting how those beliefs stop co with us. I have a great deal of new knowledge regarding medicinal marijuana. I’ve been reading a lot and I know it is better for me than many of my past and current meds. And I really believe that. However, I just feel a bit nervous about it. Yet, i am so so done with pain!! I’m at a point where I’d probably try anything!!! Also, I need something that I can use long term and Oxy-codone (to name only one of my many medication) is hard on your body. So, here goes nothing. I have to try the one my doc said to use at for sleep. Until tomorrow…wish me & my vaporizer luck!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

I’m A Strange One…

December 2, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Today felt busy…weird because it wasn’t all that busy, yet I felt like I kept running out of time. It’s probably partially due to the clutter in our house. Too much stuff! So, anytime you go to do something, it takes forever because there’s just no space! Trust me, I’m not exaggerating at all. If you’ve been to my house then you know it’s true (🎤 girl you know it’s true -🎶 oo oo oo 🎶- I love you 🎵… any old fans of the famous lip-singers??) Don’t know where that little ditty came from. Sometimes I wonder what is really going on in my mind…there may be no space in my house, but the way I’ve felt the past few days, there’s definitely a bit of space up there, if you know what I mean – lol. So, why not throw an exercise bike into the mix!! I need to start moving, doctors orders!!! So does my hubby, maybe Santa will deliver it!! Hmmmm…food for thought. What a strang post this is. I am just jumping all over the place. Probably because I’m so sleepy. It’s making me a bit goofy😜😋😛 I’m just done today. So so sleepy and silly. I’m off, for a new adventure with my pillow and maybe a good dream. Night all!

JKC

To Party Or Not To Party – That Is The Question

November 30, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Arizona turned 40 in November,

But look! We’re already in December!

What happened to the birthday party?

The cake, the drinks, his dark Bacardi?

We blinked our eyes and time just flew!

So now what in the world should we do??

Is it too late to do something for him?

I don’t know if a party would sink or swim…

Leaving everything up to me,

Made his birthday as boring as could be.

But there’s a chance it may not be too late.

We’re trying to decide on a date.

It’s something we will think about,

We’ll let you know, no need to doubt!!

JKC

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

A Long Day But A Good One

November 29, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

I’m just beat or, as my good friend says, I’m knackered. We had a long long day. My daughter was dancing at the festival of trees. So we had to wake up much earlier than I’m used to (it didn’t help that I went to bed way too late last night. And, yes I know that was my fault. I have this bizarre disorder where, regardless of how much time I have, I am almost always late. I drive myself crazy! Well, actually, I drive my family, my hubby the most,mcrazy too! I lack time-management skills…but, back when I was working, I was rarely late. I know it’s disrespectful, especially for appointments. I really don’t do it intentionally!! I feel like I look at my watch and it feels like maybe 10 minutes have passed, but actually it’ll be 30 minutes later. Strangely, I have never been late when I have to get my daughter to a dance competition…weird.)

Well, did I ever get off topic – lol. My daughter’s new dance studio has an extra group that you can choose to sign your child up for. They call it the “Elite Team” and the cool thing is, they give the dancers extra opportunities to perform, prior to the competition season. This gives the dancers experience dancing in front of an audience, without worrying about the judging and everything else that goes with competing. It should help with their confidence, so they feel ready to perform when they are in competitions. She did really well and had lots of fun. Also, our son had a lot of fun at the festival of trees. They have so many activities for kids and he really enjoyed himself. You purchase tickets and then choose which activities you want to do, each worth a certain number of tickets (it all goes to the University Hospital Foundation). He decorated a gingerbread man, got a “festive tatto”, decorated a mini-tree (he was so excited that he got to keep it!!) they had a hockey net set up where you get 3 shots and get a prize, and he sent a letter to Santa. There were lots of things to do. It was really nice. Afterwards, our daughter had her regular dance class, so we went x-mas shopping while she danced. Then we had other running around to do. It was a good, fun day. I kept my face complaints to myself, but I’m done in and off to bed!

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

In A Galaxy Far Far Away Is My Brain …(Hopefully)

November 28, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

So I can barely function right now. Literally!! I am so so tired that my eyes are not staying open. I don’t think I will be able to write much at all. I keep falling asleep. I need to take advantage of it and actually go to bed!! Once I almost dropped the iPad. I had a really really busy day! It was just go go go all day, with hardly any breaks in between things, until past suppertime. I saw my pain doctor and he changed my medication again. Also, he upped the oxycodone so that, hopefully, it may help. He’s very very good! He is super nice, easy talk to, and he actually seems like he cares. Also, he doesn’t judge you, consequently I don’t feel like what I say to him is wrong or bad. As a result, I tend to feel more free talking to him about things and saying things that I might hesitate to say to other docs. Many doctors make you feel uncomfortable, like you’re seeking out pain medication just to get high. Dr Hauptman’s goal is to make me pain-free. Once we get there, I rejoice. Then, from that point, we can slowly back off some of the meds and see which ones help and which don’t. The first goal is to make me pain-free. And I have to admit I agree with him, pain-free sounds great to me! Also, starting next week, on Tuesday or Wednesday, I get my first shipment of medical marijuana to try. I’m super nervous because of the whole legal illegal debate thing…But, for now, I’m off to bed.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Eye Have Red Eyes…

