Category Archives: Uncategorized

A Fresh Start

A day with a little bit more sun

A day where a few more smiles are won

A lot less tears

Not quite as many fears

No longer asking why

Or wondering if you’ll say goodbye 

Instead of everything falling apart

An end has turned into a fresh start…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Dance + Stress = Fun???

Dance dance dance! 👯 Today was not much better than yesterday. It was my youngest daughter’s year end dance show today. She had to be picked up at 6:30AM, hair & makeup ready to go. Our night was extremely late because of last nights fiasco…with the late start of the party our oldest had to go to and the stressful situation regarding her boyfriend’s grad reception, well, I couldn’t fall asleep. Even though I knew that my alarm was going to be going off soon. So I finally fell asleep at 4:00AM, then I had to get my daughter ready for dance, 2 hours later, at 6:00AM!! Went back to sleep after our friends picked her up for us (they have to be at the Jubilee super early, because the dress rehearsal is in the morning and the show is in the afternoon). I was able to sleep for a few more hours, then showered and went to the show, with my super sad oldest daughter 🙇🏼, my little man 👦🏼, my hubby 👱🏻and my parents 👵🏼&👴🏼! When we were standing in the lobby, before the show even started, my little man asked his big sister (my oldest) to pick him up, because his tummy didn’t feel well. She picked him up and seconds later, he threw-up all over the place (in the carpeted area of the Jubilee). So, long story short, we brought him into the show. He felt sick again after only a few of the dance numbers, so my daughter and I pushed our way out of our row and into the isle (interrupting everyone). We ran him to the bathroom, then I got a plastic cup from the concession people, in case he still felt sick. He proceeded to throw-up into the cup during a few dance numbers.  Finally, my hubby just took him back to the lobby. Then, during intermission, we decided he should take our sick little man home. This is just an amazing adventure of a weekend for us…yep! 💆🏼

Oh, before I hit the hay, (what a strange expression) my lovely youngest daughter danced👯 beautifully in all five of her dances!    Bravo my little-one❌😘❌‼️

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

🐻RARW🐻

Today was an awful day. Awful awful awful… It started good. It was happy in our house. I was getting ready for my laser appointment, my girls were talking about the best way to make curls last and hold. My oldest daughter was hopping into the shower as I was running out the door to make my appointment. She was getting ready to go to her boyfriend’s grad this evening. He is at a different school then her. They decided pretty last minute about her attending, they weren’t dating when the tickets went on sale. We spent the past few days finding her a dress (she wanted to save her dress for her grad). She picked nail polish, how to do her hair, etc.  She was supposed to be picked up by his mom (who lives in town) and they were supposed to be meeting him & his dad (& step mother, brother). My youngest daughter is amazingly talented when it comes to hair styling. She did a practice hair style the day before. So, while I was at my appointment, they did her makeup and then her hair (which was incredible!!), but it took a very long time. When I got home they were just finishing her hair. She was beautiful, excited and glowing! She got her bag ready, for going to the after party, “normal” clothes, etc.  Then she got her dress on. The neighbours all wanted to see her “final look”, so she showed everyone. Then I took a bunch of photos of her. Then we came back home to make sure she had all she needed, because his mom was supposed to be coming right away. We were talking and waiting for his mom when my daughter’s boyfriend texted her saying that his mom didn’t  have a spare ticket for her anymore!!!! Yes, that’s right, you heard me, there was no longer a ticket for her!!!!!!😱😱😱 Apparently his mom told him that she decided to use the ticket for his stepdad. Just like that!!! Can you even believe it! My baby at the door, dressed to the nines, waiting to be picked up for grad – and through a f-ing text his mom decides, at the last possible second, that his stepdad should come to the grad, not his girlfriend. But it’s okay because “she’ll do whatever it takes to make sure she (my daughter) gets to the after party!!” Because, yes, that is what you spend 5 hours getting dressed up for, a bloody party!!! This afternoon, around 12:00, he said that his mom told him that she’ll pick her (my daughter) up at about 5:00, then at about 5:15, his mom decides “nope!!!” REALLY????? Wtf??? So, for anyone who’s watched those teen movies where the girl is waiting for the prom date and he never shows…well, I just watched my daughter endure that and it was AWFUL! My heart was aching for her and my blood was boiling! I was so so angry at this woman. I mean who the hell does that?? I did wonder if he was making that up, because he got cold feet or something, but apparently no. That is just the way she is! This is to be expected…  Normal behaviour for his mom! One of the reasons he chose to move in with his dad…I’m still a bit speechless about the whole thing! I know it may not seem like it, but wow! Wow! I know he was embarrassed and shamed and felt super bad. He apologized a lot, but, that doesn’t take the sting away, or make it better… I just can’t imagine doing that to a young girl! (Not to mention, your own son…). There’s more to say, but I’m going to stop before I let the mad take over…the 🐻Momma Bear🐻is rearing up🐻RARW🐻

