Tag Archives: #pain

Dance Dance Dance!!!

Today marks the first day of the dance competition season for my middle daughter. She is doing hip hop in this years competitions, even though she is also in grade 5 (RAD) ballet regular & exam class, non-syllabus ballet 3, intermediate jazz 1, non-syllabus Jazz 3 & a stretch class. She dances every week day, somedays more then once. I know I’m her mom, which makes me extremely biased, but she really is a good little dancer! She would love to compete in the other dance styles as well, but at the dance school she attends, the teachers choose who does or doesn’t compete. And, they, the teachers (mainly the “head” teacher, I believe) & the parents on the executive committee, don’t like me. It’s a long story, but basically, she competed a couple of years ago, then wasn’t asked to compete again the following year. She was devastated and I was angry. I wrote a very long letter to the teacher, which she really didn’t appreciate. Apparently she would rather not have someone point out how flawed their system is! My mom also wrote a letter because she saw how heartbroken her granddaughter was. I guess this is why they don’t like me?? I find it a bit strange that they were so upset over a letter, as I know of numerous parents who’ve gotten into major screaming, over the top, arguments with the dance teacher, on more then one occasion. I’m usually one of the pretty quiet parents who doesn’t complain about every little thing. All I did was write a letter expressing my anger and begging them to reconsider, and now they will never invite my daughter into performing again. I blame myself for her never being asked to join again. I just can’t wrap my head around it. I’m not one of those super annoying, always complaining, always finding and pointing out fault type of parents. For the most part I’m usually quiet, kind and respectful… For pete’s sake, all I did was write a letter!!! Anyway, this year, she gets to compete in hip hop. There is a new instructor for hip hop this year and he just made the assumption that all of the kids in his class compete. (Imagine that! What a strange, refreshing & inclusive idea!!) So, she gets to compete this year.

I am concerned about tonight’s competition because she is super sick right now. Her little nose won’t stop pouring and is bright red, which isn’t that big of a deal. However, she has the most horrible cough!  It’s one of those loud, hacking, almost like a barking sound, coughs. It is so out of control! I’m worried about her getting through the dance without coughing and hacking uncontrollably! She is excited about getting to compete again this year, but it’s frustrating that she has this damn cough. (My words, not hers – lol!!) So, please cross your fingers, send positive healing energy, say a little prayer or do whatever it is that you do to send love and luck to her!!

Here’s the other thing about the whole dance competition scene, I am so not a “dance mom”!! I mean not at all! Now don’t get me wrong, I absolutely love to watch my daughter dance. I could watch her all day. No, what I mean is that I’m not one of those over the top, my daughter rules, she’s clearly better then everyone, I had her practice 3 hours a day while drilling her, she only wears top of the line & perfect, I might add, makeup, as do I, etc etc… Nope! Not me! I am not to be found anywhere on that scale of crazy. I really stand out, I mean really! I just don’t “fit in”.  My clothes aren’t all Roxy or Lou Lou or any of the other “name brand” clothes.  I do not think that I or my daughter is better then everyone, I’m nice to everyone, not just select people, I’m not living my life through my daughters, I don’t eat, think and breath only dance, I know that the world will not end if she doesn’t get the highest ranks in everything, &, well, I’m just pretty darn sure that most of “those moms” don’t like me, I mean at all! Gosh, it sure sounds like high school – lol!! There are just so many “politics” with this dance school, not sure if that’s the best word really, but you probably understand what I mean. It’s all about who you know, who does or doesn’t like you &/or your daughter, who chums up with the teachers, which students are the teachers favourites, etc. etc. I find it exhausting actually. It feels so much like playing games, picking favourites, signing up on the right committees, you have to look the part, act the part, jump through the right hoops, etc. I just really don’t want to play those games. It’s a bad system that promotes bullying, by the parents &, in turn, by the kids! You and your dancer have to be a part of the right cliques if you want to go far with this dance studio. I’ve witnessed so many children with broken hearts at this dance school, not just my own daughters, and it is heart wrenching! Oh, I also believe that all kids should have the opportunity to compete, if they & their parents want them to! 

I’m thinking that I probably shouldn’t be writing about all of this on here. I’m pretty darn sure that the people who would be super angry and offended don’t read this. But, I’m already on their naughty list. I guess that I’m being hypocritical, saying I’m quiet & that I don’t complain, but then complain like crazy here. I didn’t intend for this to come out in the way it did. I guess I needed to vent. I also need to just keep quiet & let my daughter enjoy this year. Also, not every single person at this dance studio is horrible. I think it’s the whole mamma bear thing, when you see your child hurting, you go into the protector role. I wish there was a way to fix everything, so that my daughter could be taken off of the permanently uninvited list of kids! I would take her to a different dance school so that she could have a fresh start, but I feel horrible a lot of the time, with my stupid pain, and I wouldn’t always be able to drive her to the city. It’s just so convenient going to the local dance studio in our town. 

