Tag Archives: #bug bites

What’s In Today’s Fine Print???

I’m feel like I’be been somewhat “out of it” all week. I’m not sure if it shows in my posts, I just feel like, well, the foggy feeling that I was talking about the other day. I don’t know, it’s hard to explain, “out of it” just seems to fit today. I’m watching the world all around me, people are going about their day, doing whatever they need to get done. I just feel like the audience. On the outside looking in. I feel like I’m not actually involved in things. It’s so weird…

I have to draw another picture of my hand, holding something or doing something, not just held out flat. The one that hat I did in class took me forever! I believe that everyone was done their 1st drawing and had already started the second before we left…oh well. The length of time shouldn’t matter that much, as long as I get it all done. Thus, the reason you are reading  another very  short, check-in type of post. The truth is, that I’m kind-of feeling at a loss for things to write about right now. So, it’s just this short “hello”!!  Hello Hello, Hello Hello, you say goodbye I say hello, Hello Hello…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me)sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Life with Chronic Pain…With Trigeminal Neuralgia/TN!!!   

It’s all in the fine print…

 

Sometimes I Don’t Have Anything To Say…

Sometimes I don’t have anything to say,

It’s as if all the words have been washed away.

There’s an empty space where the words should be,

But they’ve all been swept away from me.

So I stare up blankly, through zoned-out eyes,

But I can’t find the answers in the darkened skies.

Oh, damn this night, when I’ve nothing left to give…

I’m just so overwhelmed, I make it hard to forgive. 

Words words words jump and collide in my brain,

The right ones just vanish and it’s driving me insane!!

And, well, 

Sometimes I don’t have anything to say.

I must trust that the universe wants it this way…

 JKC/2015

 

Don’t forget to wear teal on Wednesday October 7, 2015, for Trigeminal Neuralgia/TN awareness day.

 

 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me)sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Unsure About What To Write…Feeling Poopy!!

It was kind of strange day today.  My Brain is a fog today, felt like I was half asleep and the world around me seemed to come in and out of focus, like semi-lost whispers in the wind, through a hazy, thick fog, I couldn’t sleep last night so, could be part of the reason I’m fried in the brain.  It’s one of the days that seems long and drawn out but, simultaneously flies by. Very strange….

 I’m sorry to say, but this is all I’ve got for today.  I am just having a “shit-tacular” day. The pain has been unbearable and exhausting     

 

Next Wednesday, Otcober 7th, 2015, is the 3rd annual TrIgeminal Neuralgia, TN, Awareness day. That means you should buy/wear  teal, any teal item of clothing and/or go to the website and order a ribbon or pin or something…(www.tnnme.com)

 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

 

Hopefully one day I’ll get it right, or at least have fun, while about it I writers

What Would You Say??

Yesterday an old friend of mine posted on Facebook about her dad dying and she was clearly suffering a great deal. She sounded so wounded and ripped apart. I felt her sorrow deep in my heart. In those hidden areas that we try to deny, the place where I hold and hide the fear about one day losing my own parents or my husband or, …well, you get the picture. So I felt a physical ache in my chest for her. It’s strange having things like Facebook, where we can semi-keep track of old friends and people who’ve moved in and out of our lives. So, you’re more connected than in the past. You see posts every now and then. You see their posts, some we may focus on more than others. But, you have a bit of an idea of where they’re at in their lives. So, when something tragic happens to them, regardless of how recently we’ve seen them, we can witness their experience. We feel for them, now – in the present. So, what do we say?? What would you say?? (Seriously, please let me know if you think it’s okay or over the top or what you would have said.)

This is what I said: 

I’m so sorry for your loss. There’s no “right” thing to say to someone, that will instantly make everything “okay”, after losing a loved one. I sure wish there was! I’m sorry to say, but it’ll be super hard and it’ll be a struggle. There will be good days and hard days, happy moments and moments when you feel overwhelmed with sorrow. But always remember he will be with you. Your dad will be holding your hand, rubbing your back, hugging you tightly, loving you always;  he IS with you. Yes today was probably super difficult and just sucked!! You may wish you could curl up in a ball and cry the day away. And you know what?? It’s okay!  Go for it!! You can grieve however you need to. Grief is one scenario when there is no right or wrong way to do it. You can feel whatever you want and need to feel. It’ll be a struggle today and everyday for a while, but you will get through it. Do not be afraid to ask your family and friends for whatever you need. If it’s time alone for a while, that’s fine. If you need time to be alone with your husband holding you, that’s fine. If you need to stand on top of a table and scream for a while, that’s okay to!! Whatever you need, do it! Again, there is NO right way to move yourself through this pain. Take it one step at a time. Don’t worry about an hour from now or later tonight or even right this moment, don’t worry about anything. Just take care of yourself, without guilt. Then gradually, over time, it will get a bit better. There’ll be a few less tears when remembering him and more smiles. He will be with you, is with you, every step of every day. He will guide you through each day. Don’t be afraid to follow your intuition and to do what you feel in your heart you should be doing or saying.  He is taking your hand and telling you what to do, listen. Listen to whatever you feel in your heart, because he is guiding you. I know I haven’t seen you in a very long time, but I’m certain that you’re still that strong, beautiful, kind and loving person that I knew way back when. It sounds like you have so much love and support surrounding you, ask them for whatever you yneed. They will want to help you. They love you. Most people aren’t sure of what to say or do for someone who has just lost a loved one. Tell them what you need to get through this. And, although it may feel impossible right now, you WILL get through today and then the next day and the next, even if it seems impossible, I know you will. Just one baby step at a time. 

God Bless. XOX 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

 

 

Ewwww & Awwww…

So I have a few photos that I was going to post tonight. I’m just trying to decide which to post first. One is something that makes you respond with, “awwwww!”  The others elicit a completely different response, it is “ewwwww!!” Now, do I start with the cute or end with it. I kind of feel like when you end up with the positive photo in your head you will be left with something better to focus on. So, based on that amazing explanation that, frankly, I pulled out of no-where, I will start with the “Ewwwww!!” response photos first! I have a question that goes with them. I’ll write it under the photos. If anyone has any information on this kind of stuff, I’d sure appreciate it or even where to look to find more info. Also, if it is what I think it it, should I have a Dr look at it??

  
So, this is the back of my upper arm. It could be in better focus, but it was just really awkward to take these photos. The question is, “Is this a spider or bug bite of some kind??”  When I woke up with it yesterday, I just thought I somehow bruised my arm and couldn’t recall how (which does often happen to me!!)  But then, I was looking closer and asked my girls (hubby’s out of town again😓) if they think it could be a bite of some sort and they said it did, so I took a couple photos! Answers/opinions appreciated!! Lol!!

Now, this picture is just cute…really. I just believe it will be a nicer final image to carry with you. Enjoy!!


Who needs a pillow when you have a squishy Strawberry Shortcake ball?? She, Our Aggy puppy, actually fell asleep like this!! So so so adorable 😘

PS. Sorry about last nights strange post…it was a rough day and a far far worse night. I was so exhausted I fell asleep a few times while writing and I was so out of it and the pain was just too bad and my bedtime meds had already made me somewhat zoned out of it…well, not somewhat…really out of it and so so tired! And, I hadn’t waited until my writing was done, before taking my medication, as I generally do on most occasions!! So, we’ll just look ahead or at least be in the current moment, not in the past playing the “I should have or could have…” card and/or the “what-ifs…etc.etc!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!