Tag Archives: #medication

Before Her Scars Had Healed

She rakes her nails along her skin

Needing to find a way to feel

She’ll dig and dig until there’s blood

To remind her she’s still real

Without the pain she’s just a shell

Existing in an endless void

Spirit buried deep in her heart

Any semblance of a child destroyed

Her body’s riddled with scars

Self-inflicted over the years

They mark her inner struggles

They mask her deepest fears

She taught herself to shut down

To never show her fear

She gradually became numb

She never sheds a tear

Regardless where she finds herself

She’s stuck behind her shield

Constructed very long ago

Before her scars had healed

JKC

(Before anyone goes off on me and gets all worried about me. I’m not writing this about my experiences. We’ve been going through junk in our house, because we have so much to clear out, and I found a painting that a young lady painted for me back when I had a career. This has put her in my mind, remembering her story and her pain and her scars. She’s been in my head…)
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Bla Diddy Bla Bla

Argh!!! I can’t write I can’t sleep I can’t sleep and write. Staying up late is a super dumb dumb move. I had a beautiful poem written. Then, I managed to fall asleep. Then, my hand rested on the backspace button. Well, the result is probably obvious…But, over half of the poem, gone, kaput, bye bye…aaaaaaahhhh! Sorry folks, I have to redo too much of the poem and it’s stupid late. So, this is all until tomorrow, when I finish the poem. 

I’ve never seen a purple cow, I never hope to see one. But, just the same, I’d rather see a purple cow then be one!!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Life Drags On

The past few days have been bad. I can’t even remember what I wrote last night. I fell asleep numerous times while writing.  I feel like all week has been nothing but negative negative negative…I try not to let the pain control it all. Sometimes it’s just all-encompassing. When it’s this bad day after day, I just can’t get past it. It runs the show. I’m exhausted and wiped. I find it hard to come up with ideas of what to write about. This morning when I was taking one of the pill bottles off the shelf, the lid wasn’t on correctly and the entire bottle spilled!! Of course it was a brand new prescription filled yesterday, a triplicate prescription that is not easy to just re-fill. So I had to dig around my bathroom carefully to find 100 tiny, yellow pills…not fun! Nope, not fun at all! These pain days just seem to drag on and into each other. It’s easy to forget where I am in them all or what day it is, especially when the kids are out of school. The pain drags the days into weeks into months. Am I getting any closer to anything? I wish I knew. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Young Love

Do you remember young love? 

With its ups and downs,

Like learning to fit someone else’s glove.

Do you remember how that young love felt?

Its awkwardness and shyness, 

Times you were sure your would heart melt.

Can you recall that ache in your heart?

Thinking only of him.

Each and every  time you were apart!

Do you remember the times of joy?

The love and the laughter.

Certain “this time” you’d found the right boy. 

Can you still picture when your heart was broken?

Many shattered promises, tears and anger.

Confused and abandoned, too many things unspoken 

Have you witnessed your a loved one go through this?

It’s normal and expected. 

Not one more broken heart is what I truly wish. 

DJKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!
Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Over And Over…

I had an attack of the pain today. Over and over again. The left side thought it’d make an appearance and try to out-do the right side. Over and over again.  It was a pretty close contest. I’m not even 100% sure which won, but it may have been the left side, which is a first! It’s currently shooting down my cheek and across my jaw. Over and over. It feels like it starts in and around my ear, like someone’s has jabbed an ice-pick into my ear, then they pull it out and hammer it back in, out, in, out, in, over and over again. It’s just one jab after another. It is just awful. I HATE it!! I’ve been trying to act like everything is “okay” all day, but it’s just too damn bad right now. It is so jarring and constant. “Jab! Jab! Jab!” Over and over. I had hoped that the laser would be helping by now. I had so much invested in it. After all I read about it, I was super hopeful. Yet, days like this fill me with doubt. Over and over…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Happy Canada Day

