Tag Archives: #medication

I Want My Brain Back…

It’s 10:00 and I still have a lot to do to get ready for my early flight on Tuesday morning. Tomorrow is busy, with my art classe in the evening and some running around that I don’t really have a lot of time left for. My oldest wants a Halloween costume and my youngest needs knee pads for dance (she does some drops to her knees that are hard enough to be causing bruises, so we need to buy her some, to protect the bruises that are already bugging her and so there are no new bruises!!) However, I am a slow packer. I don’t know why or what’s happened to me, but I seem to be slow at everything…  It doesn’t matter what it is, my thoughts are all over the place and I sure miss my “normal” brain. I’m tired of losing my focus mid-conversation, mid-sentence! I’m tired of the bigger scheme, where memory is concerned, forget entire conversations or movies or…basic things that are automatically assumed have slipped away. Please don’t come to me saying “you promised…” Because, believe me, if I didn’t write it down, I may forget all about it. 

Damn-it! I just want my brain back!!! 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Dogs Dogs Dogs

So, this entire week has been about taking care of the dogs. One with a really really bad ear infection, as high or as bad as is possible (according to the vet). She needs oral antibiotics twice a day. Her ear needs to be cleaned once a day and she has drops in each ear, once daily. She has this silly underbite that make it look like she’s growling or snarly, but she’s a sweetie!

  
 

Our other dog, little Aggy, was spayed on Monday. So, she’s been a pathetic, little cone-head all week. She was weighed before her surgery and is a whole 7 pounds. Yup, she’s just a monster – lol!  

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Face Plant…

Tired like usual. I don’t know why I even bother mentioning that. It’s like  saying a raspberry is red, “no really??” That should be the reaction about me being tired, “really Jenn? You’re always so bouncy and full of energy!”  That would mean that person doesn’t know me at all. They would know that I do strange things happen to me. So, here’s my embarrassing story from last night…really embarrassing actually…so why am I writing this? Because, it’s not only embarrassing, it’s funny. So, I will endure the embarrassment to hopefully make someone laugh or smile!

So last night, after taking my nighttime medications, I was going to the bathroom. Most of my medications can cause drowsiness or are sedating. So, here goes, I fell asleep on the toilet. Like dead asleep! The medications don’t usually make me react like that, it’s likely the new one he started on. Anyway, we know it was a deep sleep because I fell, face first with all of my weight, “OUCH!!!” I feel like I’ve been beaten up. I have a lump on the top my head (which doesn’t really make sense, because I fell, hard, completely face first.) I have a couple scratches, with a bruise at the top of my hairline, a bruise and scratches on the bridge of my nose (from my glasses slamming into my face against my nose), and a bruise all around my right eye’s upper brow area and down the side of my face by my eye. Yep. I’m a big big mess. It’s crazy and scary that I fell asleep so hard. I’m talking to my pain doc tomorrow about it, so no need to panic or worry Mom (& anyone else who may worry about me!) ‼️

I can’t find yesterday’s post. You have no-idea just how frustrating that is. Here I am trying to pass my challenge of writing a post every day of 2o15 and then every now and then, “poof!” I go to check the stats the next day and it’s just gone. So so maddening!! So frustrating!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Dumb Dumb Dumb – Losing Posts!!

I can’t find yesterday’s post. You have no-idea just how frustrating that is. Here I am trying to pass my challenge of writing a post every day of 2o15 and then every now and then, “poof!” I go to check the stats the next day and it’s just gone. So so maddening!! So frustrating!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Is It Math Class Or Drawing Class?

Almost half of the people weren’t there last night (at my drawing class), it was very very strange! We worked on sighting  and perspective. The sighting works by measuring distance, using your pencil as a tool. I kept getting mixed up with it. I  definitely have to practice a lot this week! Also, in talking about perspective, we learned that there are 3 different types, 1st point, 2nd point & 3rd point,… I barely did anything with 3rd point perspective, I was lost enough with 2point perspective! I got confused, he said I was overthinking it and that you figure it out by doing. We were drawing cubes in different places and then, depending upon your perspective, completing all of the sides that you are able to see, ie, actually, physically see. Drawing a kitchen, for example, at eye level, can you see the flat top of a counter or maybe some of the bottom. What are the angles from where you’re standing/sitting as you draw? How does foreshortening appear on the cube depending on eye level? Etc, etc…I found it quite the struggle. I needed a lot of help and this week, I need to practice practice practice!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health
Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Without Further Explanation…

Today is a drawing day. Draw, draw, draw. 

