Tag Archives: #medication

I’ll Conquer You Pain!!

Crawling, following, aching for you,

I see you around and I want you too.

Burning, screeching, blocking the path,

Overwhelmed by pain’s vengeful wrath. 

Laughing, smiling, flowing over with joy,

You give me a taste, but I’m just a toy. 

Reaching, stretching, just out of my reach,

I’ll get there again and hold as tight as a leech.

Hoping, praying, knowing I will never give in,

I’ll conquer you pain, joy and love will win!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Thanx Life…

Another day of back and leg pain. Fun fun. The spasms go through my lower back in a ripple in the tide, an ache that won’t go away. Bright red shots down the back, & side of my leg. Ug!!  But, I’ll take it all over the f-ing face pain. Still, the drive on the weekend will be long and hard on my back. 

I just feel so pathetic. Like the person who cared once is now buried (almost literally) under layers and layers of fat…I hate the low days. When I just don’t care anymore. My house is in shambles, I’m going to be one of those damn hoarders soon if I can’t find a way to dig myself out. I just kind of feel like a lump. A lump on the couch, in my bed, at the kitchen table. Just a lump, that gets shifted around from room to room in a sloppy manner! With my stupid back/leg shit, I feel like one of those annoying fat people who can barely move around without help. Then, on top of that, making it far far worse, I can’t remember what I said mid-sentence, I just freeze and it’s gone. I walk into my kitchen and forget why. And I know everyone will likely say something like,”oh, I know what you mean!” Inside you’re thinking nope, no you have no idea!!!  The difference is, I’m not exaggerating. Not even a little. I forget what show I washed right after watching it…all of it! Mid-sentence, just poof! Gone! So so tired of this… I hate it when I somewhat know, intellectually, what I need to do, eg. diet, activity, emotional, meditation,etc etc. However, that knowledge just isn’t necessarily transferred to the emotional part of it all. Emotions are strong strong feelers and when all that they feel is pain and negatively, it becomes increasingly more difficult to find that positive core down and buried…

At least it didn’t snow before Halloween!! I must smile at the good things…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Saying Goodbye Is a Never Easy…

My husband’s mom passed away last week. It was a bit eerie, because my phone rang around 5:00 or 6:00AM.  When I answered the phone there was one of those awkward type calls that says something about my receiving a text to land line. “Goodbye.” That was it. Very precise and final, in that creepy automated voice. I sat there staring at my phone, somewhat creeped out, but pretty certain of the meaning behind the text. My brain was a bit off, still half asleep. I got back into bed and it felt so strange. Just a weird feeling I couldn’t or can’t quite get me head around it. It felt kind of off, like I wasn’t alone. Like I was being watched, but a bit more like watched over. However, it didn’t necessarily feel great either. It was cold, or I was cold, chilled actually. I sort of went back to a weird dream-like state, but not dead asleep, almost like watching myself as I had reels of times with Varia (both good and bad). For the most part, good memories, as my hubby would just pile us into the car and leave if there were anything inappropriate going on. He’d normally go in first to make sure things were okay and then come out to get us; which is why the reels of her are actually pretty positive. Not so much for my hubby. The reels moving through his brain are certainly negative, to say the least. I think he’s somewhat in denial and playing it cool. As well, he keeps pointing out everything she did that was less than maternal. I’m pretty sure that many emotions are careening inside his head, however,  sadness is a difficult emotion for many men. I think he believes that the worse things he can recall and use, the less reason he has to be sad. Anger is an easier emotion for men. (And, yes, I know I’m totally using broad stereotypes, but, in this instance, the stereotypes fit my hubby perfectly.) So, I guess that we get to drive to Penticton, yet again, with good reason!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Ouch‼️ (Still…)

