Tag Archives: #medication

Lots To Do!

Had a pretty full day today, which is good and bad. It is good because if I get a couple things finished, I feel like I accomplished something!! But it’s bad because when I overdue it I tend to pay for it with worse pain later!

I went to Michaels (did I spell that wrong??? It looks weird😕🙍🏼) today to buy the supplies that I need for my beginners drawing class that starts on Monday. I am super excited about this class, but at the same time I’m also pretty nervous!! I’m not that great at drawing ! lol – I guess that’s why I’m taking the course!  The strange thing is that I have always always wished that I could draw. I have a talented uncle who has used his art, numerous times in his life to support his family. My sister is also very artistic. It always seemed to come easily to her, which, I must admit, made me super envious!! Sadly I’m not naturally gifted with the artist genes. I’ve taken a few watercolour courses and loved it, but I always thought that if I knew more of the basics about drawing, I could improve my painting skills. And, I just feel like I should be drawing. It’s kind of strange thing really and difficult to explain. It’s just that For as long as I can remember I had this sense of being meant to do this, somehow mixed in with my writing…maybe this class will lead to the fulfillment of that dream. And it gets me out of the house, once a week, to do something fun for myself, which is part of my pain dr’s prescription!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.
Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Did this post not actually upload last name??? Huh…weird!!

Reconnect With Your heart!!

Can I talk to your spirit

Can I awaken your soul

Can I break through your shell

Or is your heart made of coal

Do you feel like you’re drowning

Sucked down deeper each day

Do you grasp for a life-line

Or just look the other way

Have you given up hope

Certain you have no choice

Feeling manipulated and hurt

As if someone’s stolen your voice.

It takes courage and faith

To reconnect with your heart

It may not be easy

But it’s a great poace to start

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Ewwww & Awwww…

So I have a few photos that I was going to post tonight. I’m just trying to decide which to post first. One is something that makes you respond with, “awwwww!”  The others elicit a completely different response, it is “ewwwww!!” Now, do I start with the cute or end with it. I kind of feel like when you end up with the positive photo in your head you will be left with something better to focus on. So, based on that amazing explanation that, frankly, I pulled out of no-where, I will start with the “Ewwwww!!” response photos first! I have a question that goes with them. I’ll write it under the photos. If anyone has any information on this kind of stuff, I’d sure appreciate it or even where to look to find more info. Also, if it is what I think it it, should I have a Dr look at it??

  
So, this is the back of my upper arm. It could be in better focus, but it was just really awkward to take these photos. The question is, “Is this a spider or bug bite of some kind??”  When I woke up with it yesterday, I just thought I somehow bruised my arm and couldn’t recall how (which does often happen to me!!)  But then, I was looking closer and asked my girls (hubby’s out of town again😓) if they think it could be a bite of some sort and they said it did, so I took a couple photos! Answers/opinions appreciated!! Lol!!

Now, this picture is just cute…really. I just believe it will be a nicer final image to carry with you. Enjoy!!


Who needs a pillow when you have a squishy Strawberry Shortcake ball?? She, Our Aggy puppy, actually fell asleep like this!! So so so adorable 😘

PS. Sorry about last nights strange post…it was a rough day and a far far worse night. I was so exhausted I fell asleep a few times while writing and I was so out of it and the pain was just too bad and my bedtime meds had already made me somewhat zoned out of it…well, not somewhat…really out of it and so so tired! And, I hadn’t waited until my writing was done, before taking my medication, as I generally do on most occasions!! So, we’ll just look ahead or at least be in the current moment, not in the past playing the “I should have or could have…” card and/or the “what-ifs…etc.etc!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

My Whole Story 

Living in a bubble in my isolated world

Where up is down and yes means no

All meanings have been swirled

Moving through the fog inside my cluttered mind

Where everything seems blurry

And the truth is hard to find

Searching through the rubble inside my pain-filled past

Where maybe there are answers

To bring understanding at last

Looking ahead at how my life may unfold

Where maybe I’ll be free of pain

For my whole story has not yet been told…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Zzzzzzzzzzzzzzzzzzzzzzzz…..

Absolutely the shortest post. It’ll likely be far shorter than most!! My face hurts, my head aches and I’ve caught a cold now too. My nose just won’t stop running, I don’t know what to do…I’m falling asleep while writing this, and it makes it hard to do. OH POOP!  I just dropped my iPad because of how tired I am, and that’s the scoop!!! I’m saying goodnight now, sorry this is so short. It’s all I’ve got right now, I feel so tired and out of sorts.

Zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz..

