I saw my pain Dr this morning (far too early if you ask me!). Another new pain med to try, new migraine med to try and one other new med on my plate. So two gone three added. I still feel shitty the majority of the time. He talks about how the pain med is to be used for “break through pain”, which is supposed to be used as needed, not by rote. The other prescriptions are supposed to be keeping it mainly under control. The problem is that I’m not sure if they actually are fulfilling that role, because my pain seems pretty constant. I know I currently am in pain more often than not. But the solution to pain isn’t just prescriptions, it’s about choosing to live again, it’s your diet and lifestyle, and bla bla, yadda yadda yadda… (I always think that it’s easy to tell someone what they should be doing to get better, but for the most part you’re being told this by people who have no idea what it’s actually like feeling like shit almost all of the time!! And, frankly, it’s exhausting!!!) Here I am, it’s only 8:30 and I am lying on my bed writing this and then, hopefully, going to bed. We did the pizza and the cupcake (she made them all herself – by scratch!) and now I’m so so tired. I will likely miss presents (which isn’t a great thing to sleep through), but I feel so so dizzy and a fuzzy tingle feeling in my “extremities” (I do believe that is the first time I have ever used that word!!). And, my face is on fire. ♨️♨️ (this is as close to a fire emoji I can find..

Happy Birthday my sweet little one. I love you oh so very much!!

To help with research and treatment for Trigeminal Neuralgia please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List.

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!