So my back is so bad that I can hardly move. I’m seeing  the dr at the walk in clinic tonight 5:30.  I been alternating between ice and heat and the dr gave me some muscle relaxants and anti-inflammatories. So I’m hoping they work a bit at least. Help me to get around a bit better and feel more comfortable when I sleep. Because of all the back BS I feel like I’ve gotten absolutely nothing done today. Which, I must admit, is pretty ironic after I’ve spent the past week sharing simple tips on how to do nothing. Look at me just snapping back into the world of, “do this” , “do that”, “no! It’s this way!” I just let myself slip out of the role that I’m fit into. It’s interesting, how quickly perceptions may shift. If I don’t feel well enough all day and get next to nothing done at home I feel horrible! I know or feel like my duties are being shucked aside, yet haven’t been completely finished by anyone. Or, my hubby will work forever and come home with nothing done. He doesn’t bug me about it. He just wishes the girls would take on more, especially when he’s out of town. Anyway, I have to get to bed, without the negativity. No more self-judgment for tonight.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO DAY.#6

I know that I said yesterday was the final day of writing my tips on how to do nothing. However, I have to decided that I should write just one more tip!!

Okay then, here goes. TIP #1:  Gratitude.

Yup, that’s all. If everyone got out of bed feeling thankful for a new day, for their families, their homes, their loved ones, our entire world would shift. Go out smiling. Think of five things everyday before bed, that you are thankful for. Many parts of our world have gone dark, filled so much hostility, violence, death and despair. Can we solve all of this with love and kindness, probably not. However, we can only control and be accountable for our own behaviour. We may choose to leave our homes and do so with a smile and love and kindness in hearts – and our eyes. It is up to you! You get to decide if you want to open the door for someone or let someone merge in while your driving or pay it forward (there are so many ways to do so!!) I believe that we must tell all of the people in our lives just how thankful we are to have them, how lucky we are to love and be loved. Don’t ever forget that we are so so lucky to have all that we do. We are blessed. You are blessed. I am blessed. And, yes, tell your loved ones often, just repeat over and over how much you love them, for not everyone in our world is as lucky as us. I need to remind myself of that sometimes, on those extremely low days, when my pain is like it is right now and I want to cry and rant and rave because I hate this disease that I’m living with, I have to remind myself that my bad days out-joy the people who have no food, water or shelter.

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

“Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

PS: I am so so very thankful for my family, my hubby and kids, my mom and dad, my sister and her family and for all of my extended family (many of whom take the time to read my blog, even when it’s depressing or negative, just to support me!), and all of my friends.  I pray every night and always include gratitude. 😴

TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO – DAY #4

Okay, so welcome to the 4th instalment of TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO – DAY. #4. I’m currently in the rental with my hubby on our way to the airport.

TIP.#1: don’t drive. Period. That is all. Driving in a rental in a new city – very very stressful!!! And, stress definitely interferes with doing nothing, like really interferes. Suddenly you’re thinking and we have already discussed the problem with thinking too much. The brain’s supposed to be getting some r&r.

TIP. #2: Refrain from feeling guilty. Why – you should not try to apologize for doing nothing. That was the point! Besides, I read an entire book – a book that I had for a while and have been wanting to read. (A small “something” amidst  the “nothing”)

TIP. #3:SLEEP!! Yes. Staying up too late during your nothing time may make you too tired to do nothing.

TIP. #4: When you are packing the bags, getting ready to check-out of your hotel, do NOT NOT NOT twist around awkwardly while picking something up off of the hotel floor. Do not scream out in pain while your back spasms over and over. Especially take care not to do any of this on the day you’re flying home…ever. (Trust me, you just don’t want to do that…ever!)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO – DAY #3

Hi! And welcome to my renowned TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO – DAY #3. First, I have no idea why I keep doing that part in capital letters. It looks strange enough in the title. Oh, well. Nothing days require me to use a lower percentage of my brain power, so I’m not going to think about that anymore. Hey! That will be day 3’s first tip.

TIP #1: try not to over focus or work too hard at anything. That’s right,  anything!!! Just give your brain a well deserved rest!! 

