Tag Archives: #medication

Bang Bang Bang!!

Clunk, bang, clatter clatter clatter in my head

Chitty chitty bang bang running on the same thread

These sounds reverberate through me;

The sounds of pain ravaging where you can’t see

Slash, slice, jab jab jab lightening on my face

BANG BANG BANG BANG pain explodes all over the place!!!

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

PS: The little fluffy one is trying so hard to get the big one to play…unsuccessfully…lol
  

Yay Me!!!

New phone, new phone, new phone!! Totally unplanned, fancy-shmancy, new phone! Yay!! I may regret getting the bigger size, but my hands are so big & my eyes are so crappy, hopefully this will help me. Beside my old phone it seems huge and I’m not sure I can put it on my doc to listen to my mindfulness &/or night-time music, but I will have to figure something out. Well, this was semi-unplanned I guess. My hubby & I have been discussing whether or not we were going to get me a new phone for”Christmas!”we can just wrap the box the phone came in. Our youngest daughter’s (13) iPod touch broke a few weeks ago and, since then, she has been using my phone probably more then me! Part of me wants to say, “tough luck, natural consequences…”  However, she has had the same iPod for some time now and has done a pretty good job at taking care of it. Also, when our oldest daughter lost her phone after only 3 months, we gave her my old one and I got a new one. So, lucky for our younger daughter, she gets a “freebie” too. Apparently she’s, “the only one of her friends without a phone!!” To which I usually reply, “well then we will easily be able to get ahold of you and you can always use one of their phones to contact us if you need anything!” So, my iPhone 5 is now being used as an iPod touch by our middle daughter and, lucky me, I get a brand-new phone!!! Yay me!!! 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Winning Over A Friend

I have a friend, a beautiful friend, there’s so much she has done

I’m a sick friend, an unreliable friend, How was her devotion won?

I cancel last minute, I avoid everyone, I’m unreliable now

She wants to help, to give support, she’s just unsure of how. 

I close my door, say “maybe tomorrow,” push all the hugs away.

I feel ashamed, how’d it get so bad? I don’t have the words to say. 

I’m riddled through with unspoken curses, I want it all to end. 

The pain tries to call all the shots, often winning over a friend…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Here’s A Pain, There’s Pain, Everywhere’s Some Pain Pain!!!

Well, another long, hard, tense day of driving – for my hubby!!! Lol!! We made it though. Slow and steady wins the race, or something like that. I slept more on this drive than ever before. My dumb-arse meds probably don’t help! Or do help for something, with me getting sleep, and also, my hubby doesn’t have to worry about my anxiety with regards to the roads, and he doesn’t need to worry about how I’m feeling, with my face and back and sciatic nerve crap!! I just copy and pasted this, mainly for myself, but hey, if it’s helpful to someone else, great!!! “Sciatica is nerve pain from irritation of the sciatic nerve. The sciatic nerve is the largest nerve in the body. Sciatica pain is typically felt from the low back to behind the thigh and radiating down below the knee. Treatments for sciatica depend on the underlying cause and the severity of the pain.” Depends on the severity??? My beautiful body excels at welcoming any and all pain, in the highest, worst possible level of pain – lol!!

My hubby is 40 tomorrow!! And, with everything that’s been going on here, we have nothing done for him. I don’t even have a gift!!! Well, I ordered something, but it’s not here yet 💆🏼🙎🏼 I guess it’s time to add my name to the crappy wife list; for those who either take forever to get anything done or who forgets to do it altogether!! I really need to get creative tomorrow when he’s at work!!! I need to have at least a cake or cupcakes or something, dinner theatre or a movie (boring, boring, boring!!) Can someone (probably Jo) remind me of the name of the restaurant in the west end where they have the burger eating challenge? I can sure see him doing something like that. I’d appreciate any last minute suggestions or ideas!! 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!
 

Too Late…

So, this will be short…it’s been a long few days. Today we had to leave Penticton, and start to head back home. It was very very hard to say goodbye to my hubby’s Sister. She moved to Penticton to be with her (my hubby’s) mom. It was difficult, because she was not doing so well and this just made it worse…it was like everyone came for the ceremony not her!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!! 