I apologize for going crazy and venting. This and the previous paragraph are updated, since I can’t really un-post this!! I really do hope that she and all of the other dancers have fun tonight and do well. I also apologize again for my ranting. I truly don’t want to make things worse for her at this studio. I want her to have a fun year.

Here I am with another update! We just got home from the dance festival and my daughters class got gold. Yay yay!!

 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write

 

Surfacing 

The time will come

When courage stands up

To face the storm

That rages within me

The time will come

When hope emerges

To replace the doubt

That overpowers me

The time will come

When love shines through

To smother the hate

That now encompasses me

The time will come

When joy sings beautifully

To drown the sorrow

That threatens to consume me

The time will come

When peace stands calmly

To show my spirit

That all is not lost

The time has come

For me to be free

To allow my soul

To come up for air

JKC 

 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Oh Save Me From This Sleepless Night 

Oh save me from this sleepless night,

The pain, the fear, my dreamless plight.

Head on pillow, body weary

Cruel mind seeing thoughts to clearly.

My self-inflicted torture, I long to escape.

My brain, my thoughts, my minds landscape.

Oh precious slumber have you forgotten me?

Oh restless night how I long to greet thee.

To dream in peace, to still my mind.

To quiet the chatter, to leave chaos behind.

Oh save me from this sleepless night.

Mr Sandman please, end my dreamless plight!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Up And Down

Share, love, laugh and play

Cry, scream, fight and pray

Sing, jump, give and share

Hate, pain, fear and glare

Feel, enjoy, live and smile

Dread, fright, scorn and beguile

Trust, faith, hope and delight

Regret, dread, fail and spite

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Salvation

Searching my soul

Serving my spirit

Surrendering my sins

Surviving my shame

Sacrificing my smile

Sabotaging my sexuality

Sensing my struggle

Seeking my strength

Silencing my skepticism

Sparking my senses

Salvaging my sanity

Sharing my surprise

Savouring my success

Shinning my serenity

Saving my self

SALVATION!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

What Is Nerve Pain Anyway?? (Part 3)

Everyone who reads this knows by now that I suffer with nerve pain. But what is nerve pain anyway? And, how is it so different then other pain?  Aren’t our nerves what sends signals to the brain about pain? So, what’s the difference between regular pain and nerve pain? I’ve written about pain before, acute and chronic. But what is nerve pain??

The two main categories are pain caused by tissue damage, also called nociceptive pain, and pain caused by nerve damage, also called neuropathic painPain is also classified by the type of tissue that’s involved or by the part of the body that’s affected (chest pain, back pain, headache, etc.)

nociceptive pain: Most tissue damage occurs from an injury to the body’s tissues. The injury can be to bone, soft tissue, or organs. The injury to body tissue can come from a disease such as cancer. Or it can come from physical injury such as a cut or a broken bone. The pain you experience from tissue damage may be an ache, a sharp stabbing, or a throbbing. It could come and go, or it could be constant. Pain from tissue damage can be acute, For example, sports injuries. Or it can be chronic, such as arthritis or chronic headaches.

neuropathic pain: Nerves function like electric cables transmitting signals, including pain signals, to and from the brain. Damage to nerves can interfere with the way those signals are transmitted and cause pain signals that are abnormal (& bloody awful!!) Nerves can be damaged by diseases, trauma, certain chemotherapy drugs, and also as a result of stroke or an HIV infection, among other causes (as if those weren’t enough!) The pain that comes from nerve damage could be the result of damage to the central nervous system (CNS), which includes the brain (like my TN) and spinal cord. Or it could result fro, damage to peripheral nerves, those nerves in the rest of the body that send signals to the CNS.

The pain caused by nerve damage is often described as burning or prickling. Some people describe it as an electrical shock. Others describe it as pins and needles or as a stabbing sensation. Some people with nerve damage are often hypersensitive to temperature and to touch. Just a light touch, such as the touch of a bed sheet, can set off the pain.

Trigeminal Neuralgia, is the fun disease I get to live with (note the sarcasm!) My Trigeminal nerve (the biggest nerve in the body) was found with 2 large veins that were pressing into it, damaging its protective outer myelin sheath layer.  I had the Microvascular Decompression (MVD) surgery and the Neurosurgeon put Teflon into my brain, underneath these blood vessels to protect my nerve and allow it to heal. Problem is, the surgery didn’t work and I’m still here with a damaged and consequently misfiring Trigeminal nerve. I get horrible shocks and stabs of pain. The pain is intense and lightning like, and it can occur in my lips, scalp, forehead, eye, nose, gums, cheek, and chin on one side of the face. The pain can be set off by touching a trigger area or by slight breeze. Frankly, the pain sucks! It’s so so awful and so so hard to treat!! 