Today is Canada day. I haven’t actually done much though. Went to the grocery store, Starbucks & bought a fan. Oh, I also checked out the market when my hubby got home from work. There were not many options yet, as far as produce, but we did get some fresh carrots (you know, the kind that remind you of what a real carrot is supposed to taste like!)  They had cherries and some other berries. Plenty of “home business” type stands. That was all I had in me today. Pain is just bad and still is. So my hubby walked to four seasons park with the kids to watch the fireworks 🎇🎆. I felt guilty not going, my daughter said, “but we always go as a family mom!!” But I just felt done. And still do. So, I’m off to bed! 💫Happy Canada Day💫

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

No Internet…

This will likely be a fairly short post tonight. Our wifi, Shaw box thingy & our phones are down for some reason. My hubby phoned Shaw & they are supposed to be fixing it soon (whatever that entails…lol!) So I’m currently using my data to write something quick; after-all I can’t go a day without posting right?! Well, sorry to say, but this is it for tonight. It’s a rough night, pain-wise, and I don’t want to use too much data…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

She’s Coming Home – Yay!!

My daughter’s 👸🏼plane ✈️arrives in about an hour⏳. 🌙Tonight🌜🌛yay🌙Her week away 📅is coming to an end👏🏼 (I’ve been missing 😕her and am clapping because she’s coming home🏡!). Tomorrow we will get to hear💬 all of her stories📖. She will show us her photos 📷and momentos🎒🎁. We will hear👂🏼 all of the new memories 💭she and her friends 👭👭have made. I’m quite relieved ☺️that we had a busy week while she was away🚌(if this trip is anything like our oldest daughter’s, there were plenty of bus rides and sleeping in museums…that’s another story!)  All of the “to do’s” 📝we had to get done for my oldest daughter’s grad 🎓kept me busy⌚️, which meant that there was not a whole lot of idle time☕️, (trust me, coffee applies here!!). So, I wasn’t stuck sitting around coming up with all of the possible worst case scenarios 😷- lol! (Believe me, I am pretty creative ✏️and can dredge up some pretty bad scenarios 😈) I stayed home🏠 with our little man👦🏼, while my hubby👱🏻 and oldest 👩🏼went to pick her up. I can’t wait⏰ to see 😍her and I’m looking forward to her hugs & kisses ❌😘❌and her over-excited 🎉descriptions about her trip‼️ 

  
To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

You’ll Forever Be My Love 

 I’m feeling teary right now, after it’s all done,

The pictures of you bring a lump to my throat.

My chest feels tight and it’s hard to breathe,

But my words to you have yet to be wrote.

How can I find the best way to let you know?

What do I say to make you see and understand,

How so very proud I am of all you do?

And how you no longer need me to hold your hand.

You’re beautiful and smart, filled with wit and sass!

You make me smile and “like me best when I’m tired!”

You’re not afraid to be yourself, to speak your own truth,

Your fearlessness is something I’ve always admired!

We laugh together and cry together,

You’re both my baby and best friend!

Wherever you are and whatever you do,

I will be here for you until the end!

Graduating does not only signify the end,

It presents the gift of a new beginning!

Your graduation marks a great achievement,

So move forward proud and grinning!!

Oh my dear dear daughter I love you so,

So much more than you can ever conceive of!

I cherish every moment I’ve had with you,

Good or bad, you’ll forever be my love💘!

JKC


(If the first photo looks weird because of the hand on her shoulder, it is because I cropped her boyfriend out of the photo, as I don’t have permission to post his photo on here!)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Too Sleepy 

I’m super-duper tired today! We all are actually. Had a very quiet, nothing kind of day. We certainly needed it. Yesterday was a long day. It felt like one of those kind of events that you take a long time to prepare for and then it feels like you blink and it’s over. That’s what today feels like. The day after and it feels like we did so so much leading up to my daughter’s grad and now it is just done. Weird. I’m just super tired. I’ve had my iPad open all day on the WordPress ap to write something, but I have no energy. I kept glancing at this all day, but hardly wrote anything, as you can clearly see. So now I’m going to head off to bed. Super sorry, but this is all I have for today. I’m on the verge of sleep so I’m going to actually post this and sleep. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!