Day Is Done

I’m so so tired tonight, well all day has been punctuated by barely concealed exhaustion. Those who know me well, could likely see the exhastion on my pained face. It’s been a very heart-wrenching couple of days. My mother-in-law was 62 years old. To me, that seems too young to die! But with her rough, abuse-ridden childhood, paired with cigarette smoking from age, wait for it… 8!!! Yup, you heard me right! There are many unpleasant and horrific stories, most of which, understandably, I won’t list here. Some of those stories I’d rather not remember; but of course those memories are permanently hanging around in my long term memory. Anyway, it’s been a very long few days and I need to go to bed, because we have another long day ahead of us tomorrow. Grief and crying…can definitely be cathartic and relieving. However, the exhastion comes along with it.  It’d be nice if all was easy, but it never is, right? My hubby and I tried to prepare for the few days here, as best we could, but you’d have to be clairvoyant to know all that will come to be!  And sure, it’d be nice to have those super-powers to play around with, right?? But, in the long run, those powers would probably turn into a huge weight on your shoulders…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

PS: I apologize for my out of it post from last night. It was very nonsense based, I was just all over the place. I’ve gone back and tried to make it more understandable. It was a long, sad, tear-filled day. 

Memories In A Bottle

I believe that I’ve recently lost some of myself.  Because my memory has broken down. Unfortunately, the hunt for my memories is futile…Dishes still need to get done, laundry doesn’t just go away, nope, life just keeps moving along.  The fact that my medications mess with my memory is a moot point (& yes, I’ve wanted The amount of people who ask me how I actually keep up with the my blog, especially with all of my health crap, is getting awfully high. 

We have to do the long long drive home in two days. However, we knew this weekend would be a short trip. The drive itself may be super long, but we needed to be here. My mother-in-law’s memorial service was today. Today was a strange, sad sad blur. What else do you expect for a memorial service??  Too upsetting to attend, but too upsetting to miss…

Fingers crossed for a better day tomorrow. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I aaAAary  r  

Welcome To Penticton

I basically didn’t sleep last night. My hubby, jokingly, said to wake him up when I’m done packing. However, that is basically what happened. I was so slow getting ready. There was always something to remember or do. We got on the road around 5:00-5:30 AM. I was so tired that I slept until Airdrie. (My daughter made sure that the house/dog sitters are at the house, because there’s always something that needs to get done!!) My hubby said that the fog in-between Beaumont and Airdrie was so bad that he couldn’t see a cars length ahead of him. It was in and out of fog and snow for a while. However, we were surprised by some rough, icy, super-d-duper snowy roads (just  before Golden). There was one especially scary moment during our decent when we were going 40Km/Hr and my hubby was desperately trying to go slower, we still found ourselves angling to the right, towards the right edge as the road began to sharply turn, left. It felt strangely like slow-motion, as we were sliding towards the edge of the road, unable to stop, seeing only the very high tips of the trees older than my grandad or even my great-grandad! I began to thank God for my family and all I had been blessed with (seriously!!) when the tires found purchase and the little bit of grit was enough for my hubby to catch the traction and turn us left, with the direction of the road. So so scary!! Also, it demonstrates how easily life can just end or change in a moment. Just a bit of dirt hitting the tire in the right place to give it enough traction for us to stay on the mountain. Thank you for the many many blessings in life. Don’t forget to say thank you. Don’t forget to be courteous and kind. What if your words are the last that someone hears. Do you want that to be a negative or a positive experience??!! Hopefully the latter…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

A Short Note…

Today will be a super short post day. I can still hardly move around & I’ve been sitting on the living room floor, surrounded by suitcases and clean laundry. I know that this isn’t the best way to pack.  Also, I just am not sure, with my back and sciatic nerve acting being totally inflamed, how or if I will ever be able to get up off of the floor. I’m seriously in pain right now and am only half joking…lol! The fun never ends at our house, Hee Hee!! I just have lots to do and it’s already after nine and, of course, I’m not finished this!! My face is acting up, so I do need to get all of this packed and flop into bed. My hubby wants to leave super early. Like, dumb dumb early! He’s always up early and figures that, if the rest of us just drag our butts out of bed and get in the van, we can all sleep while he drives. So, on that note, I need to go and finish my stuff. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!

Time

Time runs along at it’s own pace.

You’ll find me behind, giving chase.

There’s this to do and that to do,

Always adding something new!

Go go go – no time for fresh air! 

I do wish I had the time to care. 

I wish I knew both how and when,

I’d ever feel like myself again!

I just go through the ropes, pretend I’m ok

And hope beyond hope that it’s true one day…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!