November 27, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Eye may have a new fun thing to deal with for a couple weeks. My eyes have been sore and bothering me. Both eyes have felt dry and almost gritty and, just irritated,especially the left eye. So, I went to the doctor today and she thinks that I might have something called Episcleritis. She’s not 100% sure. She told me to make sure I see an eye doc tomorrow. I’ve never heard of it, but the name was a bit scary! However, from what I’ve been reading, it’s actually pretty common and not severe or scary. If it progressed into Scleritis, it would be worse. So, since I’m super tired and, my eyes are both wanting to stop looking at an iPad and just close…I took some pictures and mine aren’t that bad at all (compared to the nasty eye problems that I’ll never be able to erase from my corneas on google images – I just shivered a little there!) As a was saying, I have copy and pasted an information sheet from http://www.eyecaretrust.org.uk.
First, my lovely eye pictures 👀
This is my left eye👁, that is bothering me the most:

This is my right eye 👁 (forgive me for the blurry picture, I can’t seem to get a better one and I’m exhausted, so I stopped trying):

This is…you guessed it, both of my eyes 👀! (I’m so so proud of my smart readers!! Good guessing‼LOL):

This is a diagram

that I found online:

And, finally, Here’s the information (who knows, I may go to the eye doc tomorrow and have them say, they’re just strained or something simple… Well, if so, I am now full of information about Episcleritis – lol)

Thank you, http://www.eyecaretrust.org.uk much much appreciated!!
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Sick And Grateful For My Friends

November 25, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Unfortunately, I’m having one of my bad days today. I told my daughter that, when we enrolled her in a dance studio in the city, her dad and I would do everything in our power to ensure that she doesn’t miss any classes. However, today, on top of my stupid face, I woke up this morning feeling just awful. I have had a high fever all day and I can hardly move because my skin hurts so so much! My clothes hurt my skin, writing this hurts my hands…yuck! That’s the joy of fibromyalgia. I almost fainted in Sobeys and am seeing stars, literally! My tummy is cramping and jabbing. My problem is that my daughter had to dance from 6:15 – 8:00 & my hubby is out of town & my mom & dad are at their BC house 😒. I drove home from dropping my son off at Kindergarten while feeling like I was going to pass out, again, or throw up, blech! I knew that I shouldn’t drive to the city feeling like that. It just wouldn’t be safe. My hubby said that if I can’t find anyone to drive her, I could call a taxi and have our 18 year old big sister go with her (it’d probably cost a lot, but she really really doesn’t want to miss any of her classes this year.)

I went on a hunt for someone to drive her to and from dance. One of my closest friends in Beaumont drove her there and another friend, who lives in the city and works with my hubby, is picking her up and dropped her off. So, this post is to say Thank you Thank you Thank you!!! I’m not sure if they want their names on here, so I left them out. But I am so so lucky to have friends around to give me a hand. I appreciate it so so much! My daughter is really enjoying dancing at the new studio. YAY!!! No more coming home crying!! YAY!!!

Now I’m going to throw up…pleasant, I know!! Then I’m going to lie down to see if it helps.

Thanx again!

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Too Much!!

Why must everything take so long?? I feel like there’s never enough time to get everything that I want to do done. And, of course, the days when there is a great deal to do are almost always the bad pain days. (That’s one of those fun Murphy’s law situations!)

So hear I sit, it’s late yet again.

There’s so much to do, the list doesn’t end.

So I’m up far too late, trying to do it all.

Then I feel so tired, like I’m about to fall.

I want to push through and get everything done.

But when the first things get done, there’s another one!

Then I go to bed tired and shaking with pain.

And I lie there at nights wondering if I’m going insane!

If you walk through my house, it’d look like nothing gets done.

Even on the days of work and no fun.

Then I collapse into bed exhausted as can be.

Then I wake up and do it all over, lucky me…

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Enjoy The Ride

November 23, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Moving flowing, running smooth.

No bumps or nicks to interfere.

Getting closer. Sensing the end.

Can hardly believe it’s almost here.

Fear and excitement becoming one

A clear direction building inside.

A fresh start, another chance.

Ready to hop on and enjoy the ride!

JKC

I forgot all about my picture of the day. Oops!!

So, here’s today’s silly kiddos! Don’t know how she managed to get his baby hat on, but they did!! ❌😘❌‼️

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Another Mountain To Climb

Do you ever feel you’re younger when you’re talking in your head?

Do you wonder where those days went and how time has jumped ahead?

Inside I’m so much younger than what I see in the mirror.

I see my son and teenaged daughters and remember why I’m here.

Regrets are really challenges that remind me there’s still time,

To chase my dreams, to play and love, to find another mountain I can climb…

JKC

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

The Spirit Scribe

I challenge myself to write 365 posts in 2016to heal Body, Mind & Spirit. Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Tag Archives: #pain

Nervously Going Ahead

I’m A Strange One…

To Party Or Not To Party – That Is The Question

A Long Day But A Good One

In A Galaxy Far Far Away Is My Brain …(Hopefully)

Eye Have Red Eyes…

Sick And Grateful For My Friends

Too Much!!

Enjoy The Ride

Another Mountain To Climb