Category Archives: Uncategorized

Rewind – Repeat!

October 10, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Long busy day?

Rewind – Repeat

Feels like there’s not enough time?

Rewind – Repeat

Always tired?

Rewind – Repeat

Feeling frustrated and negative?

Rewind – Repeat

Anxious and unsettled in my tummy?

Rewind – Repeat

Wish I could do more…with my kids?

Rewind – Repeat

Wish and wish and wish for more?

Rewind – Repeat

Hope one day I’ll feel better?

Rewind – Repeat

Hope one day I’m myself again?

Rewind – Repeat

Yup…sorry for the negativity!! That’s just where my head is today.

Zzzzzzz…

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me)sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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Red & Tired Eyes…

October 9, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

My head is pounding and I’m trying to lie on the hotel bed with my feet raised on pillows. My ankles and feet are so swollen that the pressure when I walk or rotate them is so tight it feels like there has to be invisible bands wrapped around my ankles, pulling tighter each time I move. I’ve had it happen before, but this is the worst yet! I bought some epsome salts, foot cream and compression socks at the Walmart. So, I’m keeping this short again, so that I can go soak my feet before bed.

The next few days here are likely going to be difficult. I don’t think there’s an easy way to deal with terminal loved ones. There’s certainly no rule book, at least not that I have seen! So, after a 12 hour car ride we just didn’t feel like we were quite ready to get pulled (or sucked) into things yet. Tomorrow morning, after breakfast I guess, we’ll head over to the respite house to see my mother in law. Well, actually, I am calling ahead to see how she is doing etc. It’s been so difficult, up until now, finding out anything about how she is doing, what to expect, etc. Tomorrow we see how she really is. Hopefully we will be able to make sure that her doctor and charge nurse, or anyone else who may be working with her, opens up the communication from this point onwards. I understand that they can’t just pass on health information to anyone, but we are, supposedly, on the list of people who she has given her consent to have access to her medical information. Just hope tomorrow opens up some of the doors that we haven’t been able to get through until now.

My feet look like the feet that “the humans” have I’m Wallee…that’s bad…! TMI???

Anyway, I have to stumble towards the bathtub and soak my feet now. Fun fun!! LOL

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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Busy Blur Of A Day…

October 8, 2015UncategorizedJenn

Today wins…it’s just a busy, blur of a day !

Too much to do before tomorrow. Too too much…

So. I will just leave it at that for today. It’s late & I still have too much to get done. 😘

Don’t You Ever Pause

October 7, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Don’t you ever pause,

To hear the words you speak?

Can’t you even see

You make others so meek?

Are you really so blind

You don’t see what you leave in your wake?

You call the shots

Anything else is a big mistake

But you don’t rule the world!

You just think you do

It must be sad and lonely,

Living in the bubble that’s you…

JKC

I got my teal on…

Did you???

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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Huh

October 6, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Huh…pretty much describes my day. It felt like I didn’t stop all day. There was just one thing after another and it all just sort of snowballed into a long and busy day. I feel overwhelmed today. I am tired and, of course – or, more like because of, the way I’m feeling overloaded, I am in a lot of pain. So stupid. My pain Dr didn’t return my call today, which, for him, is surprising. He always returns my call, generally after hours. I don’t think he ever stops working. He has been a pain specialist for years and he knows that it is always there!! It doesn’t stop at 5 pm, only to rejoin you bright and early at 8:30 or 9:00 am or whenever you start your day! Lol! That would be a dream world, one that I’d move to!!! But, reality check, pain is often worse in the evening and night-time. Well, speaking for myself that is!

