Tag Archives: #meditech

Yawn

Well, we’re home. Although, looking back, it’s probably not a good idea to write on here that we were out of town for the long weekend. Not that I have this big readership of people. Also, even if I did, I’m pretty sure that my actual address isn’t available on here. But, regardless, it’s probably not a good idea to write about being out of town. 

And now, speaking of being out of town, I apologize for the pathetic posts I made over the weekend. I had an awful wifi over the weekend. We tried to use my husband’s phone as a wifi “hot spot”. This didn’t work, it kept going on & off. I was trying to write on the iPad using his phone’s wifi, but the connection wasn’t strong enough. Every time I tried to save anything it would disconnect. Then I tried to use my phone and the same thing continued to happen. So, my posts were all pretty disjointed…

Yawn! Now that we’re home, I’m pretty tired. We always have a good time at he cabin, but I come home tired. My brain is making a valiant attempt at pushing past my skull and oozing out through my ears, eyes and nose. Too much pressure! And, my face won’t let up. Arg… I can’t focus well. Too much ouch right now! I need to get ready for bed and have a long sleep tonight. It feels like it should be midnight right now. I actually slept fairly well at the cabin, probably because I added one of those gel-infused memory-foam mattress topper things to our bed. I really enjoy our time at the lake, but generally I don’t get a great sleep when we’re there. I always sleep best at home, in my own bed, but I definitely had a better sleep with the mattress topper. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Strange, Where The Mind Goes…

I had a full day today. Went to Costco with my mom (I know that doesn’t sound like much, but it took a long time…there’re always so many things to check out – often distractions that you don’t really need to buy or, for that matter, even bother looking at – but, I take the time to look anyway! Also, I always end up buying more than I go for! Everything always seems like “Oh, it’s such a good deal!!” And then you buy something you didn’t really need or want in the first place – lol). By the time we left Costco and went to my parent’s to drop off my mom & pick up my little man (he got to hang out with Grandad, instead of being stuck at boring Costco) it was close to 5:00. We drove home, just in time to be engulfed by rush-hour traffic! (Well planned, right!?) By the time we got home, my hubby got home only about 30 minutes or so after us. Before we went out, to see the new Avengers movie, my wonderful family gave me a homemade coupon book full of things that they’ll do for me whenever I “use” or “hand-in”a coupon. Including a drawing course from my hubby!! (Yay me!!) I’ve dabbled a bit with water colour painting among other mediums. I really enjoy it. I grew up always always wishing I could draw (my sister is such a good drawer and I envied it so so much!!). I’ve felt like one of those people who could basically draw stick-people and not much more. (Sometimes even my stick-people were hard to decipher!!) I was always interested, but felt like I couldn’t do anything artistic! Like I had a big fat zero when it came to artistic talent! But, it was something that was always in the back of my mind, something I wanted to do, but didn’t follow through with. When I did the water colour courses and the creative journaling class I always felt good, or right somehow…not sure if that makes sense. I just feel this tug from my chest that pulls me towards writing and painting and drawing, well, just to “create”. It feels like home. The problem is my unstoppable tendency toward self-criticism!! In those art classes and when I muddle around at home, I still find myself struggling. Drawing is not easy for me and I have to work at things for a very long time. I realized that I am missing some of the basics. In school, once you get to a certain age, art class becomes optional and only the “talented, artsy, kids” continue with art class. This is sad because the “how to” of drawing is taught to the kids who continue. They learn the “tricks” or rather the skills needed.  They learn how to draw! The rest of us just shake it off, with a little shrug or self-conscious giggle, when asked if they can draw. But, the more I read, the more I see that drawing is a skill. Yes, some people are naturally artistic and talented, but that doesn’t mean the rest of us just “can’t draw”. No, it means we were never taught to draw! So, my point is, that I love the idea of drawing and I lose myself, not just while writing, but when I paint or do anything “artsy”. I’ve wanted to take a “how to draw” class for a long time. I’m hoping that I can find a class that will work out, time-wise, for me!! And, it’s super late and I don’t know how I went from a quick account of my day to a talk about art…strange where the mind goes!

