Have you ever had a day when it hurts to wash your face?

Have you ever stepped outside and had a breeze burn your cheek?

Have you ever felt a searing pain from a gentle, sweet caress?

Have you ever stayed in bed for much longer then a week?

Have you ever felt shamed because you have to beg for drugs?

Have you ever felt a shock of pain as a tear escapes your eye?

Have you ever felt so isolated you think you’ll lose your mind?

Have you ever wondered if perhaps a part of you may die?

Have you ever cursed and cried and screamed without uttering a word?

Have you ever felt like curling up so tight that you may burst?

Have you ever held back crazed laughter when you hear “I understand”?

Have you ever smiled and said “I’m fine” when the pain is at its’ worst?

Have you ever judged yourself?

Have you ever felt too small?

Have you ever blamed yourself?

Have you ever felt yourself fall?

I feel and think and experience these things

I live each day immersed in these things

My life has been consumed by these things

I long to break away from these things

I’ll pray and write and ponder these things

Until my answer is “no” to all of these things

I yearn to answer “no” to these things

To find my path away from these things

I’ll keep on trying to get away from these things

I will one day beat all of these things

I will one day be free…

JKC

Please go to http://www.tnnme.com (Trigeminal Neuralgia and Me) to sign a petition to have the World Health Organization (WHO) add Trigeminal Neuralgia (TN) to their “Health Topic List”!!! 

Hopefully one day I’ll get it right, or at least have fun, while about it I write!!