Today felt long and drawn out. I’ve had a mother of a headache all day. The new migraine, nasal spray did nothing for the pain and the new pain med did nothing either. I didn’t have high hopes, why would anything work at all?? I have a pretty long history of resistance to medication. The pain Dr doesn’t know my history like my regular doc. The last time I saw him and he gave me a new prescription my regular doc raised the strength without discussion! She’s been my Dr since I was about 22, so she knows me well. Anytime I’ve had a different Dr or specialist they just don’t listen to me at all when I try to tell them that I’m very resistant to medications. I’ve had numerous instances where they didn’t listen to me (I believe that they think I just want the buzz) and find out (usually after they actually witness it themselves) that I’m still in a great deal of pain. So, I guess I have to play that game again with this pain Dr. Even when I had my brain surgery. My doc wrote a letter about my medication resistance and printed off a list of my meds and doses, etc, (in order to avoid a great deal of post surgical pain) and they completely ignored all of that information anyway.  It was so so bad… And round and round we go!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!