So, that means I need to jump back to it and keep going. This will be n my mind though. I find myself worrying about getting my writing finished. I don’t want it to be something that is just a chore. That will turn my writing into a chore, which contradicts the original reason I started this blog. That doesn’t help me much on days when I feel completely blank and have nothing to say. Also, I feel like I can’t keep my eyes open. Last night was strange. I didn’t sleep fully last night. That sounded weird. What I meant was that I would fall asleep, wake up, fall asleep, etc., etc., over and over. Very frustrating. The problem with that kind of abbreviated sleep is that my body doesn’t get the rest and restoration that it needs . So, then I end up waking up feeling exhausted. I just feel like a part of me is sleep-deprived and exhausted, ALL THE TIME!! 

I’m super excited about my upcoming getaway.  My hubby’s going to Toronto for work training and I’m going to join him there a couple days after he gets there, for 3 nights – 4 full days!!!  It’s not like it’s tomorrow or anything, but I am so so looking forward to it! My hubby keeps saying that he’ll be at training all day, so I’ll be on my own during the day. We have the evenings for us though.  He’sworried about me getting bored. I have adamantly told him that that’s kind-of the point…4 full days all to myself!!! I don’t have to say anything more to that. Most moms (and dads) will know exactly what I’m talking about without further explanation. Seriously, 4 full days all to myself, enough said…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Small Blessings

I feel like I blinked and suddenly it’s after 3:00. Time has a way of doing that. Then that long list of what you have to do that day ends up getting cut in half, as you have to revisit your list and prioritize. Generally I’m having a good day if I end up getting even one of the things on the revised list done! It’s like, “Woohoo!! Yay!! Time to celebrate!  I think one of the reasons that I don’t get any of the extra things done is because I have a hard time even getting the day to day things finished. So, yes, getting extra things done is quite the accomplishment. That is the Woohoo day. 

My hubby bought the new rock band for the play station 4. So we have had a very loud day. I don’t know what it is about that game, but we all have so much fun when we play it. We have the original one and many of the extra songs/games. It is something we all do together as a family. Even if one of us is just sitting and watching/listening, we just enjoy ourselves. Those family moments are to be treasured, as they are most important and easy to take for granted. 

So, I am off to enjoy my family. I need to hold onto all of the small blessings. They ad up to a beautiful life!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Fitbit

Today I refuse to go to bed late! Even if this is super short. I have got to switch my schedule, up too late, sleep late, doing nothing… I got a Fitbit today. It can sinc with my phone, for texts and music and a ton of info about yourself. Heart rate, throughout the day/night, sleep schedule, # of steps and much more. I just have to figure out how to use it! Also, it’s a bit big and clunky, definitely not all that feminine. But, I have heard good things about them and very helpful in showing you your patterns, so, hopefully, you can make positive changes. I really need, I mean I really really need to make some major lifestyle changes!! So I’m hoping that it helps me, even if only a little.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

His Loving Jail

Running wildly, not enough,

He skillfully creeps after me.

Breathing heavy, can’t contain it

Far louder than it should be!

Fear rolls through me,

Takes control of things,

Yanks my movements,

As if on strings. 

Tugged still.

Only escape, my mind,

While in his loving jail,

His touch, so kind…

JKC

(Huh. My mind fascinates and baffles me all at the same time…with what it creates, words unexpected. Don’t ask me about the “deep meaning”. Let it mean whatever it does for you…)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Mangled…

Too tired today. It felt like a write-off day!  I have been zoned out completely. My eyes are red and poofy. I look like a “stoner!” ( as we called the smoking/druggy kids in high school.) So, how things change and shift. I’m now the “stoner.” I know my medication is sedating, that’s why my highest dose is at bed-time. However, I feel the heaviness of the sedatives all day long. And, my stupid feet are still poofed up. The pharmacy went through my meds & possible responses and they said that it isn’t a side-effect related to any of them. If my gabapentin was recently raised there may be concern, but I’ve been on that for a long time at the same dose, since prior to my brain surgery & it’s coming up on two years since the surgery. It’s strange that it still aches & hurts where my incision was, sometimes horribly. So so so weird… But, I’m so used to pain somewhere on my body, that I almost don’t believe myself… some times it’s like this is someone else’s mangled life…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me)sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!