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Too Much Tonight! 

Okay, so this has to be super short. My pain is so high right now. I’m so tired of his same old song and dance. I just report the same thing over and over, just like a broken record! Today is exceptionally bad. It’s on both sides of my face, in my jaw, guns and teeth. It’s all the way up passed my eye on the right side. My medication is making me feel like a zombie. My hubby says that my eyes look pin-pricks again. I just can’t do this anymore tonight. I seriously need to lie down. I apologize for how short this post is. Hopefully tomorrow is better.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Dr Suess

Dr Suess is in my soul

To rhyme like him is quite the goal

It’s one I’m sure I’ll never meet

But at least I’ll try to find that beat

He was the king of talking in rhyme

He must have done it all the time

The words he chose just always fit

I wonder if he even had to try a little bit

He left behind a legacy

So many books for us to see

I’ve read them  to y girls and my little boy

So many books for us all to enjoy

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

With An Ouch Ouch Here…

I feel like I am getting sick. The back of my throat just feels like “ick”!

My brain is pounding in my head. I think I need to go to bed!

My eyes are red and really dry. My mood’s darker than the night sky.

I think I may have done too much. My face is too sore for even me to touch!

I hate it when it gets this bad. It just makes me so bleeping mad!

Some days I really want to scream.  It’s so much worse then anyone could dream!

So instead of complaining to you on here, or watching my husband drink a beer.

I’m going to lie down in my bed. And rest my pain-filled face and head‼️

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Then Aggy Said, “I Really Really Hate Baths…”

You know I hate bath’s right??

Our poor little girl. She just gets so so scared when she’s in the bath. I’m not sure why. Maybe something happened when she was little…well, she’s still little now, obviously (that’s my daughter’s hand on her back, so you can see how little she is). I just meant before she was found (all alone, in a back alley in down town Edmonton, the size of a grapefruit, all matted and dirty and starving and scared🐶🙍🏼😓). I just wonder if she was thrown into a bath or, even worse, held down in one. (I know, way to jump to the worst case scenario…!) I suspect that something bad happened to her because she gets really scared. Really really scared!!! The first time we gave her a bath, at my mom’s house, she was so so scared, she  practically clawed herself all the way up my daughter, in an attempt to escape. She was crying and shaking and whimpering. The poor little girl. Needless to say, that wasn’t a very long bath!! She had been playing in the sand at the beach that afternoon and she really needed to get cleaned. Especially because she often sleeps on the bed! We did our best, but once we saw how scared she was we didn’t make her to stay in the bath for long. So, she still isn’t a fan of baths (as you can see in the photo) but she’s getting better. She doesn’t cry for the whole time anymore. She still shakes and does a horribly sad, quiet little whimpering, but it’s gotten a bit better. Baby steps, right??

P.S. Yesterday at Mulhurst Bookstore I said that the owners of the store know my mom’s friend Kathy, I was thinking of the wrong Kathy. The one that they were talking about is a very kind lady, who, indeed my mom knows. She is an Anglican priest, as is my mom. She and my mom did the baptismal service for my little man. She has since retired.  My mom also is very close to another Kathy, who does amazing fabric art. I mean amazing!! She is so very talented. I know she has a website, but I can’t think of it right now. I’ll ask my mom, then let post it.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Neat Little Book Store!

Had a good day. Carol told us about a neat, gently-used bookstore in Mulhurst (it’s called Mulhurst Bookstore). Taylor and I went together to check it out. It was owned by a nice couple probably about my parents age. Well, no, they probably a bit younger. They were very kind and helpful. They went out of their way to try to track down a couple books for me. They made a fresh cup of Starbucks coffee for me (which I love. They also have pie. I was just into the books & small gifts though). The store itself used to be a church and it is very beautiful and the feeling as soon as I entered was very calming and soothing. I’m a book freak and so is my Tay Tay, so I could easily spend hours in a store like that!  After chatting, they ask me if I’m Carhy’s (not saying the last name) daughter and I said “No, but she’s my mom’s best friend!!” Such a small small world we live in! So, needless to say, I spent too much money!! But it was nice, no regrets!! We arrived at 4:00 and left just after 5:00 (they closed as we left – lol). I’m very glad that we went. I had a high pain day and wasn’t going to go, but I forced myself and I’m proud of myself for going anyway!! Check it out if you’re ever in or around pigeon lake!! (www.mulhurstbaybooks.com)

And now my pain is so bad that I have tears in my eyes. This crazy on and off again service is super annoying!!! I need drugs to try to douse some of this pain! Night all!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!