Well look at me. I actually woke up at 8:00 and stayed up!! Pretty exciting news…(doesn’t take much folks, doesn’t take much…) 

I was about to head to bed when I realized that I hadn’t written my post yet today. Yikes‼️ I would have been so angry with myself. I’m so close to the end of the year that missing a post now would really have upset me. However, it won’t be much of a post because I feel exhausted and the pain is over the top today. My face is doing the strange red flare up thing. It’s on fire and looks like it. I don’t know why it sometimes has this strange red flush accross my cheek and other times it doesn’t. All I know is this stupid pain patch that I have on might as well be a bandaid!! It’s doing nothing for me, other than leaving a bunch of that sticky gluey gunk on my skin that takes forever to get off. It brings back that painful moment when the crabby nurse in the NICU yanked the bandage off the back of my head without warning!! (Seriously, she was so so mean!! I was sitting up on my bed talking with my neurosurgeon and she was doing something beside me. Suddenly I felt her hand on my head and she ripped the bandage, along with some hair, off,‼️ No warning at all!) I had such a horrible experience there. Prior to my surgery we had heard so many positive things about the NCIU, but I had just an awful experience! I’m not going to bash  them or say anything else about it on here, it was just my personal experience. 

How in the world did I ever end up talking about this?? Strange. Well, I’m going to stop while I’m ahead. 💤💤

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health topic list.”

Hopefully once day I’ll get it right, or at least have fun, while about it I write!!