TIP #2: (from yesterday) if you get up too early, go back to bed. If you can’t sleep, maybe watch a movie or read a light-hearted book or any other book that you will enjoy. Be sure to make it an “easy” read, without too deep of a topic and not needing too much brain power. (Refer to today’s First tip).

TIP #3: When napping in the afternoon, sleep through a hotel-wide alarm. Once it’s woken you up, stay in bed as a pre-recorded message repeatedly says that authorities are looking into it, thanks for your patience, sorry for the inconvenience…bla bla bla. You may be too, intentionally, lazy to take time to check what was going on. Then, after probably 20-30 minutes, the recording may change and begin saying it was a false alarm, please feel free to go back to your rooms, sorry for any inconvenience, etc. etc….So, unbeknownst to you, who was busy getting that necessary afternoon nap in, some type of evacuation may have occurred. (Do not feel bad or guilty for being completely asleep, obviously, if you slept through that kind of alarm, you need sleep!!) Any kind of evacuation would have interfered or out right ruined your naps (and you may not get a chance to nap again that day!!).

TIP #4:  choose to eat your dinner at the hotel restaurant. You will not need to take the car or really care (that much) about what to wear (just go from your pj pants to sweat pants, easy-peasy!!). You do not even need to bother putting on makeup. Finally, eating at the hotel restaurant gets you back to your room much much quicker and, consequently, you’re back into your pj’s sooner and you can get back to doing nothing sooner!!

This is all for today. Any more would be far too much work;)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

“Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO – DAY #2

Yup. So, we are with the second edition of TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO… (From yesterday’s lazy day!) TIP #1. Sleep  through the entire flight, if you can. If you can’t sleep be sure to have a couple beverages (you know what I mean) and watch a movie. TIP #2. Prior to your flight, take as much time as you want and allow yourself to go into the shops as you walk, or ride on the walking sidewalk thingy. Don’t rush to your boarding area until they call your name over the airport com-system. Tip #3. Make your blog posts “continue” each day during your nothing time, so you don’t have to write too much and work too hard during your nothing time. Tip #4. After reading the room service menu and checking out the movies (I can watch Jurassic world one day when one I’m still here!) reminiscent of Tip #1, sleep!! I got up at 9:30, Toronto time, so 7:30 Edmomton time. Anyone who knows me will be shocked, but I never sleep as well when not in my own bed, which makes me more likely to get up earlier here. It’s a lot earlier wake-up time then my body’s used to. So, I’m off. Time for more sleeping!! Like now…👋🏼bye bye👋🏼

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO – DAY #1

I am in Toronto tonight. Welcome to my first post about my very serious, educational and at least level 100 or for those with higher smarts…(lol – completely unofficial/goofiness…),my posts for the next week or so, TIPS ON HOW TO DO PRACTICALLY NOTHING AT ALL FOR ABOUT A WEEK OR SO….

Tip #1. After sleeping for the entire plane ride, get a cab at the airport. A rental takes too much focus and brain power (and this week I’ll leave that for my hubby.) Tip #2. Go out for supper (see, his car rental and ability to focus got us there and back!!) Tip #3. Let your hubby force you to stop trying to write more tonight, because you may or may not have been falling asleep a lot lot lot and in strange places. So I need to stop writing, in order to avoid falling asleep, again, with my face on the iPad – heehee)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Pack Pack Pack

Busy busy, pack my bag🎒, 

Tomorrow I fly ✈️to Toronto 👏🏼

As I leave, my parent’s 👵🏼👴🏼arrive,

Yay!👏🏼  My hubby and I get to go✈️!!!

My plan, so far is to do nothing at all!

So, how in the world do you pack for that?

Sweats and/or PJ’s, a couple of books, fingernail polish stuff and my drawing supplies… 

But, there’s no room for a yoga mat!

A hear the geese outside

They are honking away 

They’ve been figuring out

When to go and when to stay. 

Sorry that this was so pathetic. 

I have so much to get done before bed. 

I need to go and feed my kids,                   

And take something for the pounding in my head. 

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!