Tag Archives: #pain sensitization

Is This Paradise 

A fitful night of restless sighs

A silent night barraged by the raging noise inside my head

Words and thoughts and fears and regrets

A night where the disparaging voices can’t be tamed

Overtaken by reproachful thoughts of shame and guilt

Smothered by dreams of joy and hope

Pain and sorrow and faith and trust

Tumble together in a twisted truth

Is this paradise?

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

How Random…

🎉🎉Happy Birthday to my sister!!🎉🎉

So, I’ve been kind of off all week. I feel like the days have kind of been a blur. Nothing much has happened. It’s been a lot of the same old thing…I don’t know why I just feel so bla.

My daughter and I have gotten into the show “The 100.” We have been watching it all week! It is feeling like an addiction. It’s so easy to just watch and watch episodes back to back. We keep saying “well, just one more episode.”  We’ve managed to watch a season and a half in under a week! So crazy and so easy to do! I think that PVR’s and then Netflix (& all of the new streaming networks) have completely changed how we watch TV & movies. It wasn’t so long ago that there was a movie rental store on every street corner. Then you could “rent” a movie “on demand” from your home. Netflix wasn’t far behind. Now, we PVR our favourite shows, who even watches commercials these days?? We get our movies on Netflix or (a’hem, occasionally) download them ourselves. I actually miss watching previews or trailers (whichever you prefer to call them) before movies. They would keep me up to date about what is coming out soon. But now, who needs them? My husband just logs onto the play station network, then there’s a network (IGN or something?? Don’t quote me on this!) and you can watch previews of new releases to theatre, or new DVD releases, or probably whatever previews you’re interested in.  Frankly, you can pretty much watch whatever you want on-line now…My youngest daughter rarely watches actual “TV” now, she’s either on YouTube or Netflix. I had no idea where this conversation was going. Huh. It’s pretty crazy how quickly technology is changing things. I have kids whose ages are not that close & I can really see the difference between my kids. My four year old doesn’t know how to use a mouse, but he can navigate my iPad better then me. It just changes so so quickly! It’s hard to keep up. My kids &/or hubby help me whenever I don’t know what to do…with my phone, the TV, the WiiU, the PS4, my iPad, etc. etc… I haven’t even figured out how to add photos on this blog yet!! Well, one day at a time I guess…

And, on that note, I’m going to go to bed now! This whole conversation…how random!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

 Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Here’s Hoping Tomorrow’s A Better Day

Today I really don’t have much to say. 

It seems that time just quickly flies away. 

It’s now time to get ready to go to bed. 

The first thing I do, is think ahead,

And if needed, remember my TN tips!

Before brushing teeth, try to avoid your lips,

While applying Anbesol gel to your teeth and gums,

Then quickly brush your teeth, while it numbs!!

To wash your face use water that’s not too cold or hot,

I wash with pressure as it causes less pain, believe it or not!

Pat to dry, definitely don’t rub,

And whatever you do, do not scrub!!

Spray a light toner, if that’s something you like to do.

For night cream, again applying pressure works here too!

If the pain’s bad the toner will do. Lotion? No way! I will skip it!

And, for pain above the bad range? Just forget all of this shit!

Just take med after med after med,

Then throw your ass into bed!!

Don’t forget to have heat or get ice.

Lie down and pray for your sleep to be nice!!!

Hopefully you’re able to get some rest,

Good sleep helps you feel your best…

Well, that’s what I’m told anyway,

Here’s hoping tomorrow’s a better day!!

JKC

 To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!    

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

I Feel Like I’m Going A Bit Crazy…

A strange day. I feel like I’m going a bit crazy.  So many intentions with nothing getting done. Just filled with bla, a little more bla, with a bit more bla on the side…I feel like there are so many things to do, yet nothing ever actually gets done. I just sit around in my messy house with ice on my face doing nothing. Sad really. It kind of makes me feel useless. Nothing is getting accomplished at all. I have these lists in my head, of all the things that I need to do, from things I want to write about, to laundry, to dishes, to de-cluttering. The lists go through my head, again and again, but it never gets done. I have bins of things that I need to go through, that I’ve needed to go through for a long long time. My kids rooms are overflowing with stuff, clothing, toys, just stuff. I have piles of books. I do love books, always have, but I have books everywhere, and far too many according to my husband!  I’m just feeling incredibly overwhelmed, yet nothing gets finished.  I feel like I’m going a bit crazy.  I have many great friends who help me, with emotional support, food, anything I need. Also, many offers to help go through all the stuff at my house. But, it’s embarrassing and I feel ashamed and, for some reason, I feel this bizzare urge to hold onto things. I feel like I’m going a bit crazy. Pain and depression hand in hand sucks! Really really sucks…don’t know what’s with me today. Don’t know what’s up with me anyway. Was going to write about something significant or meaningful or something…I don’t know.  But, it’s obviously not happening. Just a bit of self-pitty going on I guess.  Anyway, I’m going to stop now. I don’t think this is helping me right now…

Oh, did I mention that I feel like I’m going a bit crazy???

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!   

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

And You Find You’re Standing Strong

Do you believe in coincidence?

Or things happening by chance?

Do you believe in destiny?

What’s behind each circumstance?

Do things happen for a reason,

Like they were just meant to be?

Do you find yourself arriving

In a place you didn’t foresee?

Still somehow you can sense

That you are right where you belong.

Then things all come together,

And you find you’re standing strong.

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!! 

Bla Bla Bla…Goodnight!

Not with it today. It’s been a strange day. Feel like I just got up and now it’s bed time and I don’t know how that happened. Just blinked and it’s time to start getting ready for bed. It’s such a strange feeling, like the day snuck past when I wasn’t looking. So now I’m sitting here feeling just as bla and out of it and exhausted as when I first woke up. I’ve hardly moved or done anything, other then get my girls from school and dance. I just have this yuck feeling about me,    I can’t seem to shake it. I don’t feel like moving or talking or doing anything, not even writing. Just plain old bla…

I know, I know, yesterday all I wanted to do was stay in bed. Well, today I just want to go back to bed. My whole body is just achy and sore. My face is on fire and being shot through with pain. I’m feeling super tired out and blechy. I’m just plain bitchy tonight. So I think that I am heading to bed now. I’m allowed an off day or two right??  Well, my own answer is, ” yes! yes! yes!”  

And on that note, bla, bla, bla…goodnight!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!  

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!  

Today I wanted To Stay In Bed

Today I wanted to stay in bed,

To pull the covers up over my head.

I was ready to sleep the day away

My mind felt clouded, all dull and grey.

I didn’t want to open my eyes,

And from my bed I didn’t want to rise.

I knew eventually I’d have to get going,

But exhaustion on my face was clearly showing.

Don’t we all want a gimme day?

A day to do whatever you may?

Time to sleep or read or watch TV,

No rules about how you’re supposed to be!

I don’t think that I’m the only one,

Who wants a day when nothing gets done!

Perhaps a day for yourself isn’t so bad,

Without one I’m afraid I might go mad!!

The moral of my ramble is to honour your self!

Huh…What the hell will rhyme with self????

(Elf, shelf, wealth…I got nothing…)

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!