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Sunny Days

A crazy, lazy day. I’m feeling like I did and accomplished nothing today. For some reason I’ve had a tough week. I feel like a lump. Well, a lump with a very long “to do” list that rarely gets done. I have all of these intentions, especially at night when I finally lie down and find some quiet time. I think of all of the things I should be doing, daily, to gradually work towards the land of the living. I know I’ve been depressed and the winter months never help that. Now that it is nice outside it lifts my mood a bit. To go out in the sunshine. Get some fresh air and some vitamin D. It makes things seem more possible. Reminds me that there is life outside of my house. I’ve turned into such a hermit over the past couple of years. Doing less and less. So, today was one of those “feel like a lump” days.  But, with spring and sun, come joy and health. I can sense it…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

These Precious Emotions 

A downward spiral drags down my soul

Leaving me burdened with beautiful pain

Drowning my fears of fire and coal

Weighed down with sorrow I can’t explain

My heart seeks redemption it can’t know

Drenching me in guilt and shame

My smile falters almost allowing it to show

But these precious emotions are quick to tame

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

T M I…

I’m sorry to say that, although I (finally) saw the pain Dr today, I am too wiped to write much. I have had huge amounts of pain today. Yesterday and today have both been bad days. I suppose it’s a good thing to actually be in pain when I saw the Dr!  I often find that, in a Murphy’s law kind of way, the pain or whatever I’m seeing the Dr for seems to let up when you’re at the dr’s office. Well, today, I definitely had pain while at his office…bad, bad pain! He had moved some things around, medication-wise. Substituting a new one in place of another. Raising the dose of one and lowering that of another. Also, he had the pharmacist make a topical compound (lotion-based) that is supposed to help relieve nerve-pain. I have this kind of glazed, doped up, look in my eyes and an extreme feeling of fatigue and lethargy, after taking the new medication. Also, I feel extremely nauseous. I have my fingers, toes and everything else possible, crossed that these will be temporary…

I am super tired, which is most likely due to a combination of the medication and being unable to fall asleep last night until about 2:00AM and then waking up at 6:00AM to get to my 8:00Am appointed in St. Albert! So, on that note, I need to lie down and sleep sleep sleep!!! I’m just extremely exhausted and overwhelmed! The Dr helped write out a plan and spent over an hour with us, I’m just done-in for the day…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Today It Enforced Its Reign

My damn face is bad, so bad today, I’m not sure what to do 

It burns and burns and lights my face afire with flames of blue

It shoots and streaks across my cheek with fireworks of pain

Taking control of everything, today it enforced its reign…

JKC

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Yawn

Well, we’re home. Although, looking back, it’s probably not a good idea to write on here that we were out of town for the long weekend. Not that I have this big readership of people. Also, even if I did, I’m pretty sure that my actual address isn’t available on here. But, regardless, it’s probably not a good idea to write about being out of town. 

And now, speaking of being out of town, I apologize for the pathetic posts I made over the weekend. I had an awful wifi over the weekend. We tried to use my husband’s phone as a wifi “hot spot”. This didn’t work, it kept going on & off. I was trying to write on the iPad using his phone’s wifi, but the connection wasn’t strong enough. Every time I tried to save anything it would disconnect. Then I tried to use my phone and the same thing continued to happen. So, my posts were all pretty disjointed…

Yawn! Now that we’re home, I’m pretty tired. We always have a good time at he cabin, but I come home tired. My brain is making a valiant attempt at pushing past my skull and oozing out through my ears, eyes and nose. Too much pressure! And, my face won’t let up. Arg… I can’t focus well. Too much ouch right now! I need to get ready for bed and have a long sleep tonight. It feels like it should be midnight right now. I actually slept fairly well at the cabin, probably because I added one of those gel-infused memory-foam mattress topper things to our bed. I really enjoy our time at the lake, but generally I don’t get a great sleep when we’re there. I always sleep best at home, in my own bed, but I definitely had a better sleep with the mattress topper. 

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Arg!!! So So Sorry About This Weekends Posts…

The shirty wifi connection here is making me so so frustrated!! I think Friday’s post & Saturday’s post somehow were mixed up… I don’t know what the poop happened there! And one of the posts had the same short paragraph repeated back to back! I now really really appreciate having wifi at home. It’s funny how quickly you get used to things & start to take them for granted! So I’m keeping this one short, before it starts going wonky again…tomorrow, at home, I’ll try to fiddle with these posts if they’re still a mess! Right now we’re driving to “The Village”, to get the kiddos some ice cream. Mmmmmm

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

At The Cabin 

So, like I said yesterday, we have a busy weekend planned and I’m feeling tired tired tired…Knowing how poorly I slept last night (again) and how I can hardly keep my eyes open right now, I should probably hit the hay! Tomorrow is going to be another fun day, but probably long.  Outside a lot and, if the fire ban changes, hopefully sitting around the fire. I know it will be a long long weekend, if that makes any sense?? I’m hoping that I feel up to it…fingers crossed!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!