(The majority of the above information was found online at WebMD, I do not intend to plagiarize, just not sure how you do a bibliography for a web site!!)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Is This Paradise 

A fitful night of restless sighs

A silent night barraged by the raging noise inside my head

Words and thoughts and fears and regrets

A night where the disparaging voices can’t be tamed

Overtaken by reproachful thoughts of shame and guilt

Smothered by dreams of joy and hope

Pain and sorrow and faith and trust

Tumble together in a twisted truth

Is this paradise?

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

How Random…

🎉🎉Happy Birthday to my sister!!🎉🎉

So, I’ve been kind of off all week. I feel like the days have kind of been a blur. Nothing much has happened. It’s been a lot of the same old thing…I don’t know why I just feel so bla.

My daughter and I have gotten into the show “The 100.” We have been watching it all week! It is feeling like an addiction. It’s so easy to just watch and watch episodes back to back. We keep saying “well, just one more episode.”  We’ve managed to watch a season and a half in under a week! So crazy and so easy to do! I think that PVR’s and then Netflix (& all of the new streaming networks) have completely changed how we watch TV & movies. It wasn’t so long ago that there was a movie rental store on every street corner. Then you could “rent” a movie “on demand” from your home. Netflix wasn’t far behind. Now, we PVR our favourite shows, who even watches commercials these days?? We get our movies on Netflix or (a’hem, occasionally) download them ourselves. I actually miss watching previews or trailers (whichever you prefer to call them) before movies. They would keep me up to date about what is coming out soon. But now, who needs them? My husband just logs onto the play station network, then there’s a network (IGN or something?? Don’t quote me on this!) and you can watch previews of new releases to theatre, or new DVD releases, or probably whatever previews you’re interested in.  Frankly, you can pretty much watch whatever you want on-line now…My youngest daughter rarely watches actual “TV” now, she’s either on YouTube or Netflix. I had no idea where this conversation was going. Huh. It’s pretty crazy how quickly technology is changing things. I have kids whose ages are not that close & I can really see the difference between my kids. My four year old doesn’t know how to use a mouse, but he can navigate my iPad better then me. It just changes so so quickly! It’s hard to keep up. My kids &/or hubby help me whenever I don’t know what to do…with my phone, the TV, the WiiU, the PS4, my iPad, etc. etc… I haven’t even figured out how to add photos on this blog yet!! Well, one day at a time I guess…

And, on that note, I’m going to go to bed now! This whole conversation…how random!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

 Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Here’s Hoping Tomorrow’s A Better Day

Today I really don’t have much to say. 

It seems that time just quickly flies away. 

It’s now time to get ready to go to bed. 

The first thing I do, is think ahead,

And if needed, remember my TN tips!

Before brushing teeth, try to avoid your lips,

While applying Anbesol gel to your teeth and gums,

Then quickly brush your teeth, while it numbs!!

To wash your face use water that’s not too cold or hot,

I wash with pressure as it causes less pain, believe it or not!

Pat to dry, definitely don’t rub,

And whatever you do, do not scrub!!

Spray a light toner, if that’s something you like to do.

For night cream, again applying pressure works here too!

If the pain’s bad the toner will do. Lotion? No way! I will skip it!

And, for pain above the bad range? Just forget all of this shit!

Just take med after med after med,

Then throw your ass into bed!!

Don’t forget to have heat or get ice.

Lie down and pray for your sleep to be nice!!!

Hopefully you’re able to get some rest,

Good sleep helps you feel your best…

Well, that’s what I’m told anyway,

Here’s hoping tomorrow’s a better day!!

JKC

 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!    

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

I Feel Like I’m Going A Bit Crazy…

A strange day. I feel like I’m going a bit crazy.  So many intentions with nothing getting done. Just filled with bla, a little more bla, with a bit more bla on the side…I feel like there are so many things to do, yet nothing ever actually gets done. I just sit around in my messy house with ice on my face doing nothing. Sad really. It kind of makes me feel useless. Nothing is getting accomplished at all. I have these lists in my head, of all the things that I need to do, from things I want to write about, to laundry, to dishes, to de-cluttering. The lists go through my head, again and again, but it never gets done. I have bins of things that I need to go through, that I’ve needed to go through for a long long time. My kids rooms are overflowing with stuff, clothing, toys, just stuff. I have piles of books. I do love books, always have, but I have books everywhere, and far too many according to my husband!  I’m just feeling incredibly overwhelmed, yet nothing gets finished.  I feel like I’m going a bit crazy.  I have many great friends who help me, with emotional support, food, anything I need. Also, many offers to help go through all the stuff at my house. But, it’s embarrassing and I feel ashamed and, for some reason, I feel this bizzare urge to hold onto things. I feel like I’m going a bit crazy. Pain and depression hand in hand sucks! Really really sucks…don’t know what’s with me today. Don’t know what’s up with me anyway. Was going to write about something significant or meaningful or something…I don’t know.  But, it’s obviously not happening. Just a bit of self-pitty going on I guess.  Anyway, I’m going to stop now. I don’t think this is helping me right now…

Oh, did I mention that I feel like I’m going a bit crazy???

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!   

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!