Our oldest daughter is currently in drivers training. I know she’s 18, I got my licence when I was 16 and she’s just doing it now. We really wanted to make sure she did drivers training (But it’s not cheap, so she didn’t get it until we could afford it and so she would, hopefully, appreciate it (not sure if we got that part of the deal!) I believe that her first driving lessons should be provided by a professional, not just from your parents, with all of their bad habits! I think most people get lazy over the years and that we start to do the easier things, even if they aren’t necessarily correct. So, she’s had two driving sessions so far, each for 2 hours of driving! He wanted her to practice and she hasn’t much, so we went for a drive all over town, after dropping my little man off at kindergarten. I kept really calm. She was anxious and hesitant at first, but she did really well. Some of the questions she asked me actually made me have to pause, to make sure I was giving her adequate information. (Or as much as I could recall – lol!!!) I told her to always go by what her instructor says, not what we say!! Not many times when we ask our kids to listen to someone over us!!)

Tomorrow is Trigeminal Neuralgia Awareness day! Wear your teal ribbon or clothes and head to Kinsmen Park to see them light the bridge up in teal lights!! Check out globalnews.ca/edmonton/ Search “Trigeminal Neuralgia” and watch a clip from today’s news. Dr Matt Wheatley (my surgeon) talks briefly & there’s info about where and when to go tomorrow evening, if you want to show your support!!

iPetitions Picture

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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Please Forgive the little things.

When I attempt to change the font or font-size, it looks exactly the same on my iPad. Not any change at all. Then when I “view” how the post will appear on the site, the font size and type, is all big mess! So, please forgive the little things, while I fiddle around and figure things out. I’m trying out the split screen again. The layout makes a lot of sense to me. But, so far, I still have the pain in the butt inability to make the screen scroll past the split keyboard, so that I can look at what I’m writing, while writing it…should be obvious! But, apparently…not for the makers of the new “iOS 9.whatever” they never end without making 9 dot 3, 4, 400!!! LOL. Well, bitching about it won’t change things, so, I need to: take a deep breath and……move on

I was late for my drawing class tonight 💆🏼 I was feeling bad about walking in late, I did apologize. So, it’s over now, so, I need to: take a deep breath and……Move On!!! I don’t know for sure whether that will help. I do know that I itend to hold onto the past. I am also aware that I can carry old anxieties and worries and let them eat at me. I need to practice some of the mindfulness techniques that I know would likely help, but I don’t actually use them often enough. I don’t know why I don’t automatically do so more often. I guess this is a very slow process time for me. And I’m sorry to say this, but I just can’t think straight tonight. This drawing thing sure takes a long time for me!! Everything is just slow!

I need to sleep…at a more normal time for once! I have to do so many things before we drive to Penticton to see my mother-in-law in the respit home that she’s just moved into. Too much to do!!!!🙅🏼💆🏼And I’m running nout of time. 👺

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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Rhyming Words With My Five Year Old!!

October 5, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #chronic fatigue, #chronic pain, #clinical depression, #dependency, #edmonton, #facial pain, #lasertherapy, #mairrage, #medication, #meditation for pain relief, #meditech, #MVD surgery, #neuroplasticity, #pain, #pain relief, #pain sensitization, #parenting, #poetry#bug bites, #Striking Back, #TN, #TN research, #trigeminal neuralgia, #www.tnnme.com, #www.zazzle.com, #yoga for pain reliefJenn

Went to my hubby’s final football game this afternoon. It was kind of a “gimme” game. They actually played their last game of the year – last weekend – seriously! However, they received a call on Monday saying that the team who beat them had an “illegal player” when they played and, consequently, they were disqualified. This meant that my husband’s team, “The,WiseGuys” got to be in the finals. So, they player their – “second last” game today!! (Did you get that bad little joke there?? “Second last”??…) Anyway, it was a fun game to watch, there were some amazing plays and interceptions, but, ultimately, they lost. However, they had fun and played well. Maybe when it’s a lucky game, an unplanned game that comes out of the blue, the team plays with much more relaxed game play. They seemed less hard on themselves, so they came across as quite confident and competent. Then we took the kids home and we went to Hudsons for drinks (after dropping the children back at home).

My little 5 year old man is helping me when the rest of this. We will be rhyming:

There once was, Harrison the black lamb.

He slipped and hit his head, “BAM!!!”

Hi mouse friend, Jack, wanted to laugh.

But he was stopped by Pat, the giraffe.

Then Jack-Smith the fish flew by…?