Oh, before I post this, I want to thank everyone for the warm birthday wishes! Much much appreciated. I’m blessed to have such good family & friends😍

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

I Hate The Word Hate…

Another day with a migraine!  It hasn’t stopped all bloody week! Ug!!! I’m so so f…ing wanting it to get the hell gone!! Sorry for the language. I’m just feeling at my wits-end. My face is worse today than it’s been in quite some time. I’m not sure why. I wish I knew why. I wish there was a way to know…when it would strike, how bad it would be, how long it’s going to stay…Well, I do know some triggers; the number of hours of sleep I get, how much stress I am dealing with, a cold wind or often my car’s air conditioning, a peck on the cheek, a touch, probably how bad other things are, like my migraines. The thing is that most often, it’s completely unpredictable. Sometimes none of these things lead to pain. So, it is hard to know, day to day, where I’ll be at. So, today, it’s bad. Really bad. And, if I haven’t mentioned this yet, I HATE IT!!! It’s funny, I hardly ever used to use that word, “hate”. I have had talks with my kids about that word. I talked to them about how harsh, absolute and cold it is. When I hear it, especially when it’s about another person. I can feel myself physically cringe. Yet here I am using it over and over again! Yes, it’s not directed at someone, but it is still the same word and carries the same meaning with it. All of the same connotations. Allowing it into my day to day vocabulary brings that negatively with it. I need to find a way to dig myself up and out of the pile of negativity that I’ve been drowning in. The negativity is easy to see, especially if you have read a few of my posts. The problem is that I’ve allowed it to seep into everything!  I feel like I’m infused with negative energy. As if I’m just marinated in negativity! I see it everywhere now. I get upset easier, I get frustrated, overwhelmed, angry, defensive… I am also getting less and less adept at hiding everything. I’ve always been very good at the whole “I’m okay”, “I’m fine”, with the smile on my face, type of person. But now, it’s getting harder and harder to hold it all together. The other thing is that I have stopped caring about things, stopped putting effort into things. I find myself dragging myself from point A to point B. I currently have no motivation. On days like today, I’m just done. Period. Hope my birthday brings a better day with it…I guess I’ll see tomorrow.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

MIA Post…

My Mother’s Day poem is gone!!!😔 this makes me super-d-duper sad. I was chatting with someone in the “support” department, but now I can’t find where that is. Clearly I’m a tech genius! I’m not sure what gave my prowess for I.T. away…I’ve been trying to keep that side of me a secret, but, alas, it’s been revealed to the world. Please don’t overwhelm me with texts, phone calls and/or emails asking for assistance with your various devices. I wouldn’t want to be used for my tech skills 😂! Meanwhile, I’m so tech savvy that I can’t find the chat thing where I was just talking to the guy about my post…I feel like this happened before and I found a way to restore it. The weird thing is that it’s just gone. I didn’t accidentally delete or anything. It’s just “poof” gone. I probably wouldn’t have even noticed if my mom hadn’t gone back to read it. She texted me asking why it wasn’t there anymore. Of course the post I lose is one of the ones I enjoyed, not just one like yesterday’s, when I’m feeling so bad that I just basically write three or four sentences and call it good. So now I should probably figure out where the support chat thing disappeared to! Hopefully I will be able to add more later!!

Well, the Mother’s Day post is still MIA😞. It makes me sad. Also, I don’t really understand how it can just be gone. I’m the only one who is able to add or delete posts to my blog, so how in the world does an entire post just “poof” vanish? It’s very strange. The tech person who said that he’s looking into it hasn’t gotten back to me yet. I know that the world won’t end if it’s not recovered. It just frustrates me. The poem was my Mother’s Day “gift” to my mom and I don’t have it written down anywhere else 🙍🏼 Also, it messes up my “post every day” challenge I’ve made for myself. I haven’t missed a day yet, but now I no longer have one of my posts…And, yes, I’m sorry to say this is all I’m going to write about today. I’ve had this a migraine 💆🏼for two days straight now and it makes it extremely difficult to focus. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Dare To Dream

From the vault…


Open your mind and close your eyes,

Let your dreams take you away.

Spread your wings, fly up and beyond.

Where will you go today?

Dare to dream and set yourself free,

Leave your fears behind.

Allow yourself to float on the clouds

And feel yourself unwind.

Visit a tropical island

Or swim in a waterfall.

Climb the highest mountain.

Do anything at all!

Live your dreams from day to day.

Don’t put limits on yourself.

Believe that you can do it all

And your life will grow with wealth.

So keep your dreams alive and true,

By reminding yourself each day,

Just close your eyes and say these words,

They’ll lead you on your way…

My spirit dances with the wind.

My soul floats on the sea.

My heart sings songs of joy and love.

This is the place for me.

JKC

Yes, I changed the last two words. I’ve always wanted to, but how do you erase paint????