Huh?? – Fish can’t even fly!!??

Jack started to laugh, once more

While yelling, “what are you flying for??”

This time Both Harrison and Pat

Stopped Jack from laughing from where he sat,

Suddenly from the spring jumped a big wet frog

Who landed, on-top-of, Jack, knocking him off a log.

Harrison laughed, and Pat laughed, and Jack-Smith laughed too!!

I guess that’s what happens if laughing at people is what you like to do!!

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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What’s In Today’s Fine Print???

October 3, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #bug bites, #chronic fatigue, #October 7th, #TN awareness, #TN Awareness Day on October 7Jenn

I’m feel like I’be been somewhat “out of it” all week. I’m not sure if it shows in my posts, I just feel like, well, the foggy feeling that I was talking about the other day. I don’t know, it’s hard to explain, “out of it” just seems to fit today. I’m watching the world all around me, people are going about their day, doing whatever they need to get done. I just feel like the audience. On the outside looking in. I feel like I’m not actually involved in things. It’s so weird…

I have to draw another picture of my hand, holding something or doing something, not just held out flat. The one that hat I did in class took me forever! I believe that everyone was done their 1st drawing and had already started the second before we left…oh well. The length of time shouldn’t matter that much, as long as I get it all done. Thus, the reason you are reading another very short, check-in type of post. The truth is, that I’m kind-of feeling at a loss for things to write about right now. So, it’s just this short “hello”!! Hello Hello, Hello Hello, you say goodbye I say hello, Hello Hello…

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Life with Chronic Pain…With Trigeminal Neuralgia/TN!!!

It’s all in the fine print…

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Sometimes I Don’t Have Anything To Say…

October 3, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #bug bites, #chronic fatigue, #October 7th, #TN awareness, #TN Awareness Day on October 7Jenn

Sometimes I don’t have anything to say,

It’s as if all the words have been washed away.

There’s an empty space where the words should be,

But they’ve all been swept away from me.

So I stare up blankly, through zoned-out eyes,

But I can’t find the answers in the darkened skies.

Oh, damn this night, when I’ve nothing left to give…

I’m just so overwhelmed, I make it hard to forgive.

Words words words jump and collide in my brain,

The right ones just vanish and it’s driving me insane!!

And, well,

Sometimes I don’t have anything to say.

I must trust that the universe wants it this way…

JKC/2015

Don’t forget to wear teal on Wednesday October 7, 2015, for Trigeminal Neuralgia/TN awareness day.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

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Unsure About What To Write…Feeling Poopy!!

October 2, 2015Uncategorized# atypical facial pain, # kids, # laser therapy, #acute pain, #Beaumont AB, #bug bites, #chronic fatigueJenn

It was kind of strange day today. My Brain is a fog today, felt like I was half asleep and the world around me seemed to come in and out of focus, like semi-lost whispers in the wind, through a hazy, thick fog, I couldn’t sleep last night so, could be part of the reason I’m fried in the brain. It’s one of the days that seems long and drawn out but, simultaneously flies by. Very strange….

I’m sorry to say, but this is all I’ve got for today. I am just having a “shit-tacular” day. The pain has been unbearable and exhausting

Next Wednesday, Otcober 7th, 2015, is the 3rd annual TrIgeminal Neuralgia, TN, Awareness day. That means you should buy/wear teal, any teal item of clothing and/or go to the website and order a ribbon or pin or something…(www.tnnme.com)

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the WorldHealth Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I writers

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The Spirit Scribe

I challenge myself to write 365 posts in 2016to heal Body, Mind & Spirit. Hopefully one day I’ll get it right, or at least have fun, while about it I write!!

Category Archives: Uncategorized

Rewind – Repeat!

Red & Tired Eyes…

Busy Blur Of A Day…

Don’t You Ever Pause

Huh

Please Forgive the little things.

Rhyming Words With My Five Year Old!!

What’s In Today’s Fine Print???

Sometimes I Don’t Have Anything To Say…

Unsure About What To Write…Feeling Poopy!!