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Everything Will Be Okay 

Tired tired tired today. Just don’t feel up to much. We’re going bowling tomorrow for my little man’s birthday. I’m hoping that I’ll feel better, have more energy or something. Because just thinking about running a 5 year olds birthday party leaves me exhausted. I know that sounds negative, but I get tired so so easily. Grocery shopping leaves me exhausted. Cooking supper, washing dishes, just day-to-day functioning leaves me done in. So I look at things like tomorrow’s party with mixed feelings; anticipation, because it’s his first time bowling and first birthday party that he’s invited friends from school to and he’s so so excited and I just love seeing him so happy and excited. And, I also feel some dread or maybe worry about how I will feel tomorrow, physically I mean, both in the morning and after the party. I do know that worrying won’t help and, if anything, it makes things worse. I know that, even if I end up having a rough day, I will get through it. I will be fine. The party will work out fine. Everything will be okay. I will just repeat that mantra a few times, or over and over, while I go to sleep. “Everything will be okay.”

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

This Joyful Mask

Around and around we go again.

Will there ever be an after?

Will there ever be an end?

It comes, it goes.

It starts, it stops.

I try to hide it, but I think it still shows.

This joyful mask I wear.

A smile or laugh, to hide behind,

When the pain’s too much to bear…

JKC
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Happy Birthday Baby!!

Happy Happy Birthday to my baby boy! 

Today you’re five years old.

So have a birthday you’ll enjoy!

Eat cake and ice cream and have a super day.

Enjoying presents, playing games 

Having everything your way!!

Wherever you go and whatever you do,

Remember you’re my special little man

And that I’ll always love you!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

The Writing Takes Care Of Itself

My little man turns 5 tomorrow! I can hardly believe it! He’s my baby. It’s crazy!! I don’t know where the time went. I seriously don’t… I know people say things like that all the time, but I feel like I have a lot blanks over the past few years. Due to my medication, I think… It’s so so frustrating. It makes me so angry! Not just angry, sad. It makes me so sad. I want some normal. I am too tired of all of this garbage! I suppose I don’t forget it all, when I stop and actually look back. I can slowly fill in the blanks. Some is fuzzy and if I make an effort to recall things, more comes back to me. There are some things lost though. My short-term memory is bad. I forget things I just read or said. I lose my train of thought super easily! I forget that I’ve watched movies. Sometimes I lose the entire movie, like everything!! Other times, if I think about it or watch it again, it’ll come back to me. I forget emails that I read. Birthday party invites my kids show me. If I don’t put the info into my phone right away, I may forget all about it. My hubby and I can have a conversation about, maybe phoning the dentist to make an appointment for one of the kids and if I don’t write it down, I will easily forget all about it… I must be super frustrating to live with! Lol! I try to laugh about it, but I wonder if all of this damn medication is doing more harm than good! Shouldn’t the positive aspects of a medication (like pain relief, for example) out weigh the negative side-effects? Because, I don’t think my pills have that balance, the good results being higher than the bad… I was planning on having this discussion with the pain specialist. To decide if I should go off of a number of my meds. Many people have asked me about medical marihuana. From what I’ve read, the long term effects of medical marihuana use (am I even spelling that correctly??) seem to be less harmful than that of some of my current medications. I’ve read that it has helped some people with MS as well as some with TN. There is so much stigma about this, but frankly, if it helps, that’s all I care about!! However, it’s pretty damn hard to have this conversation with a Dr who is continuously cancelling and rescheduling your appointment!! Anyway, how I went from my son’s 5th birthday being tomorrow to medical marihuana is a bit of a mystery! I guess that is what you get when you just write whatever’s on your mind. The writing takes care of itself and I say whatever I needed to say. And now, what I need to say is that I’m knackered (I love this word!! I have a good friend who uses this all of the time and I’m trying to adopt it as my own! I don’t know if it actually sounds like “me”, but it is an apt description of how I’m feeling! It just seems to cover it all, from being physically tired to being mentally and emotionally tired as well. I just love it…is that strange?? If so, oh well! Lol)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Unrest

I am filled with a Strange sense today, like something important is astray

I have an unsettling feeling of unease, a foreign scent within the breeze

Mid-step it makes me pause, yet I can’t quite ascertain the cause

It leaves me with a wary heart, my body heavy in each and every part

I wish I could put it into words, or find some way for it to be heard

It’s everything and nothing mixed as one, it’s building up, yet remains undone

So if you see a slight hitch in my step, or sense me lacking my general pep

I can’t yet give the answer why, as it floats away from my conscious eye

I’m left without answers to this test, and this sense of unrest upon my breast

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!